To

[Guest guest]

HI ,

Was it the cetaphil moisturiser or cream that caused you to flare? I

use the cream. It might be a problem though. What products did you

use to use in the Arbonne line? I got sent the type for dry skin and

some other samples of other things. When I was looking at the

ingredients it had some bad ingredients in it. A number 4 and 5 that

I can see loking at the SAge Webpage of ingredients to avoid. The

list is under zerozits.com. It list ingredients that will cause

breakouts. Its scared me so I don't know if I should try it or not.

Did you have any problems with it? I had a bad flare last night

after I took a shower. I think it was the heat but plus because my

skin is so extreamly dry. This morning my face looked fine. I think

I am going to try the soothing booster and moisturiser first of the

dermalogica brand. Let me know if you try it again and how it does.

Also please let me know about the Arbonne products. I am going to

call them later and see what they say. I also think I'm going to

stop using the cetaphil and see if thats the problem. This morning I

used Cetaphil cream and mixed it up with some aloe vera and applied

it. Now my face doesn't look red but it feels hot.

Thanks,

Sheila

> Hi Sheila:

>

> Interestly, I used to flare just from using Cetaphil moisturizer.

I found it

> totally intolerable. It was more subdued than a regular flare but

then it

> progessively made me red. Once I pinned it down as the culprit I

quit and so

> did my redness. Now just to prove it to myself, I try it every now

and again

> and it definitely is a trigger for me. If you flare after perhaps

you might

> consider this. Arbonne... which I used to use all the time prior

to a harsh

> and sensitizing skin peel, was an awesome product line. I laid off

all

> " natural " products because post peel I was unable to tolerate plant

extracts

> etc. like before. However, I now tolerate (two years later)

Clinique Daily

> Moisturizer with no side effects and it has mineral oil and lanolin

two big

> irritants for most. I have had one dermotologist and two plastic

surgeons

> point be back in the direction of Arbonne especially the

Rejuvenation creme

> its quite gentle however my skin doesnt like anything new. To

combat that he

> says to start off slowly by putting the cream just behind your ears

for a

> couple days then just in front for a few days and slowly move

toward the

> center of the face. He said this should take me about a month and

a half to

> reach the center and my skin will react anyway but it should get

used to it

> by then. Arbonne has an 800 # with very helpful people they spoke

to me

> about the products and said to lay off all products stick with one

or two

> till my face calms down. Finally, STARTING to. Although very

slowly and I

> have to be careful.

>

> Just a final note...I just tried the new dermalogica line for

sensitive skin.

> The wash alone although didnt make me " real " red I got quite pink

and

> tingling (itchy) for a few hours. That was a couple weeks ago I

have yet to

> try the moisturizer after the reaction I like to give my skin some

time off.

> Dermalogica line is based on a lot of natural herbs and plant

extracts too.

> I think a Begoin (sp?) talks about them in her articles. For

some these

> extracts can be irritating. I am going to ask the doctor about

them tomorrow

> as I go for my first Vbeam consultation. Boy is he in for a barage

of

> questions tomorrow. Hope he has a lot of time!

>

> Take Care, Renée

[Guest guest]

I do know that the enzymes can cause pretty severe sores in the mouth and

that is why the doctors had us mix her enzymes in applesauce so it would

not touch her raw tongue. I breastfed too, and still did the enzymes first.

FG, mom of Shantell 19yr wcf

> [Original Message]

>

> To: cfparents >

> Date: 09/27/2001 8:33:24 AM

> Subject: To

>

> ,

>

> When my was diagnosed and prescribed the enzymes, I would take

> the lid off the capsule and have it ready - as he was opening his

> mouth to feed, I would pour the enzymes in his mouth and start

> feeding (I breastfed, but you could do the same with the bottle).

> You just need to make sure he's not laying back so the pills actually

> hit his tongue & don't get poured down his throat. He never put up a

> fight. Just an idea for you. Good luck!

