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I'd be VERY leery of discontinuing UC meds. Side effects of the typical drugs

(for most people) are very mild to nonexistant. When I was first diagnosed with

UC (1977), my Dr. said I'd have to take meds for the rest of my life. At 26

(and quasi-immortal), I didn't believe it - so far, he's been right.

I did stop a couple of time in the early days with flares occurring within a

week to a couple of months at best. The underlying cause is still there even

though the symptoms aren't.

I really don't even think about taking sulfasalazine anymore - it's automatic.

I doubt if I miss even one dose a month (out of ~120 tablets/month). I've been

asymptomatic (for UC) for all but a couple of months of the early years for

nearly 30 years now.

It may be possible for you, but the statistics are not promising.

Arne

---- wrote:

=============

....I have an upcoming appointment with my hepatologist/gastroenterologist in

about 2 weeks and I'd like to see about either discontinuing my meds for the UC

or perhaps finding some alternatives as I've been asymptomatic for UC for quite

some time.

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>

> I'd be VERY leery of discontinuing UC meds.

Same here. Anytime I've stopped taking sulfasalazine during the last

22 years, my UC symptoms would return within a month. Most recently,

I stopped taking it after my tx when one of my tx docs told me that I

probably wouldn't need it anymore since immunosuppressant drugs make

the UC quiescent. T'wasn't so.

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