Re: Re: How is my son going to live when my wife and I are gone?

[Guest guest]

I have stayed up many nights pondering this myself.

From a financial perspective, you may want to look into setting up a special needs trust. There's an excellent book that you can get off of amazon or perhaps check out from the library, Below is the link.

http://www.amazon.com/Special-Needs-Trusts-Protect-Financial/dp/1413313841/ref=sr_1_1?ie=UTF8 & qid=1314032744 & sr=8-1

It's written in plain english and is very easy to understand, it goes over all the financial related options out there.

Now, from a group home or residential type of arrangement, I don't know. It seems like there's not much out there, in this area it seems if you want something for your children, you will have to work with other families and come up with a home yourself.

AM

Subject: Re: How is my son going to live when my wife and I are gone?To: sList Date: Monday, August 22, 2011, 12:06 PM

yes, same question here. I have mentioned this to my husband, and it is a very sensitive subject. Are there group homes for the autistic community?

[Guest guest]

We as parents , like other parents are doing NOW, are coming together to build autism farms where they r living and working productively! Check out bittersweetfarms. Org or comSent via BlackBerry by AT&TSender: sList Date: Mon, 22 Aug 2011 16:06:07 -0000To: <sList >ReplyTo: sList Subject: Re: How is my son going to live when my wife and I are gone? yes, same question here. I have mentioned this to my husband, and it is a very sensitive subject. Are there group homes for the autistic community?

[Guest guest]

This is the most haunting question for the parent of an autistic child. I am a widowed mother of a 30 yr hold autistic son. I have raised my son since he was 11 yrs. old by myself. My son is an only child. I have no relatives to depend on. I can’t tell you how many sleepless nights and how many tears I’ve shed over this very question. Most people at least have a partner and/or the child has at least one sibling....I don’t. I do know, don’t wait for the State of Florida to help you in any way...you’re pretty well on your own.

From: amy

Sent: Monday, August 22, 2011 12:06 PM

To: sList

Subject: Re: How is my son going to live when my wife and I are gone?

yes, same question here. I have mentioned this to my husband, and it is a very sensitive subject. Are there group homes for the autistic community?

[Guest guest]

I guess that would be fine for some. “ Working the farm” would not be something my son would be at all interested in.

From: evnrpr@...

Sent: Monday, August 22, 2011 1:23 PM

To: sList

Subject: Re: Re: How is my son going to live when my wife and I are gone?

We as parents , like other parents are doing NOW, are coming together to build autism farms where they r living and working productively! Check out bittersweetfarms. Org or com Sent via BlackBerry by AT & T

Sender: sList

Date: Mon, 22 Aug 2011 16:06:07 -0000

To: <sList >

ReplyTo: sList

Subject: Re: How is my son going to live when my wife and I are gone?

yes, same question here. I have mentioned this to my husband, and it is a very sensitive subject. Are there group homes for the autistic community?

[Guest guest]

Do you have the contact info for any of folks listed below? I'm interested in learning more about their projects.

Thanks.

Subject: Re: How is my son going to live when my wife and I are gone?To: sList Date: Monday, August 22, 2011, 8:21 PM

This is such a difficult situation to face. We all do our best to set up trusts and such for our kids, and hope that our child will eventually get APD funding, but still there are other worries. My son isn't even on the APD waiting list as we were told he would be about 80 years old by the time he is funded. There are places like Lambs Farm in Illinois and a few other similar but smaller places in Ohio, Colorado, and Illinois for our kids, and Dr. Clayman is working on a project for south florida. Kathy Buroese is working on a project called Independence Heights in Palm Beach, and Betsy Farmer in Palm Bay has already started fundraising and work on a project called Promise in Brevard. It is very upsetting to have all the government run agencies tell me that I should depend on natural supports. My child has one brother who has a family of his own and their baby has learning delays. He has enough to do without taking care of his brother. A friend tell

everyone, "I didn't have my other child to be a natural support." We as parent/advocates for our kids need to come up with ideas and put them in place. It is a shame there isn't somewhere similar to Knoxx village. There the people sign over all of their assets for care in the resident's old age until their demise. It would be good if we could turn over all of our assets including life insurance payments, etc. upon our death to a village or community in exchange for their taking care of our child for the remainder of the child's life. Face it no matter how well we plan, there is always the chance that the money will run out for the care of our kids, or the people we thought would take care of them or administer their trust, etc. will decide they don't want to do it. We just have to do the best we can and plan for the best situation possible. These are just my thoughts and I hope I haven't upset anyone. Glenda>> yes, same question here. I have mentioned this to my husband, and it is a very sensitive subject. Are there group homes for the autistic community?>