Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 My 20 year old son just got diagnosed with mono. I was wondering if anyone in the group had ever had mono and if it complicated the psc problem. Any feedback would be appreciated. I'm also concerned because he's on prednisone and Aleve which can't be great for the liver. Thanks. Joan--'s mom, psc 2004-asymptomatic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Joan, When Noah was diagnosed he had reactivated EBV. This meant that he had had it before and was in the acute stage of another round. This made his AST and ALT and GGT go sky high. I can get you numbers if you wish. But this is how we finally got a liver biopsy because they didn't understand what was going on and had given him 6 weeks to " chill out " and let the numbers come down while our doc was in France. They only went higher... like doubling daily at one point. So... I think it is recoverable for sure...but I think it takes its toll on the patient. Noah never bounced back energy wise after that. : ( > > My 20 year old son just got diagnosed with mono. I was wondering if > anyone in the group had ever had mono and if it complicated the psc > problem. Any feedback would be appreciated. I'm also concerned > because he's on prednisone and Aleve which can't be great for the > liver. Thanks. > > Joan--'s mom, psc 2004-asymptomatic > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Hi Joan, I was diagnosed with mono shortly before getting PSC. The test for mono showed that I " was exposed and had mono " but did not have it at the time of the test. It was weird. Lets talk more about this. Jarad > > My 20 year old son just got diagnosed with mono. I was wondering if > anyone in the group had ever had mono and if it complicated the psc > problem. Any feedback would be appreciated. I'm also concerned > because he's on prednisone and Aleve which can't be great for the > liver. Thanks. > > Joan--'s mom, psc 2004-asymptomatic > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 I had mono last year, and although it didn't complicate the PSC, the side effects from one of the pain meds nearly killed me. Toradol is a very powerful nsaid/pain killer. I was given Toradol IVs in the emergency room when the mono-related pain was intolerable, and they sent me home with a prescription for Toradol pills. As a pain killer, it was great...pain relief without fogging up my head. But, like any nsaid, it can weaken blood vessels. In my case, UC was flaring up, and the toradol found a weak spot in my colon. That led to a burst artery, and I nearly bled out. A week in ICU and nine units of blood later, I was OK. So, be watchful of the painkillers your son gets. If he has any bowel disease at all, or any nsaid sensitivity, keep away from those kinds of painkillers. Tom PSC 1999 > > My 20 year old son just got diagnosed with mono. I was wondering if > anyone in the group had ever had mono and if it complicated the psc > problem. Any feedback would be appreciated. I'm also concerned > because he's on prednisone and Aleve which can't be great for the > liver. Thanks. > > Joan--'s mom, psc 2004-asymptomatic > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 -----Original Message-----From: [mailto: ]On Behalf Of leedeubertSent: Monday, October 15, 2007 9:24 AMTo: Subject: Re: mono and psc Hi Lee, Doesn't seem fair that these kids should also get mono! Glad to hear that Bill is doing better. had a painful initial crisis stage with the mono but they put him on prednisone and he says that he feels just fine. I hope so, because he's in the middle of making a film and doing a small documentary for his local public radio station plus he's crewing for two other people's films. He is clearly pushing himself and I'm worried but powerless to do anything. He says that he's getting extra sleep but who knows. I thought (and you've confirmed) that the mono might affect the liver enzymes which is really too bad since they've been normal since he started the Urso. Was Bill's liver doctor concerned about the mono and resulting raised enzymes? By the way, I hope that you're enjoying your new life in Florida. Joan Quote Link to comment Share on other sites More sharing options...
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