Re: New here

[Guest guest]

Welcome to the group, Diane. I certainly hope you don't give up & can

lose those 28 lbs. again (or more!). I don't think there's anything

more frustrating than to have that scale come creeping back up on you

again after all the hard work of getting those pounds off. My weight

now is at an all-time high (except when I was pregnant) and the last

10-15 lbs. have come just since I weaned my youngest in September.

Aaargh!

Anyway, I hope you can get the support you need and maybe give some back

to the group. Nice to have you aboard & I look forward to hearing of

your future weight loss success!

- Eva

[Guest guest]

Eva

Thank you for the warm welcome. I do believe there is strength in

numbers so I am trying to find others with the same struggles as I am who truly

understands how I feel and what I am going through. I believe if we never give

up we will succeed

Diane

Ohio

[Guest guest]

Welcome to the group Diane! Great group of encouraging people here!

Rhonda

> Hello everyone

> I am new here. My name is Diane I am 41 years old. 3 years

ago

> in January I started my weight loss journey. I lost 78lbs. I

> followed the food mover, because I found it easy. I exercised, my

> motivation was good. About 6 months ago, things fell apart. I

have

> gained back 28lbs. I am miserable and I can't figure out what

> happened. However I am determined not to give up. I am looking

> forward to being a part of this group

> Diane

[Guest guest]

Welcome!!

Your names sound familiar. Where are you located?

This is a great group! Glad to have you here.

Tawnya

New here

Hello everyone,

My name is le I have a 4 year old little boy

named Jaden. Jaden was born deaf and diagnosed at 6

weeks old with Auditory Neuropathy. At 2 1/2 years old

Jaden was implanted and 6 months later he was

reimplanted due to the implant being defective. He now

has been implanted with his working implant for 14

months and still does not respond nor has he made any

" progress " with his implant. He attended an Auditory

Oral school for a year. In November we decided that it

was time to put Jaden in a more appropriate school

setting and he is now in a Deaf/HOH preschool class

with 4 other children. We are now using ASL and he has

done great receptivly and is coming along expressivly.

As for the implant, we are still working with our

implant center but we do not revolve our lives around

Jaden and his hearing/not hearing anymore. We are very

happy where he is and how our family is coming along

in terms of learing ASL and just learning to

communicate with eachother in general.

Well, not sure what else to say. When I received the

confirmation email from the moderator I was asked to

send out a posting introducing myself. I am very open

to sharing Jaden's story so feel free to ask any

questions.

le

[Guest guest]

We are in ville,CA....in between Santa Cruz and

Monterey. Does your son attend JWPOSD? Your name

sounds familiar also.

le

[Guest guest]

He did, for a bit. But it got to be too much with the commute.

I think I saw you at a parent meeting once.

Ian was loud...always disturbing Claire's class...so it didn't work for

anyone!

Tawnya

Re: New here

We are in ville,CA....in between Santa Cruz and

Monterey. Does your son attend JWPOSD? Your name

sounds familiar also.

le

[Guest guest]

ville...home of the California artichokes!

Got a speeding ticket there once

>

> We are in ville,CA....in between Santa Cruz and

> Monterey. Does your son attend JWPOSD? Your name

> sounds familiar also.

> le

>

[Guest guest]

le,

Welcome to the group!

You'll find a bunch of families with implanted kids here, as well as ones

who have not made that choice, or ones like ours for whom it's not even an

option. Lots of variation and with that variety comes the strength of this list

-- an incredible collection of knowledge and opinions from all angles. I just

love it.

Plus, it is great to be in contact with other families who understand the

highs and lows of having a D/HOH child. We live in a relatively small town --

although I think it actually gets " city " status, even though there isn't a

building over 3 stories anywhere to be found. (grin) Ian is a one-of-a-kind,

mainstreamed in our local high school. Most of his teachers have never met a

deaf person, let alone taught a D/HOH child. He'll start his junior year next

fall. Suddenly my shy little boy is considering what college he wants to

attend ... and I am going to be going into mommy-shock quite soon.

We found out about our Ian's hearing loss when he was about 7½. Due to a

very bad doctor, it was another year before we had an accurate diagnosis. His is

a bilateral progressive loss. He started with an aid in only one ear, but had

aids in both ears by the time he was 9½. His loss is currently in the

moderate range. Depending on which doc's prognosis we listen to, he will be

profoundly deaf by the time he's a young adult, or it could stop progressing at

any

time. For us, only time will tell, so we take it one step at a time.

