The relationship between vitamin D and temperature may be QUITE important

[Guest guest]

Jeanne and others,

At the same time that I realize my daughter may have had fibro issues her

whole life, I am not convinced that this condition is too mysterious to be

understood. I've been spending some time on a list that grapples with the

interaction between adrenal fatigue and thyroid disregulation, and I think

what they are talking about is terrifically relevant to fibromyalgia.

One of the things I've been grappling with as I've watched the ups and

downs in my daughter this last few weeks, is that there is obviously a

disregulation of hormonal regulation that everything I see makes me think

it is probably mediated in the brain's areas which are not protected by the

blood brain barrier, so they are areas that are more vulnerable to toxic

influences.

These areas would include the choroid plexus (that operates to the brain

like the kidney operates in the rest of the body....screening some things

out and secreting some things that don't need to be inside), the pituitary

(master gland of many hormones), the pineal gland (where sleep is

regulated) the tuber cinereum (which is involved in regulating histamine in

the brain in a way that also influences diurnal rhythm, see

http://en.wikipedia.org/wiki/Tuber_cinereum) , and the area postrema (which

detects toxins in the blood, and induces vomiting). The idea of having

some of the brain not hiding behind the blood brain barrier is that these

areas of the brain can " sample " what is happening in the blood and make

adjustments. It very well may be that something is breaking down in that

regulation so that the response to correct things is not hitting its

mark. That's where I see this temperature issue and there is some magic

with vitamin D.

I saw this site http://lassesen.com/cfids/recommended_levels.htm about two

weeks ago, and I did the experiment of giving my daughter vitamin D and

monitoring her temperature. Yes, indeed, the temperature did go up. Why

does this happen and does it mean that when the temperature bounces around

(as it does in Grace) that there is something funky going on with vitamin D?

Yes, in Grace's life, doctors have shrugged off the termperature thing as

irrelevant and inconsequential, but I know that when my daughter wakes up

with a 96 degree temperature, she is not going to have a good day. That is

two degrees off of normal, or sometimes even two and a half degrees. The

enzymes in your body that run everything have very narrow tolerances as to

the temperature and the pH in which they operate efficiently Would people

expect you to function at work or school if your temperature was two and a

half degrees off in the other direction? I don't think so!

So, I am monitoring this vitamin D thing carefully. Apparently, there is

some " promiscuity " between vitamn D, vitamin A, and triiodothyronine (T3),

so that when one of them is dysregulated, it may be easy to lose some of

the regulation of the others. We did find that taking cytomel (T3) helped

Grace a lot but more in the function of her immune system and in her

getting to a better weight for a chld her age, but this seems to be more

related to T3 signalling in the periphery, and not what her thyroid gland

is doing, for her blood panel on thyroid actually fell within " normal "

ranges, but her doctor felt that clinically she had signs that she needed

more thyroid. Synthroid was worthless, but that is because its T4 was

likely converted into reverse T3, which impairs thyroid function. She got

elevated reverse T3 on Armour Thyroid. Things didn't get to working right

in that area until we got her on T3 (cytomel). But I think that was like

adjusting one leg on a three legged stool, in that it showed up weaknesses

in the vitamin D, the cortisol and perhaps the vitamin A chemistry.

At times, I've given her cod liver oil, which has both A and D, but I

didn't apparently keep good enough records to tell that I was doing this in

her " good times " . Its vitamin D may be most important in the winter when

the exposure to the sun is less.

Anyway, we will continue to monitor her temperature as we get her vitamin D

levels back up, and I'll let you know what else changes.

I'm so glad to have you here to talk to about this!

t 11:39 AM 2/14/2008, you wrote:

>I've not taken my temp regularly. Usually, if I'm not feeling well and I

>take it, I almost never have a fever. It is around normal to maybe 97

>degrees. I've read this is not a big deal. With regard to the vitamin D,

>mine was tested in October and it was low. I am trying to supplement

>regularly as it is also a contributing factor to SAD. Yes, it makes sense

>that your daughter feels better in the summer and during marching season.

>Jeanne in WI

>

> > How many of you run low temperature? Have you even had vitamin D tested?

> > Has a vitamin D supplement ever helped someone a great deal? I know there

> > are theories out there of a tight connection between fibromyalgia and

> > vitamin D deficiency, which is why we had her tested. Also, she just has

> > done much better in summer and during marching season when she is in the

> > sun for three hours a day.

> >

> >

>

>

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[Guest guest]

excellent info,susan, i agree with the temp,thyroid,adrenal,brain

info. more if it all made sense when i read teitelbaum's book. his

theory is that something triggers hypothalmic dysfuntion, and then

the downward spiral of everything the hypothalmus controls makes alot

of sense and explains my pediatric fibro starting.

in alot of the reading on thyroid i have done, when one gland isn't

working properly, the others don't either, like adrenals, because of

the hormonal feedback loop.

i have just been finding more info on vit d, and how it affects temp

is interesting and i will read more. i did recently get a newsletter

from dr.mercola's site about vit d not beneficial to some immune

issues.

but i have had low temps (my normal is 97.6) for years, since i was a

kid, and the doc only gave me a too low dose of synthroid at the time

which didn't help at all. i now self-treat with armour, which helps

some, but dr. teitelbaum's book did mention that most with fibro need

close to 100mcgs or more of t3/cytomel to get any benefit, but

everyone is different. there are theories that many of us have

various forms of inherited cellular resistance to thyorid hormones,

so we need higher than normal levels for the hormone to get into the

cells. when my temp is 98.2, i am bedridden, but the rheumatologist

tells me that is not a " temp " even after i remind her i am

hypothyroid.

i read, too, that all enzymatic reactions need a specific normal body

temp to work, otherwise ill health, and the importance of thyroid

supplementation.

i am interested in what type and dose of vit d you are giving your

daughter? is her bloodwork checked or has the doctor hadher do saliva

testing? what dose of cytomel is she on, too? when i take armour, my

blood levels go way too high, indicating the horomone is sitting in

my blood and not getting into my cells meaning i have some form of

cellular resistance. so docs won't rx me doses of armour i need due

to high blood results, so i have to buy mine online.

you can email me directly with answers to my quesitons if you want.

thanks,

marg

>

> Jeanne and others,

>

> At the same time that I realize my daughter may have had fibro

issues her

> whole life, I am not convinced that this condition is too

mysterious to be

> understood. I've been spending some time on a list that grapples

with the

> interaction between adrenal fatigue and thyroid disregulation, and

I think

> what they are talking about is terrifically relevant to

fibromyalgia.

>