>

> Angi

> Mom of (6), (5 wcf) and (3 wcf)

>

>

>

>

[Guest guest]

Ditto ,

This ENT doesn't sound like one who sees CF patients regularly. And, if he

does, then he must be one of those " Oh, he has CF and this is natural for

CF patients (by the book) " type jerks. You have to be agressive on the

sinuses. Shantell had two sinus surgeries. Both were unsuccessful, within

one week her sinuses were filled (packed) up. The ONLY thing that has

worked for her is gentamycin/saline flushes in her nose with a disposable

syringe (no needle). She has pseudomonas in her sinuses, and it is

resistant to different bacteria than the pseudo in her lungs. Yes, pseudo

is common in the sinuses. Hope this isn't too late, I'm way behind in my

emails. Shantell is going in for another CT scan next week on her sinuses.

Her lung functions are down. The stuff in the nose drips down to the lungs

(always keep that in mind).

FG, mom of Shantell 19 1/2 years wcf

> [Original Message]

>

> To: cfparents >

> Date: 10/28/2001 10:15:22 AM

> Subject: Re: CT scan results

>

> In a message dated 10/26/2001 7:43:38 AM Eastern Standard Time,

> kskct@... writes:

>

> << The ENT doesn't want to do anything by way of surgery, because Santosh

is

> active and is not really complaining other than being stuffy. Rhinocort

> Aqua has controlled the post nasal drip (to the ENT's surprise) and

nothing

> is really draining. He doesn't think antibiotics would break through all

> that mucus - and he's not convinced 100% it's infection since Santosh has

> never drained other than clear -he thinks it could be an inflamed

> tissue/mucus/and polyp tissue combination. He said if Santosh's

> symptoms -pulmonary or sinus, become exacerbated then we'll be more

> aggressive. Does anyone have any thoughts on this? >>

> My comments are:

> 1. Did ENT do a culture of sinus's?

> 2. If Santosh is that " full " wouldn't that be a breeding ground for

> bacteria?

> I would get a second opinion. I would be concerned about infection if

left

> untreated.....

>

> I went for allergy testing cause we are thinking of getting a dog.

>

>

>

> Rosemary in New York with three children with CF - they are 11, 8.11,

5.......

> I coined the phrase " BREATHE DAMMIT "

>

>

[Guest guest]

---,

When I finally make the appointment I will ask again. He will

probably say the same thing, don't worry about.

Cheryl

In pancreatitis@y..., " maryg7878 " wrote:

> Hi Cheryl -

>

> I don't blame you for being worried - I would be worried too!! Did

> they do a biopsy of it? Or just feel it through the skin and said

> don't worry??

>

> My sister-in-law found a lump on her breast about a year ago. She

> went in, they did a biopsy, and told her that everything was fine.

I

> don't know what made her go back again just recently, but she had

them

> test it again.. this time they went deeper with the needle during

the

> biopsy and they did indeed discover it was cancer. They removed a

> golfball sized mass a few weeks ago, thank God none of the lymph

nodes

> had been hit. If she hadn't forced the issue with them tho, and

taken

> their word that nothing was wrong, who knows what would have

happened.

>

> If they have not done a biopsy, please have them do it, for your

peace

> of mind. As we all know, doctors are not always correct. I do

hope

> that in this case they are tho.

>

>

>

>

>

> > > Cheryl and all the gals:

> > >

> > > My mother, an 81 year-old, who underwent a hysterectomy and

> > bilateral

> > > oopherectomy in 1966, also didn't go for years regardless of

the

> > hounding

> > > from me.

> > >

> > > She was under the mistaken impression that since she had

> > > " nothing there, " there was nothing to test. WRONG!

> > >

> > > Ovarian cancer generally strikes post menopausal women.

> > > Even when ovaries have been removed, there's always a chance

that

> a

> > bit of

> > > tissue remained. That's what can turn cancerous.

> > >

> > > I finally had to call her internist and ask him to step in.

> > >

> > > No matter how much of our system is working or even intact, we

are

> > always at

> > > risk. And hormone or estrogen replacement increases that risk.

> > >

> > > I am a uterine cancer survivor. It was caught very early and

> > removed with no

> > > need for chemo or radiation.

> > >

> > > As I often joke, I lost my uterus in 1983 and we haven't found

it

> > since!!!!!

> > >

> > >

> > >

> > > -E

[Guest guest]

Hey ,

Don't worry about your bragging turning against you, I think many

people can relate to your excitement of two weeks without pain

after months or more of having to endure it. I'm just sorry that

you're having troubles again and will have to be going in for an

ERCP, no one looks forward to that and we can all understand

your disappointment at having to continue dealing with

pancreatitis.

