kind of urgent..don't know what to do

[Guest guest]

Hi Everyone--

I'm really not sure what to do at the moment....I was recently treated

for BV, got better for a few days, and now my symptoms are back. After

the antibiotics (7 days of flagyl), I used boric acid and ketoconazole

to fend off any yeast since I am really prone to it.

The symptoms are pretty bad right now and I'm having a hard time

functioning. The nurse I saw at school is not there on the weekends

and my doc's office isn't open either. Even so, since I've been on the

anti-yeast meds I don't even know if there would be a point in getting

tested, unless the BV is still there and they could see that. Also,

neither of them do thorough, proper testing. I am in the process of

finding a provider who I can rely on for that.

What do I do, tough it out for a few days and go see someone next

week? Or try to see someone in the meantime, even though I've been on

the antifungals.

I just don't know if maybe the BV is still there.

I CAN'T believe this is happening. I really was putting my pelvic pain

behind me and was just starting to have pain free days.

Any advice much appreciated.

[Guest guest]

, I think you need two plans, a long-term plan and a short-term plan.

First of all, are you still seeing Deniz Zolnoun at the UNC Pelvic

Pain clinic? I think you said that you are under her care but she is

not testing and treating your infections.

Short term plan:

Call the UNC Pelvic Pain clinic and try to get an appointment with

*anyone*, just as soon as possible. Say that it is an emergency. Try

to get some strong pain pills such as VICODIN out of them. If they

refuse to help you, ask them to refer you to a Pain Control

specialist. You get in much faster if you are referred. A Pain Control

Specialist is Pasi in Raleigh, . (There is probably

one closer than Raleigh but I don't have name & phone number) There is

no sense in " toughing it out " in my opinion.

Long term plan:

When you see Michele , ask her if she can refer you to Libby

in Charlotte. Libby is a world class VV expert, and

she is really good with infections. I mean, Michele may be able to

treat your infections but Libby specializes in this. You may

have nerve pain, which is making the discomfort from the

bacteria/yeast feel much worse than it should. So you might want to

try nerve pills just to see if it helps. Michele will help you with that.

Neurontin, Elavil, Lyrica, Nortriptyline, etc.

Very Short Term Plan for tonight: Lay on the couch and get your

husband or boyfriend to rub your feet.

I'm thinking about you. This group is here to support you.

>

> Hi Everyone--

>

> I'm really not sure what to do at the moment....I was recently treated

> for BV, got better for a few days, and now my symptoms are back. After

> the antibiotics (7 days of flagyl), I used boric acid and ketoconazole

> to fend off any yeast since I am really prone to it.

>

> The symptoms are pretty bad right now and I'm having a hard time

> functioning. The nurse I saw at school is not there on the weekends

> and my doc's office isn't open either. Even so, since I've been on the

> anti-yeast meds I don't even know if there would be a point in getting

> tested, unless the BV is still there and they could see that. Also,

> neither of them do thorough, proper testing. I am in the process of

> finding a provider who I can rely on for that.

>

> What do I do, tough it out for a few days and go see someone next

> week? Or try to see someone in the meantime, even though I've been on

> the antifungals.

>

> I just don't know if maybe the BV is still there.

>

> I CAN'T believe this is happening. I really was putting my pelvic pain

> behind me and was just starting to have pain free days.

>

> Any advice much appreciated.

>

>

>

[Guest guest]

Hi --

Thank you for this wonderful message. This is great advice. I did call

Dr. Zolnoun on Friday and spoke with her nurse and told them what was

going on and that I was extremely anxious and couldn't sleep. She had

told me to add cymbalta and propranalol to my elavil at my last

appointment, when i was first having the BV symptoms and she wouldn't

test me.

I hadn't started the cymbalta yet because I was doing so well before

this infection and wasn't sure I wanted to be on more drugs. The

propranolol just didn't seem like a good idea. Anyway, so the nurse

told me that they would not give me anything else until I tried these.

But the thing is cybalta takes a while, and I did take some

propranalol last night and today and feel nothing from it. I guess I

will do what you said, call them on monday, and if they are not

willing to give me anything else ask for referral to pain management.

