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Welcome . My 14 yr. old daughter has FM also, and was diagnosed when

she was 10. I'd like to talk to you more, but am having a very bad day so

must keep this short. This is a great group with lots of caring, supportive

people.

Jeanne in WI

> Owens wrote:

> Hello,

>

> I just subscribed yesterday, My daughter, who is a junior in high school

> was just diagnosed a few weeks ago after a teacher wrote me alarmed that

> she had miserably failed an exam in a class that she was doing fine in

> before. This had followed a year where she had had two back to back

> infections after Thanksgiving in 2006 followed by weeks of needing more

> than 14 hours of sleep where she missed her exams and had to take them

later. She did pretty well at the beginning of the next year until she got

another infection, and was paralyzed in her thinking during a time of year

when a huge major writing project was due....and all she could do was stare

at the work. We had a sleep study done at spring break, and she was

diagnosed with something close to sleep apnea, but they gave her a cpap

machine, and this made a huge difference in her ability to get to sleep

quickly and that improved her health.

>

> This past fall, she was fine (as per usual) during marching season (she is

> in band), but when it stopped, her grades started to fall, so when the

> teacher wrote me, I went to the doctor and he finally called it

> fibromyalgia and we postponed her exams, but not by much.

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Jeanne,

Thanks so much for the warm welcome. What brought on your daughter's

FM? Did she have any developmental issues when she was little?

I'd love to compare notes.

At 12:14 PM 2/13/2008, you wrote:

>Welcome . My 14 yr. old daughter has FM also, and was diagnosed when

>she was 10. I'd like to talk to you more, but am having a very bad day so

>must keep this short. This is a great group with lots of caring, supportive

>people.

>Jeanne in WI

>

> > Owens wrote:

> > Hello,

> >

> > I just subscribed yesterday, My daughter, who is a junior in high school

> > was just diagnosed a few weeks ago after a teacher wrote me alarmed that

> > she had miserably failed an exam in a class that she was doing fine in

> > before. This had followed a year where she had had two back to back

> > infections after Thanksgiving in 2006 followed by weeks of needing more

> > than 14 hours of sleep where she missed her exams and had to take them

>later. She did pretty well at the beginning of the next year until she got

>another infection, and was paralyzed in her thinking during a time of year

>when a huge major writing project was due....and all she could do was stare

>at the work. We had a sleep study done at spring break, and she was

>diagnosed with something close to sleep apnea, but they gave her a cpap

>machine, and this made a huge difference in her ability to get to sleep

>quickly and that improved her health.

> >

> > This past fall, she was fine (as per usual) during marching season (she is

> > in band), but when it stopped, her grades started to fall, so when the

> > teacher wrote me, I went to the doctor and he finally called it

> > fibromyalgia and we postponed her exams, but not by much.

>

>

--

Internal Virus Database is out-of-date.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.19.18 - Release Date: 1/31/2008 12:00 AM

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Dear Jeanne and ,

My dtr has cfs and fibro.. She had symptoms since 5 yrs old however was

not diagnosed till she was about 11. Mostly she suffered dizzy spells with low

blood pressure and always had difficulty in school. She slept alot and couldn't

get up in the morning frequently due to tired and dizziness.She did graduate

high school and goes to university in her 3rd year which has actually taken her

about 5 years due to limiting her amt of credits per semester.Any questions you

may e mail me. I don't know if you guys have your daughters in any special

programs for students with disabilities. If they are available to you which they

should be they should qualify by law for these programs.

Jodi M.

Jodi (JEM)

Re: Introduction/

Jeanne,

Thanks so much for the warm welcome. What brought on your daughter's

FM? Did she have any developmental issues when she was little?

I'd love to compare notes.

At 12:14 PM 2/13/2008, you wrote:

>Welcome . My 14 yr. old daughter has FM also, and was diagnosed when

>she was 10. I'd like to talk to you more, but am having a very bad day so

>must keep this short. This is a great group with lots of caring, supportive

>people.

>Jeanne in WI

>

> > Owens wrote:

> > Hello,

> >

> > I just subscribed yesterday, My daughter, who is a junior in high school

> > was just diagnosed a few weeks ago after a teacher wrote me alarmed that

> > she had miserably failed an exam in a class that she was doing fine in

> > before. This had followed a year where she had had two back to back

> > infections after Thanksgiving in 2006 followed by weeks of needing more

> > than 14 hours of sleep where she missed her exams and had to take them

>later. She did pretty well at the beginning of the next year until she got

>another infection, and was paralyzed in her thinking during a time of year

>when a huge major writing project was due....and all she could do was stare

>at the work. We had a sleep study done at spring break, and she was

>diagnosed with something close to sleep apnea, but they gave her a cpap

>machine, and this made a huge difference in her ability to get to sleep

>quickly and that improved her health.

> >

> > This past fall, she was fine (as per usual) during marching season (she is

> > in band), but when it stopped, her grades started to fall, so when the

> > teacher wrote me, I went to the doctor and he finally called it

> > fibromyalgia and we postponed her exams, but not by much.

>

>

--

Internal Virus Database is out-of-date.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.19.18 - Release Date: 1/31/2008 12:00 AM

________________________________________________________________________________\

____

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