Just keep us posted as to how you are doing, and know that

there are old and several new members around to give you a

boost when you're feeling down.

With hope and prayers,

Heidi in SC

PS - Were you looking for Lily perhaps, whose email address is

LARRYKOLOWSKI@........She's still here...somewhere...... she'll

be checking in by and by.

> Hi all, I was looking for Larry and I lost his e-mail address. it's

me

> from GR. I have been sick again!! Lots of pain!! I have to

go see

> Dr. Lehman again. He wants to give it 5 more weeks to make

> write me soon some one I need some encouragement!

> When I go back to Dr,. Lehman he will do an ERCP! Yuuk!!!!!

Please pray

> as I pray for all who suffer this terrible CP!!! God Bless you all!

>

__________________________________________________

______________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

[Guest guest]

It's me.. you know Lily/Larry ! Well it is really just me, Lily, but I use

my husband's email so I guess I may confuse people sometimes !

I have been checking in and out of the posts. Been trying to work up to 6

hours a day and it can be rather challenging. Sometimes I am so exhaused

when I come home that I just wanna crash. For some reason I keep pushing

myself ( it must be that stubborn Mediteranian blood ). And I really admire

you, ,as you have 5 kids and that alone is exhausting.

don't worry about the bragging after your surgery. I was just jealous

anyway ! There are lots of use who would love to have 2 weeks of no pain.

But I am sorry that your pain is back . Is it the same type of pain ? Where

is it located ? Have you lost weight ? Do you have it everyday? When is

your ERCP scheduled ?

Now if you need a babysitter, please contact Terry on this board as his

specialty is entertainment,,, right Terry !!!!!!! ( julie, that was a joke

between him and I and I couldn't pass up the opportunity to hassle him ! ).

if you are in the mood and want to answer my questions feel free to, if not

I undersatnd and I will be thinking of you and wishing you the best. Hang in

there .

Lily

Re: To

> Hey ,

>

> Don't worry about your bragging turning against you, I think many

> people can relate to your excitement of two weeks without pain

> after months or more of having to endure it. I'm just sorry that

> you're having troubles again and will have to be going in for an

> ERCP, no one looks forward to that and we can all understand

> your disappointment at having to continue dealing with

> pancreatitis.

>

> Just keep us posted as to how you are doing, and know that

> there are old and several new members around to give you a

> boost when you're feeling down.

>

> With hope and prayers,

> Heidi in SC

> PS - Were you looking for Lily perhaps, whose email address is

> LARRYKOLOWSKI@........She's still here...somewhere...... she'll

> be checking in by and by.

>

>

>

> > Hi all, I was looking for Larry and I lost his e-mail address. it's

> me

> > from GR. I have been sick again!! Lots of pain!! I have to

> go see

> > Dr. Lehman again. He wants to give it 5 more weeks to make

> > write me soon some one I need some encouragement!

> > When I go back to Dr,. Lehman he will do an ERCP! Yuuk!!!!!

> Please pray

> > as I pray for all who suffer this terrible CP!!! God Bless you all!

>

> >

> __________________________________________________

> ______________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

Hey Lily,

Sorry for the misspelling of your last name there, I was trying to

think too fast....and anything with " ski " on it sets me to

daydreaming about my earlier days in the mountains and, boy,

that's always trouble!

Good to hear from you! You're pushing that broom pretty

hard---working 6 hours a day! Take care..... that you don't

overdue and get too tired and ruin your vacation time later this

year. Other than asking too many questions and being

exhausted, how have you been doing?

I hope all is well.

With hope and prayers,

Heidi in SC

> It's me.. you know Lily/Larry ! Well it is really just me, Lily, but I

use

[Guest guest]

Bull:

Aint it a hoot to have such differing opinions? NOT!!

Now what do you do?

-E

[Guest guest]

,

It was good to hear from you. Iam sorry that you are not feeling well. Today

I had the best day that I have had since my surgery in June. It made me so

happy. But I know it is short lived but I will take these good days in a

heartbeat.