I think you are right about me feeling the infections symptoms much

more intensely. I do have some level of nerve pain, although my nerve

pain is most a result of muscle contracture.....but I can guarantee

that my muscles are contracting right now!!!

I am glad you reminded me of Libby as I forgot she was here.

And I was doing so well before that I had no need to seek out

additional assistance.

I am just praying that I can get past this and back to my near

pain-free happy state.

Thanks again, you're the best

> >

> > Hi Everyone--

> >

> > I'm really not sure what to do at the moment....I was recently treated

> > for BV, got better for a few days, and now my symptoms are back. After

> > the antibiotics (7 days of flagyl), I used boric acid and ketoconazole

> > to fend off any yeast since I am really prone to it.

> >

> > The symptoms are pretty bad right now and I'm having a hard time

> > functioning. The nurse I saw at school is not there on the weekends

> > and my doc's office isn't open either. Even so, since I've been on the

> > anti-yeast meds I don't even know if there would be a point in getting

> > tested, unless the BV is still there and they could see that. Also,

> > neither of them do thorough, proper testing. I am in the process of

> > finding a provider who I can rely on for that.

> >

> > What do I do, tough it out for a few days and go see someone next

> > week? Or try to see someone in the meantime, even though I've been on

> > the antifungals.

> >

> > I just don't know if maybe the BV is still there.

> >

> > I CAN'T believe this is happening. I really was putting my pelvic pain

> > behind me and was just starting to have pain free days.

> >

> > Any advice much appreciated.

> >

> >

> >

>

[Guest guest]

,Do you feel raw and irritated? If so, try using an antihistamine. Dee used to remind us that when you have an infection (like yeast) that the inflammation and irritation could remain --where it caused the nerves to overfire - and that the antihistamine could calm things down. I'm not sure if the same is true with BV...but I think it probably could. Do you have anything you regularly fall back on when in a flare-up? Ice packs? You can freeze water in a condom an insert it or lay it on your skin...I'll re-send the Relief list...you never know when there might be something that can help.Keep telling yourself things will calm down.Big Hugs, ChellePS - I'll be emailing you with the info on Libby, soon. I'm trying to catch up! ;-)

[Guest guest]

Thank you Chelle! I bought some Benadryl yesterday and am going to

give it a shot. For me symptoms for BV and yeast are the same, so I

would imagine it could work for either? Thanks again. You rock.

>

> ,

>

> Do you feel raw and irritated?  If so, try using an antihistamine. 

Dee used to remind us that when you have an infection (like yeast)

that the inflammation and irritation could remain --where it caused

the nerves to overfire - and that the antihistamine could calm things

down.  I'm not sure if the same is true with BV...but I think it

probably could.  Do you have anything you regularly fall back on when

in a flare-up?  Ice packs?  You can freeze water in a condom an insert

it or lay it on your skin...I'll re-send the Relief list...you never

know when there might be something that can help.

>

> Keep telling yourself things will calm down.

>

> Big Hugs,

> Chelle

>

> PS - I'll be emailing you with the info on Libby, soon.  I'm trying

to catch up!  ;-) 

>

[Guest guest]

Chelle,

This is D. Thank you so much for your email regarding Dr.

Libby . You are the best! I hope you don't get tired of my

many questions because I know I always have so many.

I have another question about the antihistamines. What brand do you

use or recommend? Pills to take orally or gels to apply topically?

Thanks again, Chelle. You're amazing.

D.

>

> ,

>

> Do you feel raw and irritated?  If so, try using an

antihistamine.  Dee used to remind us that when you have an

infection (like yeast) that the inflammation and irritation could

remain --where it caused the nerves to overfire - and that the

antihistamine could calm things down.  I'm not sure if the same is

true with BV...but I think it probably could.  Do you have anything

you regularly fall back on when in a flare-up?  Ice packs?  You can

freeze water in a condom an insert it or lay it on your skin...I'll

re-send the Relief list...you never know when there might be

something that can help.

>

> Keep telling yourself things will calm down.

>

> Big Hugs,

> Chelle

>

> PS - I'll be emailing you with the info on Libby, soon.  I'm

trying to catch up!  ;-) 

>