Re: Uveitis- sorta freaking a bit.... has anyone had this? or scotomas?

[Guest guest]

>... She [transplant clinic dr] had one patient who they were giving

massive

> Vit A injections to, to no avail. The patient went totally blind,

but within

> three days of transplant...could see again!

Although I didn't go totally blind, I did lose almost all of my night

vision prior to transplant and recovered it right after tx. Initially

vitamin A supplements helped control the blind spot (scotoma) - and

adding vitamin D helped for a while - but the scotoma gradually grew

to occupy most of my visual field at night - couldn't see any stars,

but the mooon was still in the sky at night. Just prior to transplant

I was in the process of increasing vitamin supplements to try and get

blood levels up to normal range, but because of concerns of over doing

it, that was an iterative process and had not gotten to the point when

I had normal levels before the transplant call came.

When this happened I did some literature searches but found nothing

relating liver disease and vision. I wonder if our doctors would be

interested in publishing something.

Of course this is quite different from the uveitis that Noah was

diagnosed with, but it is another issue with vision.

Tim R, tx #3 7/7/07