I am glad that you are going to see Dr. Lehman again. Your symptoms sound so

much like mine after my surgery this summer. Now I have lost a total of 47

pounds. Dr. Lehamn told me that he thinks I have SOD (Sphincter of oddi

dysfunction )and that the only way to know 100% was to do the ERCP. Well

being the chicken that I am, or should I say the paranoid nurse that I am ,

I declined and took option B which is to try meds first. Because I have been

in the medical field, I have seen lots of things go wrong and lots of

complications and my mind at that time of my visit with him was exhaused

from the pain and weight loss. So I chose to try the meds as he told me the

chance of pancreatitis was as high as 15 % and that being a Type 3 SOD (

they have Type 1, 2 and 3 ) that type 3 had the worst prognosis, ( chance of

successful outcome ). And of course there was no medical rationale for

this, just research that had been done . Well, I don't mean to ramble on

with my story but the reason I have told you all of this is to let you know

that yes, I do expierence the awful spasms and " pain in the sky " as Kaye

labeled it. But since I started taking Clidinium and Digestive enzymes (

the enzymes are from the health food store ), I have noticed a decrease in

my pain and in my spasms. I slowly have gone to work and am up to 6 hours a

day but I have no guarentee that I will make it to 8 hours and I have no

guarentee that I will not end up with the ERCP. But the Levsin SL( Under the

tongue ) does help with the spasms that are now a few a week vs a few a DAY.

I don't know how bad your pain is, nor how nauseated you are , nor how much

you can tolerate. Just wanted you aware that there are some medicines to try

if Dr. Lehamn offers you that choice. He knew I was not crazy about the

ERCP and gave me the option of trying different meds and said if it did not

work out to come back for the ERCP. I have no idea what is down the road for

me but think about it before you make a decision about the ERCP. You are the

only one that knows how much pain you can take. And he is very easy to talk

with, I felt so lucky to have seen him. And I get relief in knowing that he

is there if I need him.

Sorry for the long post. I just don;t want you to think that you don't have

a choice. Ask him what options you have and then decide. In the meantime you

can buy the digestive enzymes at the health food store, they won't hurt you

at all to take them. The brand I take iscalled Essential Enzymes by Source

Naturals. I have only lost 4 pounds since I started taking them on Oct 3 rd.

It may decrease some of your pain in the meantime and limit any more weight

loss. Just think about it. I just felt like at the end of your post you were

apprehensive about having the ERCP. When is your appointment ?

Take care,

Lily

Re: Re: To

> Lily, Hi it's me . How are you ? Yes I have had pain everyday now.

> yesterday I was in bed all day! I slept from midnight to 2:30 in the

> afternoon and then drifted in and out the rest of the day! I could only

> eat saltines and only those because I needed to take my meds. I have to

> wait to see Dr. Lehman for 4 more weeks. He wanted me to give it 3

> months from the date of my surgery. The pain is really the same as before

> the surgery. It is in the middle, alittle to the left and goes through to

> my back. Yesterday I was throwing up and the really nice diarea!!! I

> think you know the kind!!!YUK!!!! since Sept. I have lost over 27 pounds!

> not that I mind the weight loss, I would rather lose it some other way. I

> get so mad when ignorant people make comments about wishing they could

> get sick so they could lose weight! I'd like to slap them silly!!! do ya

> know what I mean!!! Oh well. thanks so much for writing me back. I will

> keep you posted when I will have my next ERCP!! God Bless,

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

Bull,

Yes, IU is Indiana University. And No, I have never seen Dr.

Sherman, but Dr. Lehman. I'm so happy to hear that they the body

isn't seperated! Thats some pretty great news, my friend! If it were

me, I'd go along with what they said at IU. And like I've said

before, I feel that leaving OSU & going to IU in 95 saved my life.

Dr. Lehman saved my life by seeing me just 2 days after the pain

doctor called him. I had an EUS block done in March/2001 & I thought

I had relief for 3 weeks. And then they sent me to see Dr. Tom

about having the nerve cut perm. He only gave me a 30-50%

chance it would help. Because he felt my relief was not from the

block, but from starting on " high " doses of morphine at the same

time. He said he would do the surgery, sent me home to make the

decision & I polite thanked the man & declined. Sooo...Now what is

the next step for you? Do you have to go back to IU? And what did

YOU think of Dr. Sherman? Did he do a block while he was in there?

Does he have any kind of plan for you now? Please, let me know whats

up with you. I feel like we have some kind of a " bond " since we live

so close to each other & have gone to the same places of help. Good

Luck my friend, and please, don't be a stranger! If you don't want

to post on the board, send me an e-mail, ok? Let me know how your

doing!

