Bad bouts of bacterial cholangitis

[Guest guest]

,

Something you wrote in the poll caught my attention. You mentioned bad bouts of bacterial cholangitis in the beginning of your diagnose. I think that is what my husband is experiencing now. He has not been diagnosed with PSC but the doctors feel it hasn't progressed enough yet for them to see it in the liver biospy or ducts. He is fine and then out of the blue he gets a pain in his stomach and within a short time violent chills and then we know we have 20 minutes before his fever will spike. Do you take Cipro right from the beginning? We have tended to wait 3 days(of course we didn't know what we were dealing with then). Does this sound familiar to you? His are coming almost exactly 5 weeks apart. Do they usually have a pattern? Does stress bring it on?

I'd appreciate any input you feel comfortable sharing. Thank you everyone for your time and kind words.

Pamela( 's wife)

-- Re:Career Poll (answer here :-) please)

For those of you that are able to work, what kind of work do you do?I'm a part-time high-school physics teacher, part-time IT consultant(making websites etc.) and part-time ballroom dance teacher andcompetitorFor those that don't work, did you ever, and what did you do?Did you have to stop working or change careers because of your PSC?I had to take 6 months off school teaching when I first got diagnoseddue to some really bad bouts of bacterial cholangitis. I returned to thedancing after about 5 months.Because I do get quite tired I find different part-time jobs are easierfor me - if I can't sleep well at night due to the itch then getting upin the morning and functioning effectively 5 days a week is impossible.Generally speaking if I manage it well most people don't realise I havean illness and are surprised that I'm working so much and doing so manyhours of dance training and competitions every week.Long answers, sorry!