So, while i've had no experience with little guys, aids, CIs or early

intervention services, a lot of people on this list have. So, ask any questions,

or

jump into a thread that feels right to you. There's not formal protocol here

for joining a discussion. We just try not to push one particular choice over

another. All our kids are so different that the only " right " choice is the

one that works for your family. Everyone shares their stories and experiences

and I know that helps me learn to consider things outside my own little box.

it's a great list

Best -- Jill

[Guest guest]

Hi Kim and welcome. My name is and my youngest daughter (14) has a

mod-severe hearing loss, she is oral and mainstreamed. She too had a late

diagnosis, and actually I tell people she was diagnosed by a 3 year old and a

lawyer! None of us medical people figured it out! My oldest daughter is

married to an AF guy. We live one town away from Robins AFB in GA and he's

coming there for training in August, so they will both get to come. Otherwise

they are in DC, his squadron flies out of s. I have a question - what is

campomelic dysplasia. I'm an RN and used to work in Neonatal ICU but haven't

ever heard of this. in GA

[Guest guest]

In a message dated 7/5/2006 3:27:08 P.M. Eastern Daylight Time,

klechien@... writes:

I look forward to finding out information from all of you and how

you are handling raising a deaf/hoh child in a home with

very " normal " siblings. It seems it can be trying at times in our

home.

Kim,

Yep, just when you think you have the D/.HOH thing covered, the siblings get

into the act as well. (grin). I have a 12-year-old hearing daughter, ,

and she can be the queen of melodrama, acting the part of the tortured soul

that the world has forgotten because everyone pays attention to her " stupid

deaf bother. " And this child is beautiful and smart and should not be worried

about the world not noticing her. (I am, of course, decidedly biased.) But

adolescent angst is part of puberty and we have it by the ton in our house

lately.

I joke that I may not survive her progress though puberty without copious

amounts of alcohol and maybe some prescription drugs added in. (Which is funny

only if you know that I rarely drink and think twice before taking

Ibuprofen. LOL)

I'm Jill, mom of two. My older child is Ian, 15 with a progressive bilateral

conductive loss. He is going into his junior year at our local high school

and says that when/if the day comes, he wants a CI (or a BAHA) -- whatever

will give him back his hearing. Ian was born hearing and lost it post-lingually

(after learning to speak). He wears his aids every waking moment and now that

his loss is progressing close to the moderate/severe borderline, he is even

more aware of what he's missing. (FYI: we never had any of the adolescent

melodrama or nearly this level of huffing and stomping from him.)

So, if you are looking for implant opinions from a child's view, you can

consider his. But take it with a grain of salt (as the cliche goes) because

each

child is different. Ian wants to continue to hear because he was born

knowing sound. Even if you do decide to implant your son and he hates it later

on,

he can simply take off the outer portion of the CI and chose not to

listen/hear.

But there is so much more to consider with a CI and I don't know even a

fraction of it. There is group called the CI Circle that a bunch of parents here

belong to as well. Perhaps someone can share the URL with you and you can ask

that group questions as well. (I don't know the rules for membership on that

list ... help!) I know there are several families here who have chosen

implants, as well as many who haven't. For us, it is simply not an option at

this

point.

We learned of Ian's loss when he was about 7½. It took another year to get a

correct diagnosis and to aid him. He has been mainstreamed in our local

school the entire time and we had a terrible time getting him appropriate

services. He now has a TOD (teacher of the deaf) who comes once a day for 1

class

period as well as an FM system and a laptop-like device called a Dana. Next yea

r he will have note taking support for the first time.

Ian is a one-of-a-kind in his school. His aids are bright blue with

red-white-blue molds and he has never been teased by other kids about his

hearing

loss. He is a Boy Scout (almost an Eagle) who loves to camp, hike, climb,

kayak,

and canoe -- anything you can think of that will take him outdoors. We treat

him like an average kid who just happens to wear bright blue aids and can

talk with his hands. (grin)

Welcome to the group!

