RE: Tired of Rain and Pain, Tigger

[Guest guest]

It's pretty close to the Middletown line, near first beach. I have it rented

right now year round to Navy personnel, because I can't afford to use it. Also

I would love to meet for lunch somewhere with the three of us, but I can't drive

to Newport and back in one day. It would have to be closer to here, but I would

really like to do it somewhere.

Marti

loveit1@... wrote:

Marti,

Where in Newport is your house? Maybe when the weather is better we can get

together for lunch in Newport or Middletown. Tigger will have to join us.

JudyMer

---- Marti Boguski wrote:

> Hi Tigger,

> I'm glad it made you smile.

> I had a doctor that used to look at me like I was a druggie for the piddly

amount of pain med I wanted so I know how it feels. It's funny though for years

he gave it to me without a peep because he knew what kind of pain I was in, but

then when the HMO's started squeezing he became very different. The doctor I

have now (I left that one a year ago) gives it to me without a question, but who

knows when something will change his mind. He gives it to me with 1 refill. I'm

always nervous when that refill runs out if he is going to give it to me again.

so far he has with just a phone call from the pharmacy. So that's good.

> I so hope you feel better soon. We gotta make that lunch one day. I did

actually drive to my doctor's appt in Hartford (30min away), had a 2 1/2 hr appt

and then drove home. Wasn't easy but I did it and then sacked out, without even

taking my coat off, in my recliner for a couple of hours of recuperative sleep.

It was really weird to wake up with my coat on. Felt kind of silly, but the

brain fog had taken over once again. It's the brain fog and fatigue that makes

me scared when I'm driving somewhere - well really when I'm driving home. There

have been a few times in the past when I just couldn't drive home and had to nap

in my car to regain the energy to do it. Have you ever forgotten how to get

home? I did once.

>

> Before I was taking Provigil for Narcolepsy and I was driving back and forth

to Newport all the time, because I have a place there, and many a time I would

have to pull over in the Crystal Mall parking lot and would just fall asleep

sometimes for an hour before I could continue on. I never felt safe doing it,

but I didn't have any choice. And Newport is just 1 1/2 hours from my house. Now

I don't fall asleep like I did and can make the drive there, but now I can't go

because of money problems and am renting it out.

>

> Feel better soon,

> Marti

>

> Tigger wrote:

> LOL I liked that response. " mask away, put a costume on it " If it would

> work, I'd stand naked under the full moon, but then all the houses in my

> neighborhood would go up for sale. I agree, it makes no sense except to

> make the doctor feel better.

>

> Tigger (Ruth) in Rhode Island

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of Marti

> Boguski

> Sent: Saturday, February 09, 2008 7:32 PM

> To: Fibromyalgia_Support_Group

> Subject: Tired of Rain and Pain, Tigger

>

> Hi Tigger,

> I'm so sorry you've had such a bad several days. I've been looking for that

> bus to throw myself under lately, but something keeps me from it, which I

> know is good.

> It's good that you don't too. I care how you feel and will always listen to

> how bad your day was in addition to a good day thrown in now and then.

> This rain is driving me crazy too. I'm not too much north of you and we've

> had that same constant rain day in and day out. Today it snowed and two days

> ago it snowed but not much and it barely covers the ground. I'm not really

> complaining about not having a lot of snow, but when it snows. it's usually

> so sunny and beautiful afterward. I miss sunshine!

>

> Chronic pain is a bitch and so is brain fog and constant fatigue. I at least

> have a doctor who gives me 5mg hydrocodone to take up to 3 X day and doesn't

> give me any flack about it. I wish you had someone like that to understand

> and help you.

>

> What is this stuff about not being able to ease the pain because it would

> mask it. Mask away. Isn't that what we're hoping for. We know what is wrong

> and masking it would be just great. HECK, PUT A WHOLE COSTUME ON IT!

>

> I wish I could ease your pain.

>

> Blessings,

> Marti

>

> Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

> @gmail.com> wrote:

> You could have written that post for me today. Every other day has been

> rain. Every other day I want to throw myself under a bus. Every day I have

> two kitties that tell me they love me and need me.

>

> Chronic pain is a bitch. No getting around that. I just wish they could do

> something about it. I had a doctor tell me that he couldn't give me pain

> meds because it would mask the problem. duh! There is no cure, so let's

> mask the pain. It's ridiculous the logic they try to use on us. Most of us

> a smart enough and have done enough research to know this. The last time a

> doctor told me that I said, " Good bye and have a nice pain free life. " He

> said I took him wrong. No. He was either going to treat me or not.

>

> I hate doctors.

>

> Tigger (Ruth) in Rhode Island

>

> _____

>

> From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

> Support_Group

> [mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

> Support_Group ] On Behalf Of Jeanne and

> Dave

> Sent: Saturday, February 09, 2008 3:14 PM

> To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

> Support_Group

> Subject: Re: Tired of pretending, anger, and tears

>

> I'm sorry you were so upset, Debra. I know it gets hard to just go on like

> things are normal. I really wonder if you posted a letter at work it would

> help people to understand you better. Or make up a small poster for the

> work area that reads, " Debra has FM. She is not a drug addict or alcoholic.

> Thanks for understanding. " I don't know. These are just what comes off the

> top of my head.

> I'll keep you in my prayers.

> Jeanne in WI

>

> >I just have to vent today. I am just feeling do down. I am so tired of

> >pretending I am fine when I am not. Yesterday was like trying to run a

> >marathon just going to work. They could not see under the makeup and the

> > " cheerful attitude " that I felt like $hit. What is worse is they don't

> >give a damn. I know it too.

> > Things come back to me when I feel this bad. I remember the comments my

> > supervisor has made to me about a sister in law of hers with FM. She

> > depicted her to me as lazy. She said " she slept all day " .... what she

> > does not understand is that this damn crap comes with sleep disorders on

> > top of it all. And she had made a comment that " she did not work like you

> > do " . And said " she is a prescription drug addict " . Well, I am not able

> > to freaken work. Damn it! Not a person on earth gives a crap but the

> > people here.

> > I also remember what the nurse that I work with said one day. When she

> > told me about her friend who has fibro. She said she does not talk to

> > that friend anymore because " she just wants people to feel sorry for

> > her " .. and made comments about her pain meds and how she can hardly stay

> > awake. (It is probably from the damn fibro fog and not her pain meds).

> >

> > I am fed up with people just not believing this shit. It hurts me

> > greatly. If I have larnyngitis or a cold, I get " oh, I can tell you feel

> > so bad " . Then they acknowledge that I am sick. But not with the fibro.

> > I know that any comment I make about it probably makes them roll their

> > eyes.

> >

> > I am angry, pissed, and so fed up. I just don't know how much longer I

> > can take the " don't give a shit " attitude of these people. I don't expect

> > any special treatment, but I don't want to be considered an idiot either.

> > And if I call in and say " I am sick... It is the fibro " .... they will just

>

> > talk about me then the next time I come in NO ONE will even ask how I am.

> >

> > I am just so angry. Thanks for listening. Guess what? They get me

> > today without makeup. I don't care. Let them see how I look and feel

> > every day of my life without me trying to hide it.

> >

> > love ya all,

> > Debra V.

>

>