Vulvar Vestibulitis

[Guest guest]

So, I was diagnosed with vulvar vestibulitis in May of this year. My

sypmtoms started Feb 11th of this year (my 31st birthday ya happy

birthday to me).

I guess I am lucky in that I have read of some people who took years

to get a correct dianosis of it. I of course went through the usual

they thought I had a yeast infection, vaginal bacteriosis, bladder

infection and of course when all those were negative they went on to

the STD testing. When all that finally came back negative the PA I

was seeing threw up her arms and sent me to a GYN.

I was lucky in that once he talked to me he pretty much knew right

away what was wrong. He tested the area with a q-tip and when I

reacted exactly how he thought he diagnosed me with the VV.

He told me we had 3 options. The first was a cream, the second was an

oral medication and the 3rd was surgery but he said he cautions his

patients with the 3rd because of the inherant risks of surgery. So

far I have been using option 1 and it works pretty well for me. I

started out having to use it twice a day. Now it seems only a few

times a week but I have noticed if I am stressed out I seem to have

to use it more.

I don't know if everyone knows what VV is but basically from what the

DR told me it's a misfiring of nerves. So basically you suffer from a

burning sensation when you shouldn't be. He told me they don't know

what causes it and there is currently no cure, only treatments to

help keep it under control.

I find it frustrating to be suffering from something that isn't well

known about. My friends and family have all been with me through it

and inquired on how I was doing, but they just don't get what it is

like to deal with this on a daily basis.