Career Poll (answer here :-) please)

[Guest guest]

I know there is a poll section but I can't do what I want there so I

hope it's okay that I post here.

I always intended on going into medicine but right now I'm not sure

if that will ever happen. So I'm just wondering...

For those of you that are able to work, what kind of work do you do?

For those that don't work, did you ever, and what did you do?

Did you have to stop working or change careers because of your PSC?

Thanks everyone!!!

PSC 8/07

[Guest guest]

,

I'm an electrical engineer. I became quite ill four years after I graduated, the illness caused me to be on long term disability four about five months, led to them diagnosing me with PSC, and the removal of my bile ducts. But most of the last 18 years PSC has not affectted my ability to work.

Ian (51) PSC 89

I know there is a poll section but I can't do what I want there so I hope it's okay that I post here.I always intended on going into medicine but right now I'm not sure if that will ever happen. So I'm just wondering...

For those of you that are able to work, what kind of work do you do?For those that don't work, did you ever, and what did you do?Did you have to stop working or change careers because of your PSC?

Thanks everyone!!!PSC 8/07 -- Ian Cribb P.Eng.

[Guest guest]

For those of you that are able to work, what kind of work do you do?

I'm a part-time high-school physics teacher, part-time IT consultant

(making websites etc.) and part-time ballroom dance teacher and

competitor

For those that don't work, did you ever, and what did you do?

Did you have to stop working or change careers because of your PSC?

I had to take 6 months off school teaching when I first got diagnosed

due to some really bad bouts of bacterial cholangitis. I returned to the

dancing after about 5 months.

Because I do get quite tired I find different part-time jobs are easier

for me - if I can't sleep well at night due to the itch then getting up

in the morning and functioning effectively 5 days a week is impossible.

Generally speaking if I manage it well most people don't realise I have

an illness and are surprised that I'm working so much and doing so many

hours of dance training and competitions every week.

Long answers, sorry!

[Guest guest]

My daughter works 4 10 hour days; with small children, aged 3 and 5, a home and hubby to take care of; she is a tax analyst for Key Corp.....-----Original Message-----From: [mailto: ]On Behalf Of WestonSent: Friday, October 12, 2007 1:36 PMTo: Subject: Re:Career Poll (answer here :-) please)For those of you that are able to work, what kind of work do you do?I'm a part-time high-school physics teacher, part-time IT consultant(making websites etc.) and part-time ballroom dance teacher andcompetitorFor those that don't work, did you ever, and what did you do?Did you have to stop working or change careers because of your PSC?I had to take 6 months off school teaching when I first got diagnoseddue to some really bad bouts of bacterial cholangitis. I returned to thedancing after about 5 months.Because I do get quite tired I find different part-time jobs are easierfor me - if I can't sleep well at night due to the itch then getting upin the morning and functioning effectively 5 days a week is impossible.Generally speaking if I manage it well most people don't realise I havean illness and are surprised that I'm working so much and doing so manyhours of dance training and competitions every week.Long answers, sorry!The contents of this electronic mail message and any attachments are confidential, possibly privileged and intended for the addressee(s) only. Only the addressee(s) may read, disseminate, retain or otherwise use this message. If received in error, please immediately inform the sender and then delete this message without disclosing its contents to anyone.

[Guest guest]

For those that don't work, did you ever, and what did you do?

**Iam a US Navy Veteran, female, 47. I was an AVIATION STRUCTURAL MECHANIC during active service.

Iam now receiving full veterans benefits. 100% service connected.

O/T Iam very interested in rose hybridizing (keeps my mind active). Currently waiting for several own root species to arrive from Canada. R. Primula, R. Hugonis and R. Sericea Pteracantha.

Magnificent! R. Sericea Pteracantha (Wingthorn Rose)

Did you have to stop working or change careers because of your PSC?

**Yes. I had lost a lot of weight and was terribly fatigued. Preventing me from working full time.

Andi PSC/Crohns 01/02 Modesto California

[Guest guest]

is still able to work, however if we could afford it,

he would go on disability.  He is an

Operating Room nurse.  He has a JPouch (which is chronically dysfunctional) along with

PSC.  Quality of life isn’t what it

used to be.  But, we count our blessings.

  Could be much worse.

   I do read the posts

regularly and offer prayers to all.  Take

care.  Kath

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[Guest guest]

Hi

I work as a Rehab Therapist for people with Acquired Brain Injury and

Mental Illness. I also have a home-based business doing graphic

design. I need the creative outlet to balance the f/time job or I

think I'd be looking for a room elsewhere in our hospital ...

