Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Has anybody ever taken the drug humira? I was taking it for my crohns, which it didn't help, but since I started it I haven't had any symptoms of my PSC. I was wondering what experiences anybody else had with this drug. Thanks, Cheryl Hi ; Can you please have this reviewed and approved by Ricky Safer? I know that you just want to help in any way possible, and that is much appreciated, but since PSC Partners Seeking a Cure is a non-profit 501 ©3 foundation, we have to be really careful about fundraisers so that we don't loose our non-profit status. Ricky would probably want to have this reviewed by her legal consultants. On the PSC Partners Seeking a Cure web site there's a form that you can complete to suggest a project, and then have that approved by the board. http://www.pscpartners.org/organization.htm http://www.pscpartners.org/ProjectProposalFormI.pdf Best regards, Dave (father of (23); PSC 07/03; UC 08/03) > > I hope I'm not overstepping my bounds, but I figure any amount raised > helps. and I will handle all th > > The money raised will be sent out in a check made out to " PSC Partners > Seeking a Cure " and right now I set it to come to my house and I will > collect them and forward them to the bookkeeper or whoever collects > the money. > > Go to http://www.magfundraising.com/PSCPartners and see it if you'd > like. :-) It's a magazine subscription thing. The mags are at a > discounted price and we get 40% of the purchase price!!!!!!!! > > And pass it on to your friends and family. I emailed it to all 52 > people in my address book and to my myspace friends, so you some of > you guys may have already got an email! > > > PSC 8/07 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 I have taken Humira. It did help with my Crohn's but not as well as the Remicade IV therapy. I don't think that I have symptoms from my PSC yet so I can't help there. There are some days that I feel very badly with no real explanation for it. That could be PSC or it could be just getting older (who knows). Sorry I can't help more. PSC '01 >>> 10/8/2007 2:57 PM >>> Has anybody ever taken the drug humira? I was taking it for my crohns, which it didn't help, but since I started it I haven't had any symptoms of my PSC. I was wondering what experiences anybody else had with this drug. Thanks, Cheryl =========================================================== This message is confidential, intended only for the named recipient(s) and may contain information that is privileged or exempt from disclosure under applicable law. If you are not the intended recipient(s), you are notified that the dissemination, distribution or copying of this message is strictly prohibited. If you received this message in error, or are not the named recipient(s), please notify the sender and delete this e-mail from your computer. ETMC has implemented secure messaging for certain types of messages. For more information about our secure messaging system, go to: http://www.etmc.org/mail/ Thank you. =========================================================== BEGIN:VCARD VERSION:2.1 X-GWTYPE:USER FN:Wilkinson, ORG:;Human Resources EMAIL;WORK;PREF;NGW:lindawilkinson@... N:Wilkinson; END:VCARD Quote Link to comment Share on other sites More sharing options...
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