Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Yup! Hi...I am 32 and have VVS..I was diagnosed April 07. Subject: New hereTo: VulvarDisorders Date: Wednesday, October 1, 2008, 7:35 PM Hi, are there many people here with vestibulitis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Hello , I'm 24 years old and was diagnosed w/Vulvar Vestibulitis in Sept. of 07. If you have any questions or concerns feel free to ask me. New here To: VulvarDisorders Date: Wednesday, October 1, 2008, 7:35 PM Hi, are there many people here with vestibulitis? Find phone numbers fast with the New AOL Yellow Pages! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Hi everyone, thanks so much for the replies! I have a long story but will cut it short. I'm asking those of you who are in my shoes to give me some advice of what has worked the best for you and what your Dr. has done. Most of all I want to know if what my Dr. did was " typical " . I thought I had Vaginismus, all of my signs and symptoms looked as thought that was the problem. I have had this problem for as long as I can remember. I am 24 years old and single so for me this has always been an issue but never as big of an issue as a married indavidual or someone in a relationship. my fear of seeking out what was wrong controlled me for over 10 years but along with the inability to have an exam, intercourse, etc. I also have savere pain associated with periods. Paralyzing pain to be exact! So I finally got enough strength to go to the Dr. and of course with no intent of having a exam, but I was able to! much to my surprise the Dr. was able to do it but with a little difficulty. He believes I have vestibulitis and he prescribed me Gabapentin, premarin cream and suggested that I damp dry when I use the restroom and apply olive oil to the area! And that I also purchase dilators and begin the process of dilating. So.... I am single and work a lot and just dont really have the motivation yet for dilating and I didnt feel comfortable taking Gabapentin due to the fact that its a seizure med and premarin is known to cause cancer. So I am curious what your Dr.'s have suggested for you to do, I hope theres a better answer. I do not want to be on a seizure med... But on the bright side he did prescribe my birth control and I am on month 3 of being pain free! I look forward to hearing from anyone willing to give their opinion. thanks, > > From: amandaplancarte84 > Subject: New here > To: VulvarDisorders > Date: Wednesday, October 1, 2008, 7:35 PM > > > > > Hi, are there many people here with vestibulitis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 Hey and welcome-my name is Crystal and I was diagnosed with Vaginismus and Vulva vestibulitis in May of this year and had surgery the end of June. This group answered a lot of my questions and has really helped me by giving me advice and just being there. If you have any questions or just want to talk about it, please feel free to get in touch with me. That is what we are all here for. Crystal > > > > From: amandaplancarte84 > > Subject: New here > > To: VulvarDisorders > > Date: Wednesday, October 1, 2008, 7:35 PM > > > > > > > > > > Hi, are there many people here with vestibulitis? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 A concern popped up for me when you mentioned birth control: My doc said that birth control can actually be counter-intuitive to the treatment of vulvar vestibulitis. (Hormonal contraceptives alter Estrogen levels, and consequently, often reduce vaginal secretions, which provide lubrication (less friction) and flush irritants.) I have endometriosis, and would under other circumstances be taking some form of hormonal birth control myself, but I'm trying to get the vv under control first. I don't know what kind of birth control your doc prescribed, and I'm not a medical doctor by any means; but I did want to give you a heads up. KB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 , Good afternoon, how are you today? I'm 24 years old as well and was diagnosed with Vulvar Vestibulitis (pain on contact-dyspaurenia) last year and Pelvic Floor Dysfunction My current treatment plan is Elavil 10m at night, estradiol compunded in emu oil (pea size applied to the 6 o'clock area every morning after shower) and Claritin everyday. I too was contemplating back and forth taking a seizure med because I was afraid of the unknown feeling/side effects. Finally, about six weeks ago, I decided I'd give it a shot and so far its going good, no side effects to report. In a few days, I plan on increasing the dosage to 25mg at night. Basically, its all boils down to trial and error unfortunately, what works for one person might not work for the next person. ** New here > To: VulvarDisorders > Date: Wednesday, October 1, 2008, 7:35 PM > > > > > Hi, are there many people here with vestibulitis? > McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now! Quote Link to comment Share on other sites More sharing options...
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