Support Groups in Western/Central Mass

[Guest guest]

Hi:

I've posted a question regarding this before but does anyone know of

any support groups for PSC? I haven't found any in the hospitals, etc.

And a question. If there are none, would folks (and how many) be

interested in starting one in the Western Central (Athol/Gardner area)

in Ma? I would bet if we could get 10-20 folks interested that we

could get a local hospital or facility to let us meet maybe once a month.

[Guest guest]

Hello, I facilitate a PSC Support Group in CT. We meet at the American Liver Foundation Chapter office in North Haven, CT. Because PSC attendance is sparse I often combine this support group with another general Liver Disease Support Group. The next meeting is Saturday November 17th. Guest speakers are: Sukru Emre, MD, FACS, Director of the Yale-New Haven Transplantation Center who will present an "Update on Transplantation". Also, Cheryl , RN, MSN,CCRN, CPTC of the New England Organ Bank will be speaking on "Steps in Organ Donation". All are welcomed to attend. If anyone would like more information please e-mail me at: ctpsc@... Reggie basement_warrior2003

wrote: Hi:I've posted a question regarding this before but does anyone know ofany support groups for PSC? I haven't found any in the hospitals, etc.And a question. If there are none, would folks (and how many) beinterested in starting one in the Western Central (Athol/Gardner area)in Ma? I would bet if we could get 10-20 folks interested that wecould get a local hospital or facility to let us meet maybe once a month.

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[Guest guest]

Thanks for this information, I had no idea there was a support group

in CT for PSC. I found it interesting that the guest speaker is Dr

Emre. He recently left Mt Sinai, where he was Dir of Ped Liver

Transplant, a hospital that was recently mentioned in some other

posts. My son sees a hep and GI at Mt Sinai and I love the Ped GI. I

am disturbed by the posts regarding Mt Sinai's record, but I my son is

a long way from thoughts of transplant.

, mother of Miles, 6, UC, Small duct PSC

>

> Hello,

>

> I facilitate a PSC Support Group in CT. We meet at the American

Liver Foundation Chapter office in North Haven, CT. Because PSC

attendance is sparse I often combine this support group with another

general Liver Disease Support Group. The next meeting is Saturday

November 17th. Guest speakers are: Sukru Emre, MD, FACS, Director of

the Yale-New Haven Transplantation Center who will present an " Update

on Transplantation " .

[Guest guest]

Hi , When we send out a Constant Contact notice on this meeting I will forward it to this group. A couple of weeks ago Dr. Emre performed a pediatric split liver transplant, the first in CT. Reggie sarahphilion wrote: Thanks for this information, I had no idea there was a support group in CT for PSC. I found it interesting that the guest speaker is Dr Emre. He recently left Mt

Sinai, where he was Dir of Ped Liver Transplant, a hospital that was recently mentioned in some other posts. My son sees a hep and GI at Mt Sinai and I love the Ped GI. I am disturbed by the posts regarding Mt Sinai's record, but I my son is a long way from thoughts of transplant. , mother of Miles, 6, UC, Small duct PSC>> Hello,> > I facilitate a PSC Support Group in CT. We meet at the American Liver Foundation Chapter office in North Haven, CT. Because PSC attendance is sparse I often combine this support group with another general Liver Disease Support Group. The next meeting is Saturday November 17th. Guest speakers are: Sukru Emre, MD, FACS, Director of the Yale-New Haven Transplantation Center who will present an "Update on

Transplantation".

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