Uveitis- sorta freaking a bit.... has anyone had this?

[Guest guest]

We are headed to an emergency appointment with the opthalmalogist

because of Noah's eyes. Has anyone had trouble with their eyes. Noah

does have what seem to be more autoimmune diseases than most.

Psoraitic arthritis, UC, PSC, and Lord only knows what else we haven't

found yet. When you look for eye issues... there is a whole category

of them that are autoimmune. One of the LF moms suggested uveitis

because her daughter has juvenille rhematoid arthritis... and has to

have her eyes checked every 3-6 months to make sure that uveitis has

not started to occur. What the freak?

How many systems is this stuff going to try and conquer?

Who knows if that is what is going on... but light sensitivity, pain,

both eyes... no red sclera.

I welcome any insights if you have had eye issues.

Blessings,

mom to Zoe, Noah and Aidan

www.caringbridge.org/visit/noahwmartens

[Guest guest]

To Noah's mum (sorry I deleted the email before I wrote your name),

I have been having trouble with my eyes and put it down to " middle age " .

When I asked the drs at the transplant clinic, they immediately checked my

Vit A levels, which were borderline, and we will re-check them in a

fortnight. She said that I should never put anything down to middle age any

more, but to go have them checked. I am now the proud owner of my first pair

of spectacles...so whilst we haven't really found the cause of the problem,

I can at least see again! She had one patient who they were giving massive

Vit A injections to, to no avail. The patient went totally blind, but within

three days of transplant...could see again!

I'm hoping not to get that bad before transplant and that it's only middle

age!!

Good luck,

Penny T (in Australia)

[Guest guest]

Penny,

That is interesting. I was reading about the vitamin A thing today

somewhere. Glad it was a fix that was that simple. (in the grand

scheme of things)

Noah was diagnosed with the uveitis today. I am supposed to run, not

walk back to the eye doctor should his eyes become red EVER.

Apparently it could be something minor like conjunctivitis, or a

flare. For now the fix for the week is moisture gel drops. He thinks

we caught the tail end of it. Once you have it, you always do so he

will need to be checked now more often than annually... every 3 months

if the red thing pops up... 6 if it is all quiet.

Might still be worth a vitamin A draw.

Blessings,

[Guest guest]

,

When Tyler was first diagnosed with PSC his Peds GI told us to keep an eye on his eyes. He said to watch for any vision changes and to get check ups more often than the regular yearly.

I'll continue praying for both you and Noah. I know this is really tough to walk the journey of PSC with all the speed bumps along the path.

Cindy

Mom to Tyler, 15, PSC Oct. 2006See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Uveitis is one of the common co-diseases with IBD. According to

http://www.ccfa.org/info/about/complications/eye, 10% of those with

IBD will experience eye disorders:

Uveitis

One of the most common eye complications in IBD is uveitis, defined

as painful inflammation of the uvea—the middle layer of the eye wall.

Individuals with uveitis may notice pain, blurred vision, sensitivity

to light, and redness of the eye. These symptoms may come on

gradually or quite suddenly. To make a diagnosis of uveitis, an

ophthalmologist (a doctor who specializes in diseases of the eye)

uses a " slit lamp. " This is a special microscope that allows the

doctor to look at the inside of the eye. Uveitis generally improves

when the IBD is brought under control, but the ophthalmologist may

prescribe special eye drops containing steroids to help reduce

inflammation. If left untreated, uveitis may progress to glaucoma—a

disease of the eye marked by increased pressure within the eyeball—

and possible vision loss.

I highly recommend the CCFA site, especially

http://www.ccfa.org/info/about/complications/ (and yes, PSC is listed

as a possible extraintestinal complication). Note that

http://www.psc-literature.org (thanks again, Dave!) is listed as a

resource in the PSC section.

Arne

" mariapamom " wrote:

We are headed to an emergency appointment with the opthalmalogist

because of Noah's eyes. Has anyone had trouble with their eyes.

Noah does have what seem to be more autoimmune diseases than most.

Psoraitic arthritis, UC, PSC, and Lord only knows what else we

haven't found yet...