Re: Anyone with Crohns and PSC

October 15, 2007

Pearl Ann is on azathioprine, but is being watched closely by her

doctor because of her PSC. I am not sold on this yet and have only

just begun to realize the implications. I would be interested to find

out if you find out anything else, too. Pearl's Crohn's is being

treated by Remicade, steroids and azathioprine right now.

October 15, 2007

My son age 3 has Chrons and PSC. He is curently on azothiaprine...I

am not sure about it either...the doctors say it is a life time

disease and you have to outway the good with the bad...Prednisone

gives an immediate relief for my son from the pain. You should not be

on it long though and it lower your immune system so you are at risk

for other infections. If you can do a liquid diet for a while to give

relief that may help also. My son was on a feeding tube for 8 weeks

and it was great nutrition and it also helped relieve his pain right

away. His stomach was very big and hard, on the liquid diet it almost

immediatley was soft and back to normal. Let me know if this helps

you...and feel free to ask anymore questions.

e

Mother of Mikey age 3 with PSC and Chrons

>

> I am newly diagnosed with crohns about 8 wks now and my treatment has

> consisted of pentasa, entocort and rifaximin. I have suspected PSC but

> am having an MRCP Monday. I have normal LFTs. My Crohn's is mild to

> moderate in my terminal ileum. I have had no relief of my symptoms

> which are diarrhea 7-9 times a day, stomach pain, rumbling and

> unsettling and alot of noise and gas intestinal though. My doc doesn't

> want to escalate treatment without first figuring out the PSC but this

> could go on and on. I need relief. I have had diarrhea since July

> 2006 and my pain is still very bad. Was hoping you could tell me what

> worked for you and are there some crohn's meds they avoid due to the

> PSC. My GI mentioned 6mp or azithoprine but I noticed that gets

> metabolized in the liver so not sure about this one. Just need relief.

>

> Thanks

>

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