Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 HELLO, I HAVE JUST HAD BIOPSYS,AND WAS DIAGNOSED WITH LICHEN SCLEROSIS,I DONT KNOW MUCH ABOUT THIS AND HOPE THAT SOMEONE CAN GIVE ME MORE INFO ON WHAT WORKS FOR THEM,IT HAS BEEN 3 MONTHS SINCE MY HUSBAND AND I HAVE MADE LOVE,I AM GETTING DEPRESSED BECAUSE I DONT KNOW IF I CAN EVER PLEASE HIM AGAIN.I AM 53,GOING THRU MENOPAUSE AND THATS BAD ENOUGH.WILL I EVER BE CLOSE TO NORMAL AGAIN? I AM USING CLOBETASOL PROPRIATE 2 TIMES A DAY.I HAD 20 STICHES FROM THE BIOPSYS AND SCAR TISSUE IS ALOT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 HI Marsha, Where are you from? I see a wonderful Dr. in Fl. I know how hard this is. I was diag with LP. It sucks , but I have been helped and feel pretty much cured. Dont loose hope...that is my best advice. Looking forward to hearing from you. Subject: LSTo: VulvarDisorders Date: Thursday, October 16, 2008, 5:51 PM HELLO,I HAVE JUST HAD BIOPSYS,AND WAS DIAGNOSED WITH LICHEN SCLEROSIS,I DONT KNOW MUCH ABOUT THIS AND HOPE THAT SOMEONE CAN GIVE ME MORE INFO ON WHAT WORKS FOR THEM,IT HAS BEEN 3 MONTHS SINCE MY HUSBAND AND I HAVE MADE LOVE,I AM GETTING DEPRESSED BECAUSE I DONT KNOW IF I CAN EVER PLEASE HIM AGAIN.I AM 53,GOING THRU MENOPAUSE AND THATS BAD ENOUGH.WILL I EVER BE CLOSE TO NORMAL AGAIN? I AM USING CLOBETASOL PROPRIATE 2 TIMES A DAY.I HAD 20 STICHES FROM THE BIOPSYS AND SCAR TISSUE IS ALOT.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Marsha, Please, please join the Yahoo Lichens Schlerosis group as soon as possible. I have what is probably Lichens Planus, which is very similar to LS and have found this group to bean incredible resource. You'll get a great deal of help and support there from a wonderful group of women who know exactly what you are going through and can help you in regaining your vulvar health and your sex life.Here's the link: http://groups.yahoo.com/group/LichenSclerosis/HolllisOn Thu, Oct 16, 2008 at 5:51 PM, marsha wrote: HELLO, I HAVE JUST HAD BIOPSYS,AND WAS DIAGNOSED WITH LICHEN SCLEROSIS,I DONT KNOW MUCH ABOUT THIS AND HOPE THAT SOMEONE CAN GIVE ME MORE INFO ON WHAT WORKS FOR THEM,IT HAS BEEN 3 MONTHS SINCE MY HUSBAND AND I HAVE MADE LOVE,I AM GETTING DEPRESSED BECAUSE I DONT KNOW IF I CAN EVER PLEASE HIM AGAIN.I AM 53,GOING THRU MENOPAUSE AND THATS BAD ENOUGH.WILL I EVER BE CLOSE TO NORMAL AGAIN? I AM USING CLOBETASOL PROPRIATE 2 TIMES A DAY.I HAD 20 STICHES FROM THE BIOPSYS AND SCAR TISSUE IS ALOT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Marsha, Sorry for your pain. In my opinion using the steroid ointment (cream?) while your tissue is healing from the cuts from the biopsy is not a good thing to do. Steroids don't add to healing wounds and can make it worse. (If this is what you are doing). The same thing happened to me years ago when I had 12 knife biopsies (without stitches). The steroids made the healing delayed. Not sure what is going on here or how long it has been since the biopsies. Hang in there. Arline HELLO, I HAVE JUST HAD BIOPSYS,AND WAS DIAGNOSED WITH LICHEN SCLEROSIS,I DONT KNOW MUCH ABOUT THIS AND HOPE THAT SOMEONE CAN GIVE ME MORE INFO ON WHAT WORKS FOR THEM,IT HAS BEEN 3 MONTHS SINCE MY HUSBAND AND I HAVE MADE LOVE,I AM GETTING DEPRESSED BECAUSE I DONT KNOW IF I CAN EVER PLEASE HIM AGAIN.I AM 53,GOING THRU MENOPAUSE AND THATS BAD ENOUGH.WILL I EVER BE CLOSE TO NORMAL AGAIN? I AM USING CLOBETASOL PROPRIATE 2 TIMES A DAY.I HAD 20 STICHES FROM THE BIOPSYS AND SCAR TISSUE IS ALOT. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Ditto on joining the LS group and the steroid use - also 2x/day is a TON - clobetasol is very strong and needs to be used as sparingly as possible. It should also be tapered back to every other day, then every three days, then once a week, etc. as you see symptom improvement. And there are lots of other things to try besides clob. Please join the other group and read their file " Meds and Suggestions " - it's a lifesaver! Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 hello,i am in north carolina,what treatments have you used...quess i'm looking for a miracle. thanks,marsha LSTo: VulvarDisorders Date: Thursday, October 16, 2008, 5:51 PM HELLO,I HAVE JUST HAD BIOPSYS,AND WAS DIAGNOSED WITH LICHEN SCLEROSIS,I DONT KNOW MUCH ABOUT THIS AND HOPE THAT SOMEONE CAN GIVE ME MORE INFO ON WHAT WORKS FOR THEM,IT HAS BEEN 3 MONTHS SINCE MY HUSBAND AND I HAVE MADE LOVE,I AM GETTING DEPRESSED BECAUSE I DONT KNOW IF I CAN EVER PLEASE HIM AGAIN.I AM 53,GOING THRU MENOPAUSE AND THATS BAD ENOUGH.WILL I EVER BE CLOSE TO NORMAL AGAIN? I AM USING CLOBETASOL PROPRIATE 2 TIMES A DAY.I HAD 20 STICHES FROM THE BIOPSYS AND SCAR TISSUE IS ALOT.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Just an FYI..Dee has a great LS website too that I am also apart of..great info on it..I personally have chosen to stay away from the steroids but using e and t..estrogen and testosterine..the story I just posted that Dee wrote is really good! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 You can expect that a doc will prescribe Clobetasol (or other steroid ointment) that may or may not relieve some of the symptoms. Are you saying that the doc says you haven't been having yeast infections but it is simply (ha!) LS?? My 12 biopsy diagnosed LS was strictly a reaction to candida. I believe now that Brewer's and Baker's yeast were also involved. I suggest that you investigate which foods may be causing this--such as gluten, dairy products, and brewer's and baker's yeast. My opinion. Best Wishes. Arline : Sunday, January 11, 2009, 3:13 AM > I am 49 yrs old, started having these " yeast > infections " quite a while > ago, not sure how long, but have tried it all, friday my > GYN said she > thinks its LS, started me on cream... Briefly what can I > expect anyone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 > > You can expect that a doc will prescribe Clobetasol (or other steroid ointment) that may or may not relieve some of the symptoms. > > Are you saying that the doc says you haven't been having yeast infections but it is simply (ha!) LS?? > > My 12 biopsy diagnosed LS was strictly a reaction to candida. I believe now that Brewer's and Baker's yeast were also involved. > > I suggest that you investigate which foods may be causing this-- such as gluten, dairy products, and brewer's and baker's yeast. > > My opinion. Best Wishes. > > Arline > > > : Sunday, January 11, 2009, 3:13 AM > > I am 49 yrs old, started having these " yeast > > infections " quite a while > > ago, not sure how long, but have tried it all, friday my > > GYN said she > > thinks its LS, started me on cream... Briefly what can I > > expect anyone? > I'm sure some have been yeast, but I've had these grey patches on my labia which before would get better and go away but for the last year or so I have been under tremendous stress related to my marriage and they have been continual and red and irritated from anal area to clit have had diflucan multiple times and all kinds of cream to no avail. When I went on Friday I was at my wit's end. She did give me cream and the burning seems to be better. My marriage is fragile at best and I'm not sure what this will do to it. I started research on Saturday and all I read is that it is incurable. I'm just really upset, cant sleep, not sure where to go from here. Deb Quote Link to comment Share on other sites More sharing options...
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