Lots of Hugs,

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

,

When you refer to IU do you mean Indian University in Indianapolis

and if so were you treated by Dr. Sherman? I had an appointment with

him yesterday and had a Endoscopic Ultrasound after. I am interested

in your or anyones experience with him. The results of my ultrasound

showed that 60% of my pancreas is necrotic but they don't feel that

the body has separated from the head which is in direct opposition to

DR Ellison at OSU 2 weeks ago.

> Best wishes,

>

> Bull

[Guest guest]

--- ,

Yes I am from Columus. Went to Watterson high school. But we lived

in Upper Arlington for many years. That is how I know Thmoas.

The first 's was on E. Broad across from COSI and WCOL radio. I

have not seen or spoken with for years. My husband is from

Hilliard. Cow town. My sister lives in Worthington. The last time we

were there we showed the kids where Dave ' house is in Dublin.

I used to volunteer at OSU hospital, and was a pt in Riverside many

times.

Boy this brings back a lot of memories. Thanks

Cheryl

In pancreatitis@y..., " liamhoha20 " wrote:

> Cheryl,

>

> Sorry, but I just can't think tonight, but are you from Columbus?

> They are having a public showing for Dave at the 's

> headquarters in Columbus on Wed. & Thurs. I was so sad to hear

this

> today. He was a very good guy, and the things he did for kids!

Not

> many med would get involved, thats for sure!

>

> Lots of Hugs,

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> ---E,

> Speaking of 's Dave ( who started Wend's) passed away

> this morning. I went to school with the of 's. Her dad

was

> so sweet. We used to swimm at each other house. I was real sorry to

> hear he had passed away.

>

> Cheryl

[Guest guest]

Bull,

I am glad that you are back form Indy. I am even happier that your pancreas

is not split. Did Dr. Sherman offer any recommendations ? and I are

both from Springfield and she will probably answer you back. But yes, she

has made at least 2 trips that i can remember to Indy.

What pain doc are you going to see ?

Lily

To

> ,

> When you refer to IU do you mean Indian University in Indianapolis

> and if so were you treated by Dr. Sherman? I had an appointment with

> him yesterday and had a Endoscopic Ultrasound after. I am interested

> in your or anyones experience with him. The results of my ultrasound

> showed that 60% of my pancreas is necrotic but they don't feel that

> the body has separated from the head which is in direct opposition

> to DR Ellison at OSU 2 weeks ago.

>

> Best wishes,

>

> Bull

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

Lily, Hi it's me . How are you ? Yes I have had pain everyday now.

yesterday I was in bed all day! I slept from midnight to 2:30 in the

afternoon and then drifted in and out the rest of the day! I could only

eat saltines and only those because I needed to take my meds. I have to

wait to see Dr. Lehman for 4 more weeks. He wanted me to give it 3

months from the date of my surgery. The pain is really the same as before

the surgery. It is in the middle, alittle to the left and goes through to

my back. Yesterday I was throwing up and the really nice diarea!!! I

think you know the kind!!!YUK!!!! since Sept. I have lost over 27 pounds!

not that I mind the weight loss, I would rather lose it some other way. I

get so mad when ignorant people make comments about wishing they could

get sick so they could lose weight! I'd like to slap them silly!!! do ya

know what I mean!!! Oh well. thanks so much for writing me back. I will

keep you posted when I will have my next ERCP!! God Bless,

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

[Guest guest]

Lily:

Ultram is for pain, not nausea.

For the later, I'm a Zofran fan.

-E

[Guest guest]

,

Buy some ginger pills, ginger tea or ginger root to suck on. It helps with

the nausea. Also buy travel bracelets for $6.00 to help with the nausea. You

can buy then at any drug store. People use them on cruise ships. Both of

those things helped me control allot of my nausea without having to take the

Phenergan. Ultram ,I have no personal expierence with but I think Ellen

takes it and it helps her. Most GI docs will wash there hands of you once

they find out you have been to one of the best men in the country, so that

is very common and don't take it personally. It is better to deal with Dr.

Lehman anyway. If Joyce ( his nurse ) does not call you back ( she is a

sweetie, smart cookie, that woman ), then call them again.

Attacks do happen more with increases stress without a doubt in my opinion.

