Well I got some answers, I think, lol

[Guest guest]

So Dr Sorrell is still on vacation but I kept calling the nurses

there. One told me " I don't have any idea what that disease is so I

don't know what to tell you " !!!!! Then another tracked down a

different GI doc that was willing to talk to me. He went over my

symptoms and sent me to my local hospital for labs and blood

cultures. The cultures aren't back yet but my ALKP is elevated so is

BUN/CR and I am anemic (I don't know if that matters).

So my PCP said that it could be mild cholangitis and I am on cipro

and they gave me lortab which has helped. If you remember I had

fever and chills a week or so ago and the ER docs didn't know what

to think.

So anyway....at least SOMEONE is listening to me. It's crazy. In

the 3 years it took me to find out my dx, never did I imagine it be

something that so few people would know about! It's frustrating.

Thanks for the replies, advice, and similar stories!!!

PSC 8/07

PBC 10/06 (probably)

> We all know our own bodies and our children's , so if we feel

something is

> wrong , fight for answers...

>

>