Jill

[Guest guest]

In a message dated 7/6/2006 7:19:28 P.M. Eastern Daylight Time,

kacy206@... writes:

Things get pretty funky here, like when the younger kid discovered that

he could get his brother to back off by " tweeking " brother's wires! The

older one, of course, learned that with his coil off he could better

ignore his brother.

Kacy,

Oh man, this sounds like my house! My daughter will sometimes flip off Ian's

aids just to annoy him. And sometimes he will turn them off when she is

annoying him, so she ends up whining to ME that he has turned them off. To

which

I usually respond that I wish I had aids so I could turn them BOTH off!

Kids ... Jill

[Guest guest]

Kim-

I have 2 boys, three and five, one hearing, one profoundly deaf

(pre-lingually). Things here are chaos, but in a good way. I'm also on

the cicircle group, too. My 5 year old has a CI. The two of the boys

are a hoot, and some of what happens between them is typical sibling

stuff, while other things are dues to the deafness.

Maybe the trying times are there to keep me from reading too much, or

watching tv or something .

Things get pretty funky here, like when the younger kid discovered that

he could get his brother to back off by " tweeking " brother's wires! The

older one, of course, learned that with his coil off he could better

ignore his brother. There there was the day that he discovered that he

could unlock his program and change his volume/map/etc.-- what a fun

one! He also had figured out how to make it so the external sound

signal could be muffled, so it was a good 15 minutes before I figured

out what the rascal had done. You know that that will be a BIG trick

when he starts kindergarten this fall!! And later in school:

" Homework? What? My batteries must've died when you assigned it. "

Bwahahahaha!

If you have some specifics that are really getting you, let me know and

I can create some ways that will make your life easier-- that was one of

my pre-kid jobs.

cheers,

Kacy

I look forward to finding out information from all of you and how

you are handling raising a deaf/hoh child in a home with

very " normal " siblings. It seems it can be trying at times in our

home.

Kim,

Yep, just when you think you have the D/.HOH thing covered, the siblings

get

into the act as well. (grin). I have a 12-year-old hearing daughter, ,

and she can be the queen of melodrama, acting the part of the tortured soul

that the world has forgotten because everyone pays attention to her " stupid

deaf bother. " And this child is beautiful and smart and should not be

worried

about the world not noticing her. (I am, of course, decidedly biased.) But

adolescent angst is part of puberty and we have it by the ton in our house

lately.

I joke that I may not survive her progress though puberty without copious

amounts of alcohol and maybe some prescription drugs added in. (Which is

funny

only if you know that I rarely drink and think twice before taking

Ibuprofen. LOL)

I'm Jill, mom of two. My older child is Ian, 15 with a progressive

bilateral

conductive loss. He is going into his junior year at our local high school

and says that when/if the day comes, he wants a CI (or a BAHA) -- whatever

will give him back his hearing. Ian was born hearing and lost it

post-lingually

(after learning to speak). He wears his aids every waking moment and now

that

his loss is progressing close to the moderate/severe borderline, he is even

more aware of what he's missing. (FYI: we never had any of the adolescent

melodrama or nearly this level of huffing and stomping from him.)

So, if you are looking for implant opinions from a child's view, you can

consider his. But take it with a grain of salt (as the cliche goes)

because each

child is different. Ian wants to continue to hear because he was born

knowing sound. Even if you do decide to implant your son and he hates it

later on,

he can simply take off the outer portion of the CI and chose not to

listen/hear.

But there is so much more to consider with a CI and I don't know even a

fraction of it. There is group called the CI Circle that a bunch of

parents here

belong to as well. Perhaps someone can share the URL with you and you

can ask

that group questions as well. (I don't know the rules for membership on

that

list ... help!) I know there are several families here who have chosen

implants, as well as many who haven't. For us, it is simply not an

option at this

point.

We learned of Ian's loss when he was about 7½. It took another year to

get a

correct diagnosis and to aid him. He has been mainstreamed in our local

school the entire time and we had a terrible time getting him appropriate

services. He now has a TOD (teacher of the deaf) who comes once a day

for 1 class

period as well as an FM system and a laptop-like device called a Dana.

Next yea

r he will have note taking support for the first time.

Ian is a one-of-a-kind in his school. His aids are bright blue with

red-white-blue molds and he has never been teased by other kids about

his hearing

loss. He is a Boy Scout (almost an Eagle) who loves to camp, hike,

climb, kayak,

and canoe -- anything you can think of that will take him outdoors. We

treat

him like an average kid who just happens to wear bright blue aids and can

talk with his hands. (grin)

Welcome to the group!