Learn some deep breathing exercizes if you can. Breathe if possible using

your abdominal muscle and not short breaths from your chest.

I wish I was there to help you. I feel so bad for you. I have felt as bad as

you are feeling now and I remember it just like it was yesterday. Please

hang in there and DON'T give up hope. You are a fairly new post op and I

feel Dr. Lehman will be able to help you. You just need a break form the

pain right now. It is hard to think when you feel so miserable. We have all

been there and we are here to support you.

Stay away from the raisens for right now girl !!! I know that they are

healthy for you but also cause GI diarrhea sometimes. Drink plenty of water,

keep yourself hydrated.

As for me, I am feeling better from my rough last weekend. Felt like someone

poked me with a pin and then my pain eased up. This week so far has not been

too bad and I am very happy about that.

Rest and drink water. Listen to me, I either sound like an over protective

mother or a Nurse Ratchett !!!!!!

Take Care,

Lily

Re: Re: To

> Hi Lily, it's me . I am so sick today again. Lotz of pain! I called

> Dr. lehamn's office today. Didn't get a call back. I am hoping he will

> prescribe some sort of new pain relief for me. My doc. here seems to

> have washed his hands of me until I see Doc. Lehman again. Please pray

> for me. I am extremely discouraged! do you notice when you are under a

> lot of stress that attacks come more often? Just curious. My doc. now has

> me on Ultram for pain, compozine for nausea and pancrease, my digestive

> enzymes. Today all I had was some raison bran with skim milk, and orange

> and a low fat turkey sandwich and for a tasty dinner Mrs. Grass soup.

> Ugh!!!! I am so nauseous(sp?) Some days I feel like maybe it is all in my

> head!! I am sooooooo sick of this. And then I read about people that have

> had this for years and years and I just want to give up!!!! Well I am

> going to quit now! sorry so down!!! Hope you are doing well. How was work

> today? Do you work in a hospital or doc. office? keep in touch. God

> Bless, from GR

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

Hi Lily, it's me . I am so sick today again. Lotz of pain! I called

Dr. lehamn's office today. Didn't get a call back. I am hoping he will

prescribe some sort of new pain relief for me. My doc. here seems to

have washed his hands of me until I see Doc. Lehman again. Please pray

for me. I am extremely discouraged! do you notice when you are under a

lot of stress that attacks come more often? Just curious. My doc. now has

me on Ultram for pain, compozine for nausea and pancrease, my digestive

enzymes. Today all I had was some raison bran with skim milk, and orange

and a low fat turkey sandwich and for a tasty dinner Mrs. Grass soup.

Ugh!!!! I am so nauseous(sp?) Some days I feel like maybe it is all in my

head!! I am sooooooo sick of this. And then I read about people that have

had this for years and years and I just want to give up!!!! Well I am

going to quit now! sorry so down!!! Hope you are doing well. How was work

today? Do you work in a hospital or doc. office? keep in touch. God

Bless, from GR

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[Guest guest]

:

I'm sure that you will breeze through the procedure.

-E

Another Kohl's fan

[Guest guest]

Thanks Holly,

I really need your supportive words today. I know exactly what you

mean about your meds being stolen, my ex-husband would take mine all

the time, then I started carrying them with me everywhere. I'm still

feeling pretty stinky, but hopefully it will get better. My doctor

gets back in her office tomorrow, so I'm calling first thing after I

take my twins to school. I don't know if I've ever told you this, but

one of my twins name is Holly Kay. She absoultely loves her name! I

always worried about if my kids were going to grow up absolutly

hating their names! BTW her twin is Halie Ann. I really didn't want

to give them " twin " names, but they told me it was girl/boy twins. I

heard the name " Haley " on TV the weekend before they decided to come

4 weeks early and I was debating about it for several hours AFTER

they were her. So my oldest daughter, Amy Marie who was 2 1/2 &

talked like a 10 y/o called them Holly & the other baby. Too funny!

And all 3 of them like their names, but not as much as Holly! I

guess I did do something right! Thanks again, I needed your support

today!

Lots of Hugs,

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

May God bless you with what you had been through this weekend!

You are in my prayers! I know what it is like to run out of pain

meds! I have

teenagers that steal my pain meds and I have to keep them in a metal

lockbox! This week, I had just got 10 Duragesic patches and went to

put them in my box and found that 2 of them were missing! That is a

week's supply! Thank God I have the breakthrough medicine to hold me

over until I can put the patches back on schedule.