I've actually only taken time off from work for a work-related back

injury and the UC when I first started having symptoms. Otherwise,

I've been very fortunate that apart from the stress of first learning

about PSC, it's had minimal impact on my ability to lead a relatively

normal life.

However, as it is a progressive illness, it changed some of my plans

as far as making self-employment a f/time thing.

[Guest guest]

For those of you that are able to work, what kind of work do you do? I am not working by choice.For those that don't work, did you ever, and what did you do? part-time office worker during high school and college; research assistant in graduate school; substitute public school teacher ; real estate agent; educational and psychological tests and measurement specialist; psychology professor Did you have to stop working or change careers because of your PSC? no. I stopped working much earlier than that.Margie in MOPSC DX 3/99

[Guest guest]

I was dx with PSC when I was 45. I continued to work until I retired from the government at age of 56. I am still working with a government contractor and am now 58. I will probably retire completely in 09. I still don't have any major symptoms except an elevated bilirubin on occasion and that was normal the last two times after my colon was removed.

Larry 58, Baltimore, UC, PSC 95, J-Pouch 07See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

> For those that don't work, did you ever, and what did you do?

>

> Finally accepted very reluctantly in May 2006 that could not work

anymore after years of ill health which resulted in many many work

absences.

Was a technical adviser for an insurance company all my working life

which was 17 years. I was lucky I had such a good employer, I had a

lot of time off work during those 17 years.

> Did you have to stop working or change careers because of your PSC?

>

> Many absences were related to my other medical conditions but it was

the PSC that caused me to have to give up work altogether and I now

claim disability benefit.

Best wishes

(UK)

PSC 07, recurrent esophagitis & gastritis, gastro paresis,

osteopenia, endometriosis leading to total hysterectomy 2004,

gallbladder removed 2005

>

>

>

[Guest guest]

i was an advertising account executive with 23 years in and 7 years

til retirement when i had to go on disability in 2004. i am now 48

and miss my career so much. i also was going to school to write

screenplays and was a chief steward in our union and i was on the

executive board. now i spend about 18-20 hours in bed each day. yuk!

my kids and husband keep me going. i try to remember how much i

looked forward to my 5 weeks of vacation a year, because now it's

saturday every day, but it doesn't work. hopefully i will get a new

liver from my son and finish out those last 7 years. that is my

dream. ooops i also want to see egypt. i have been to over 50

countries but not egypt and have that to look forward to. :-)

pam

dx 2001

varices, portal vein thrombosis, ascites, h.e.,

extreme fatigue

[Guest guest]

> For those of you that are able to work, what kind of work do you do?

>

I retired earlier this year for reasons unrelated to PSC, but it was a

relief to know I could now take care of any medical issues (like the 2

transplants this summer) without having to be concerned about the

impact on my job.

> For those that don't work, did you ever, and what did you do?

>

I was a systems analyst (computer programmer) working on powertrain

simulations for an automotive company.

> Did you have to stop working or change careers because of your PSC?

>

I didn't stop working except for recovery from surgery and brief

periods of hospitalization, but prior to my first transplant in 1998 I

did reduce my work load to 3 days a week because of fatigue.

Tim R, tx #3 7/7/07

[Guest guest]

I own an accounting and tax practice in Northern Virginia. So far, I

can work a 40 hour week, but the fatigue limits much work beyond that.

My business model is changing in light of the PSC so that my workload

is more consistent over the course of the year. I don't take any

individual tax clients, only businesses who will engage me on a

monthly basis year-round. That levels out the work flow and makes me

less dependent on a stressful tax season to make my year.

Tom

PSC 1999

>

> For those of you that are able to work, what kind of work do you do?

> I'm a part-time high-school physics teacher, part-time IT consultant

> (making websites etc.) and part-time ballroom dance teacher and

> competitor

>

> For those that don't work, did you ever, and what did you do?

>

> Did you have to stop working or change careers because of your PSC?

> I had to take 6 months off school teaching when I first got diagnosed

> due to some really bad bouts of bacterial cholangitis. I returned to the

> dancing after about 5 months.

> Because I do get quite tired I find different part-time jobs are easier

> for me - if I can't sleep well at night due to the itch then getting up

> in the morning and functioning effectively 5 days a week is impossible.

> Generally speaking if I manage it well most people don't realise I have

> an illness and are surprised that I'm working so much and doing so many

> hours of dance training and competitions every week.

>

> Long answers, sorry!

>

>

>