Jill

[Guest guest]

In a message dated 6/30/2006 6:03:14 P.M. Central Standard Time,

daniellereader@... writes:

.. I am very open

to sharing Jaden's story so feel free to ask any

questions.

le

Hi le, welcome to the list. I'm , a deaf mom of three deaf and

hard of hearing kids from the Chicago area.

Putz

Illinois Families for Hands & Voices

_www.handsandvoices.org_ (http://www.handsandvoices.org/)

_www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/)

Email: support@...

[Guest guest]

Hi Ruth!

I think your MIL is one lucky grandma. Your daughter

can make all kinds of goodies for her when she visits,

and Grandma will appreciate it forever!

I'd let Jenn do as much baking ahead of time, as well

as when MIL is there, as she wants!

I wonder if your local library has any g-f cookbooks

that Jenn could use to find recipes. I've had really

good luck with Betty Hagman's cook books, except for

the bread. Bread is really hard to get right. But

I've made scones, Danish pastries, hot pockets, and

other baked goods from her books, and they all turn

out great! Have fun!

Barbara in SoCal

__________________________________________________

[Guest guest]

Thanks for the welcome Barbara

We will be doing lots of baking before the In laws arrive for

sure :)I'm sure Jenn will be doing the lion's share.

We've already picked up a GF cookbook for her Christmas gift.I just

noticed it's by Bette Hagman.The book is The Gluten-Free Gourmet

Cooks Comfort Foods.I've skimmed through it & see lots that I'm sure

both MIL & FIL could enjoy.

As for Margaret's bread I think we'll just do as we normally do &

pick some up for her.We did bake some one time but I think it is

easier just to buy it.

Ruth

>

> Hi Ruth!

>

> I think your MIL is one lucky grandma. Your daughter

> can make all kinds of goodies for her when she visits,

> and Grandma will appreciate it forever!

>

> I'd let Jenn do as much baking ahead of time, as well

> as when MIL is there, as she wants!

>

> I wonder if your local library has any g-f cookbooks

> that Jenn could use to find recipes. I've had really

> good luck with Betty Hagman's cook books, except for

> the bread. Bread is really hard to get right. But

> I've made scones, Danish pastries, hot pockets, and

> other baked goods from her books, and they all turn

> out great! Have fun!

>

> Barbara in SoCal

>

>

>

> __________________________________________________

>

[Guest guest]

I'm 32 also with Vulvar Vestibulitis! Great to have someone my own age going through this crap. I've been going through it for almost five years.

Tina.

New here

Hi, are there many people here with vestibulitis?

[Guest guest]

hi, I'm 29 with VVS. I've had it since I was 14 years old, so for 15 years now. It's been a long time.welcome!nicoleTo: VulvarDisorders From: boiler_bay@...Date: Thu, 2 Oct 2008 21:25:43 -0400Subject: Re: New here

I'm 32 also with Vulvar Vestibulitis! Great to have someone my own age going through this crap. I've been going through it for almost five years.

Tina.

New here

Hi, are there many people here with vestibulitis?

Want to do more with Windows Live? Learn “10 hidden secrets” from . Learn Now

[Guest guest]

I have had vvs for almost 3 years after an outbreak of shingles and HSV1. I am 59 years old and finding this website and finally finding a doc who did think I was crazy has helped. I do not take any type of internal meds because I did not like the way they made me feel. Except for some antihistamines and compunded cream I go throught various quieter times and more troublesome periods. I hate the bad times. It is frustrating .

laurieNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

I've heard that Calcium Citrate can really help.

Re: New here

I have had vvs for almost 3 years after an outbreak of shingles and HSV1. I am 59 years old and finding this website and finally finding a doc who did think I was crazy has helped. I do not take any type of internal meds because I did not like the way they made me feel. Except for some antihistamines and compunded cream I go throught various quieter times and more troublesome periods. I hate the bad times. It is frustrating .

laurie

New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

I'm new here, too, and a sufferer of vestibulitis. At my doc's

recommendation, I'm on Calcium Citrate and the " low oxalate diet. " I'd

be more than happy to talk vv woes/treatments anytime.

KB