After you have been on big gun pain meds for a while, and go off of

them, you

have pain in places you never heard of. My heart goes out to you my

dear!

God Bless!

Holly

[Guest guest]

Hi Lily, it's me . hi-ho, hi-ho it's off to Indy I go!!! Whistle

whistle!!! I leave on Thursday and see DR. Lehman on Friday! Please pray

as I am scheduled for an ERCP at 9:15am. Today was an ok day. more nausea

than pain. I was able to go shopping with my 3 girls. We had fun. I was

able to get some new clothes as non of my clothes fit anymore! Thank God

for Kohls. 70% off most things. I got pants and 2 shirts for under 23

bucks. My daughter got a bunch too. Hope you're doing good. How has work

been? Hope to hear from you soon. Thanks,

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[Guest guest]

Lily, I forgot to ask you about the digestive enzymes you take. Are they

comparable to pancrease? I take these. Thanx,

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[Guest guest]

Dear Holly,

I think it's good that some of us choose not to have children, or know

early on that we are not made for parenthood. (Although there are millions

of people who were not made for parenthood that have kids anyway, but another

day.)

When I read your post I'm thinking... " Can she kill teenagers? Gosh, I

would think so... Would that be legal in her state? "

" Hey! They stole my meds!! "

" Oh... Well of COURSE Ma'am... you're dismissed! "

(Judge leans way over to Holly... " Ma'am... Please stay after everybody

else leaves.

I need to chat with you... You see, I have teenagers... " )

Ha!

Terry

<<

....I know what it is like to run out of pain meds! I have teenagers that

steal my pain meds and I have to keep them in a metal lockbox! >>

[Guest guest]

My son who is 5 has CF. I have a daughter who will be 7 in April but she

doesn't have CF. She's had some breathing attacks ( 2 ) but the Dr.'s think

it may be azshma. We had her sweat test done but it came back negative. She

is our first and doesn't have it. That's why we were so shocked to hear that

our son had it.

I've told everyone that I'm not having anymore kids. But as life goes on I

wish I hadn't said that. I'm not fixed. I can still have babies. I just

don't think my husband wants anymore and I have to try to convince myself

(this is only my personal thoughts about me and has nothing to do with you)

that it's probably better for us that way. The problems we have with school

and Ins. I don't want to face that again down the road.

If ever I did get pregnant I would also want to know if my baby had CF. It

wouldn't matter to me if it did or didn't. I think I would love that baby no

matter what. It makes us strong and responsible with 1 child who has a

health impairment like CF, but to have more than 1 is a challenge that I'm

willing to face. It's incredible how the mom's and dad's of more than child

with health issues can handle everything and I applaud them.

I wanted to respond to your posts but didn't know what to say or how to say

it. Thank you for listening to me and I hope you can start feeling

comfortable with your decision whatever it may be. Everybody has they're own

life. Don't worry what that other person said, they don't have to go there.

from PA

[Guest guest]

By the way.....I hope you were asking me cause there is more than 1 on

the list. Hope I didn't stick my nose where it didn't belong.....

from PA

[Guest guest]

,

My fingers are crossed for you. I will be thinking of you. Keep us posted

when you can. Take a deep breath. I know it is hard. hang in there,

Lily

Re: Re: E

> Ellen , it's me . I am pretty nervous about this ERCP. it seems as

> if alot of people that have it done end up in the hospital with an acute

> attack! Should I be concerned? I don't want a candy coated answer. Dr.

> Lehman is doing the procedure and he is 5 hours away from home and at

> home is my hubby and my 5 munchkins. We along with most that post here

> are not rich. My hubby counts on my income as do my kids. I work in my

> home 2 days per week and one day at a nursing home as a hairdresser. I

> just can't afford to be down anymore than I already have!! My dad and mom

> are taking me to Indy. They have been very supportive. I guess I am

> rambling on because I am just scared!!! And to be honest very

> depressed!!! I have just today been able to eat alittle. The first in

> about 6 days. I have been much more nauseated this 'flare up' Well hope

> all is well with you! Thanx for your encouragement! I will keep you

> posted. God Bless,

> ________________________________________________________________

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> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

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>

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>

[Guest guest]

Do both of your boys have cf? Melinda