Re: How is my son going to live when my wife and I are gone?

[Guest guest]

I am with you.  This is my biggest fear in the world and I don't know how to begin to deal with solving it.  I am glad you brought up the question and will be interested in all responses.  You are not alone.

Caroline

 

This may be the question that goes through my mind most often every day. What happens when your severely autistic child, that can't take care of himself loses his parents? I live in Broward, Florida, and I would like to get a better idea of how this works, to be better prepared for that dreaded day when we have to separate from our son. Can somebody give me a simple guide of how this process works, and what I need to do to make it easier and better for my son? Thank you.

[Guest guest]

yes, same question here. I have mentioned this to my husband, and it is a very

sensitive subject. Are there group homes for the autistic community?

[Guest guest]

So I don't know how old is your child but I highly recommend doing a living will because for gods sake you do die or something happens to you. Most parents create a trust fund because if your child is awarded a certain amount of money they lose their benefits from the government and I mean all. Then you have to get someone to have designate someone as a power of attorney if your child is severe or incapable to care for him/herself. As for group homes or a place to reside for your child… Ask the individuals on here who have adults already. I know most have shipped their son/daughter out of state because Florida doesn't have enough places. I have some kinda of relief that my son has 2 younger siblings to watch over him if something does happen. Though he has a trust and I have a living will. He is on the mini wavier and its a joke. If I really expect the government to help my son on his life and quality of life. HA ! Thats not going to happen as if I was around and able to care for him. You need a team of people who really care for your child.Good Luck aka enzos mom

This may be the question that goes through my mind most often every day. What happens when your severely autistic child, that can't take care of himself loses his parents? I live in Broward, Florida, and I would like to get a better idea of how this works, to be better prepared for that dreaded day when we have to separate from our son. Can somebody give me a simple guide of how this process works, and what I need to do to make it easier and better for my son? Thank you.

[Guest guest]

This keeps us all up at night. Because of this question I have ulcers, anxiety issues, gray hair, and insomnia. What I have done is try to become as healthy as possible so I can live forever. I take lots of antioxidants, vitamin/minerals, drink lots of water and watch my weight. That is my attempt at immortality.

Re: How is my son going to live when my wife and I are gone?

I am with you. This is my biggest fear in the world and I don't know how to begin to deal with solving it. I am glad you brought up the question and will be interested in all responses. You are not alone.

Caroline

This may be the question that goes through my mind most often every day. What happens when your severely autistic child, that can't take care of himself loses his parents? I live in Broward, Florida, and I would like to get a better idea of how this works, to be better prepared for that dreaded day when we have to separate from our son. Can somebody give me a simple guide of how this process works, and what I need to do to make it easier and better for my son? Thank you.

[Guest guest]

This is such a difficult situation to face. We all do our best to set up trusts

and such for our kids, and hope that our child will eventually get APD funding,

but still there are other worries. My son isn't even on the APD waiting list as

we were told he would be about 80 years old by the time he is funded. There are

places like Lambs Farm in Illinois and a few other similar but smaller places in

Ohio, Colorado, and Illinois for our kids, and Dr. Clayman is working on a

project for south florida. Kathy Buroese is working on a project called

Independence Heights in Palm Beach, and Betsy Farmer in Palm Bay has already

started fundraising and work on a project called Promise in Brevard. It is very

upsetting to have all the government run agencies tell me that I should depend

on natural supports. My child has one brother who has a family of his own and

their baby has learning delays. He has enough to do without taking care of his

brother. A friend tell everyone, " I didn't have my other child to be a natural

support. " We as parent/advocates for our kids need to come up with ideas and

put them in place. It is a shame there isn't somewhere similar to Knoxx

village. There the people sign over all of their assets for care in the

resident's old age until their demise. It would be good if we could turn over

all of our assets including life insurance payments, etc. upon our death to a

village or community in exchange for their taking care of our child for the

remainder of the child's life. Face it no matter how well we plan, there is

always the chance that the money will run out for the care of our kids, or the

people we thought would take care of them or administer their trust, etc. will

decide they don't want to do it. We just have to do the best we can and plan for

the best situation possible. These are just my thoughts and I hope I haven't

upset anyone.

Glenda

>

> yes, same question here. I have mentioned this to my husband, and it is a very

sensitive subject. Are there group homes for the autistic community?

>

[Guest guest]

This is the info you requested:

For the Broward County project, contact

Dr, Clayman:

For the Palm Beach project, this is the web page info and Kathy's phone number

and e-mail address

http://www.independenceheights.net/

info@... |

For the project in Brevard county contact:

Betsy Farmer –

Also on Facebook and Twitter

This is the web site and postal address

http://promiseinbrevard.com

Promise in Brevard

PO Box 100024

Palm Bay FL 32910-0024

There is an operating facility in Lakeland called

Noah's Ark:

http://noahsarkflorida.org/

Noah's Ark of Central Florida

PO Box 92221, Lakeland FL 33804-2221

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> > yes, same question here. I have mentioned this to my husband, and it is a

very sensitive subject. Are there group homes for the autistic community?

> >

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