Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 Hi everyone....before I begin let me say this...if you're having a bad day (and I know a lot of us are) and you just don't want to hear someone scream, holler, and cry...feel free to delete this and not respond...trust me...I understand)... Here I am again...it's after 2:00 AM and yet again my body won't allow me to sleep...and I don't know what to do... Most of you know my story...there are some updates...and I'll give my " story again.... I'm 45 and have been in pain for over 8 years (probably more like 10..I can't remember back that far...what am I talking about...I can't remember details about yesterday let alone 10 years ago...lol...okay it's not funny...but I don't want to cry)... Any who, I had a wonderful doctor who listened to me and helped in any way she could. She has sent me to specialist after specialist trying to get a diagnosis...since I began seeing her (I was one of her first patients)...I have been diagnosed with the following...these came from specialists in various fields.... 1. I was a diabetic but after loosing 160 pounds that is now under control and I no longer have to take insulin. 2. I had a heart attack at the age of 35. 3. I have high blood pressure. 4. I have high cholesterol. 5. I have herniated disks down my neck and back (he wants to wait as long as I can for the surgery because he said once he fuses the two disks together that are the worse in my neck...that I will need to continue having surgery). 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, mentally, emotionally, and sexual abused by my so called " father " ...I call him the destroyer. 7. I have MS (Multiple Sclerosis). 8. And finally I have Fibromyalgia My doctor had everything under control...by my taking the following medicines... 1. Amitriptyline (Elavil) 2. Baclofen 3. Omerprazole (Prilosec) 4. Quinapril (Accupril) 5. Toprol XI 6. Gabapentin (Neurontin) 7. Vicodin (for break through pain) 8. Duragesic Patch (75 mg...change every two days) Now I realize that it's an awful lot of medicine...but it worked...I could function...I could cook and clean...Now if I did too much the next day I paid the price, but I was able to do what I am needed to do.... But it all changed last December...in November I found out that my doctor had become ill (I later found out she had to have open heart surgery). So of course when it came time to get my prescriptions she wasn't there. I was sent to a different doctor in her " group " . That doctor was HORRIBLE! Within 5 minutes she had me in tears; told me I was nothing but a drug addict looking for my next high...my husband was there and actually taped part of the conversation on his phone. By the end of the appointment, she informed me that this would be the only time she would be giving me Vicodin and the pain patch. In January I went off the patch cold turkey...I still had vicodin at that point because I was stretching it as far as I could. I went through a living hell for almost a week (and I have to be honest and say I don't remember a couple of those days)....I am in so much pain...I swear I would do ANYTHING at this point. I went to another doctor within my doctors " group " ...she won't help either. she put me on Tramadol...which does NOTHING for the pain. She also told me she was setting me up for a doctor's appointment in Columbus...that was almost three weeks ago...I had heard nothing...So I called the office and left a message (they wouldn't let me talk to anyone) any who, I left a message telling her I hadn't heard anything....well I know why now...would you believe she FORGOT to write up the orders????? And since they have to wait for my results of the tests done in Cleveland and since they forgot to send that paper as well...I was informed it will take up to a month to get my chart sent here...so it will probably be closer to two months before I can be seen. What in God's name am I suppose to do??? Ever feel like.. dying? My whole body aches, I am exhausted yet I can't sleep...my insides feel like they are shaking...yet no one can see it....I have just a few vicodin left and then they will be gone as well...I don't know what to do.. I just don't... I'm so sorry..I know this is so long...and most won't read it I'm sure...but if you did, and you understand how I feel...please please let me know...am I alone in this struggle?? What am I suppose to do for the next two months??? I can't type any more...I'm crying too hard...please forgive me. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Hi Anita, I'm extremely new to the list, but wanted to let you know my heart breaks for you. I understand the sleeplessness with no relief. As you can see...I'm up right now too. 2:40 and a Lunesta in me but still no relief. I wish I had answers. I would ask to be put on a waiting list for cancellations with the doc. If you run out of meds before then, I would go to the ER. They can often prescribe something for pain. Not long term, but maybe enough to get you by? I'll keep you in my prayers. Debbie in OC " tubelover2u@... " wrote: Hi everyone....before I begin let me say this...if you're having a bad day (and I know a lot of us are) and you just don't want to hear someone scream, holler, and cry...feel free to delete this and not respond...trust me...I understand)... Here I am again...it's after 2:00 AM and yet again my body won't allow me to sleep...and I don't know what to do... Most of you know my story...there are some updates...and I'll give my " story again.... I'm 45 and have been in pain for over 8 years (probably more like 10..I can't remember back that far...what am I talking about...I can't remember details about yesterday let alone 10 years ago...lol...okay it's not funny...but I don't want to cry)... Any who, I had a wonderful doctor who listened to me and helped in any way she could. She has sent me to specialist after specialist trying to get a diagnosis...since I began seeing her (I was one of her first patients)...I have been diagnosed with the following...these came from specialists in various fields.... 1. I was a diabetic but after loosing 160 pounds that is now under control and I no longer have to take insulin. 2. I had a heart attack at the age of 35. 3. I have high blood pressure. 4. I have high cholesterol. 5. I have herniated disks down my neck and back (he wants to wait as long as I can for the surgery because he said once he fuses the two disks together that are the worse in my neck...that I will need to continue having surgery). 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, mentally, emotionally, and sexual abused by my so called " father " ...I call him the destroyer. 7. I have MS (Multiple Sclerosis). 8. And finally I have Fibromyalgia My doctor had everything under control...by my taking the following medicines... 1. Amitriptyline (Elavil) 2. Baclofen 3. Omerprazole (Prilosec) 4. Quinapril (Accupril) 5. Toprol XI 6. Gabapentin (Neurontin) 7. Vicodin (for break through pain) 8. Duragesic Patch (75 mg...change every two days) Now I realize that it's an awful lot of medicine...but it worked...I could function...I could cook and clean...Now if I did too much the next day I paid the price, but I was able to do what I am needed to do.... But it all changed last December...in November I found out that my doctor had become ill (I later found out she had to have open heart surgery). So of course when it came time to get my prescriptions she wasn't there. I was sent to a different doctor in her " group " . That doctor was HORRIBLE! Within 5 minutes she had me in tears; told me I was nothing but a drug addict looking for my next high...my husband was there and actually taped part of the conversation on his phone. By the end of the appointment, she informed me that this would be the only time she would be giving me Vicodin and the pain patch. In January I went off the patch cold turkey...I still had vicodin at that point because I was stretching it as far as I could. I went through a living hell for almost a week (and I have to be honest and say I don't remember a couple of those days)....I am in so much pain...I swear I would do ANYTHING at this point. I went to another doctor within my doctors " group " ...she won't help either. she put me on Tramadol...which does NOTHING for the pain. She also told me she was setting me up for a doctor's appointment in Columbus...that was almost three weeks ago...I had heard nothing...So I called the office and left a message (they wouldn't let me talk to anyone) any who, I left a message telling her I hadn't heard anything....well I know why now...would you believe she FORGOT to write up the orders????? And since they have to wait for my results of the tests done in Cleveland and since they forgot to send that paper as well...I was informed it will take up to a month to get my chart sent here...so it will probably be closer to two months before I can be seen. What in God's name am I suppose to do??? Ever feel like.. dying? My whole body aches, I am exhausted yet I can't sleep...my insides feel like they are shaking...yet no one can see it....I have just a few vicodin left and then they will be gone as well...I don't know what to do.. I just don't... I'm so sorry..I know this is so long...and most won't read it I'm sure...but if you did, and you understand how I feel...please please let me know...am I alone in this struggle?? What am I suppose to do for the next two months??? I can't type any more...I'm crying too hard...please forgive me. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Dear Anita, I am so sry for you,it sounds like your regular MD had your symptoms under control. I can't understand why the other docs would change your meds. I would have made a big fuss and at that md office and threatened to report them. You have a right not to be in pain. You may want to talk with a lawyer.In the meantime is there any other doc you can see in your area? Are you seeing a rheumatologist or is that what you are waiting for?Switching docs in the same group usually is useless because the docs won't'step on each others toes " so to speak.I suppose last resort when it gets unbearable is to go to the closest emergency room.Just to let you know I am frequently up at nite and if you ever want to chat just check the messenger and see if I am online and I will be glad to chat with you. I hope things get better for you very soon. Gentle Hugs, Jodi " tubelover2u@... " wrote: Hi everyone....before I begin let me say this...if you're having a bad day (and I know a lot of us are) and you just don't want to hear someone scream, holler, and cry...feel free to delete this and not respond...trust me...I understand)... Here I am again...it's after 2:00 AM and yet again my body won't allow me to sleep...and I don't know what to do... Most of you know my story...there are some updates...and I'll give my " story again.... I'm 45 and have been in pain for over 8 years (probably more like 10..I can't remember back that far...what am I talking about...I can't remember details about yesterday let alone 10 years ago...lol...okay it's not funny...but I don't want to cry)... Any who, I had a wonderful doctor who listened to me and helped in any way she could. She has sent me to specialist after specialist trying to get a diagnosis...since I began seeing her (I was one of her first patients)...I have been diagnosed with the following...these came from specialists in various fields.... 1. I was a diabetic but after loosing 160 pounds that is now under control and I no longer have to take insulin. 2. I had a heart attack at the age of 35. 3. I have high blood pressure. 4. I have high cholesterol. 5. I have herniated disks down my neck and back (he wants to wait as long as I can for the surgery because he said once he fuses the two disks together that are the worse in my neck...that I will need to continue having surgery). 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, mentally, emotionally, and sexual abused by my so called " father " ...I call him the destroyer. 7. I have MS (Multiple Sclerosis). 8. And finally I have Fibromyalgia My doctor had everything under control...by my taking the following medicines... 1. Amitriptyline (Elavil) 2. Baclofen 3. Omerprazole (Prilosec) 4. Quinapril (Accupril) 5. Toprol XI 6. Gabapentin (Neurontin) 7. Vicodin (for break through pain) 8. Duragesic Patch (75 mg...change every two days) Now I realize that it's an awful lot of medicine...but it worked...I could function...I could cook and clean...Now if I did too much the next day I paid the price, but I was able to do what I am needed to do.... But it all changed last December...in November I found out that my doctor had become ill (I later found out she had to have open heart surgery). So of course when it came time to get my prescriptions she wasn't there. I was sent to a different doctor in her " group " . That doctor was HORRIBLE! Within 5 minutes she had me in tears; told me I was nothing but a drug addict looking for my next high...my husband was there and actually taped part of the conversation on his phone. By the end of the appointment, she informed me that this would be the only time she would be giving me Vicodin and the pain patch. In January I went off the patch cold turkey...I still had vicodin at that point because I was stretching it as far as I could. I went through a living hell for almost a week (and I have to be honest and say I don't remember a couple of those days)....I am in so much pain...I swear I would do ANYTHING at this point. I went to another doctor within my doctors " group " ...she won't help either. she put me on Tramadol...which does NOTHING for the pain. She also told me she was setting me up for a doctor's appointment in Columbus...that was almost three weeks ago...I had heard nothing...So I called the office and left a message (they wouldn't let me talk to anyone) any who, I left a message telling her I hadn't heard anything....well I know why now...would you believe she FORGOT to write up the orders????? And since they have to wait for my results of the tests done in Cleveland and since they forgot to send that paper as well...I was informed it will take up to a month to get my chart sent here...so it will probably be closer to two months before I can be seen. What in God's name am I suppose to do??? Ever feel like.. dying? My whole body aches, I am exhausted yet I can't sleep...my insides feel like they are shaking...yet no one can see it....I have just a few vicodin left and then they will be gone as well...I don't know what to do.. I just don't... I'm so sorry..I know this is so long...and most won't read it I'm sure...but if you did, and you understand how I feel...please please let me know...am I alone in this struggle?? What am I suppose to do for the next two months??? I can't type any more...I'm crying too hard...please forgive me. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Dear Anita, I am so sry for you,it sounds like your regular MD had your symptoms under control. I can't understand why the other docs would change your meds. I would have made a big fuss and at that md office and threatened to report them. You have a right not to be in pain. You may want to talk with a lawyer.In the meantime is there any other doc you can see in your area? Are you seeing a rheumatologist or is that what you are waiting for?Switching docs in the same group usually is useless because the docs won't'step on each others toes " so to speak.I suppose last resort when it gets unbearable is to go to the closest emergency room.Just to let you know I am frequently up at nite and if you ever want to chat just check the messenger and see if I am online and I will be glad to chat with you. I hope things get better for you very soon. Gentle Hugs, Jodi " tubelover2u@... " wrote: Hi everyone....before I begin let me say this...if you're having a bad day (and I know a lot of us are) and you just don't want to hear someone scream, holler, and cry...feel free to delete this and not respond...trust me...I understand)... Here I am again...it's after 2:00 AM and yet again my body won't allow me to sleep...and I don't know what to do... Most of you know my story...there are some updates...and I'll give my " story again.... I'm 45 and have been in pain for over 8 years (probably more like 10..I can't remember back that far...what am I talking about...I can't remember details about yesterday let alone 10 years ago...lol...okay it's not funny...but I don't want to cry)... Any who, I had a wonderful doctor who listened to me and helped in any way she could. She has sent me to specialist after specialist trying to get a diagnosis...since I began seeing her (I was one of her first patients)...I have been diagnosed with the following...these came from specialists in various fields.... 1. I was a diabetic but after loosing 160 pounds that is now under control and I no longer have to take insulin. 2. I had a heart attack at the age of 35. 3. I have high blood pressure. 4. I have high cholesterol. 5. I have herniated disks down my neck and back (he wants to wait as long as I can for the surgery because he said once he fuses the two disks together that are the worse in my neck...that I will need to continue having surgery). 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, mentally, emotionally, and sexual abused by my so called " father " ...I call him the destroyer. 7. I have MS (Multiple Sclerosis). 8. And finally I have Fibromyalgia My doctor had everything under control...by my taking the following medicines... 1. Amitriptyline (Elavil) 2. Baclofen 3. Omerprazole (Prilosec) 4. Quinapril (Accupril) 5. Toprol XI 6. Gabapentin (Neurontin) 7. Vicodin (for break through pain) 8. Duragesic Patch (75 mg...change every two days) Now I realize that it's an awful lot of medicine...but it worked...I could function...I could cook and clean...Now if I did too much the next day I paid the price, but I was able to do what I am needed to do.... But it all changed last December...in November I found out that my doctor had become ill (I later found out she had to have open heart surgery). So of course when it came time to get my prescriptions she wasn't there. I was sent to a different doctor in her " group " . That doctor was HORRIBLE! Within 5 minutes she had me in tears; told me I was nothing but a drug addict looking for my next high...my husband was there and actually taped part of the conversation on his phone. By the end of the appointment, she informed me that this would be the only time she would be giving me Vicodin and the pain patch. In January I went off the patch cold turkey...I still had vicodin at that point because I was stretching it as far as I could. I went through a living hell for almost a week (and I have to be honest and say I don't remember a couple of those days)....I am in so much pain...I swear I would do ANYTHING at this point. I went to another doctor within my doctors " group " ...she won't help either. she put me on Tramadol...which does NOTHING for the pain. She also told me she was setting me up for a doctor's appointment in Columbus...that was almost three weeks ago...I had heard nothing...So I called the office and left a message (they wouldn't let me talk to anyone) any who, I left a message telling her I hadn't heard anything....well I know why now...would you believe she FORGOT to write up the orders????? And since they have to wait for my results of the tests done in Cleveland and since they forgot to send that paper as well...I was informed it will take up to a month to get my chart sent here...so it will probably be closer to two months before I can be seen. What in God's name am I suppose to do??? Ever feel like.. dying? My whole body aches, I am exhausted yet I can't sleep...my insides feel like they are shaking...yet no one can see it....I have just a few vicodin left and then they will be gone as well...I don't know what to do.. I just don't... I'm so sorry..I know this is so long...and most won't read it I'm sure...but if you did, and you understand how I feel...please please let me know...am I alone in this struggle?? What am I suppose to do for the next two months??? I can't type any more...I'm crying too hard...please forgive me. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Anita, YOU ARE NOT ALONE!! I am right there with you. I won't go into it-too long a story but am sitting here waiting for my " pain doctor " to call me after I begged his nurse for an epidural. My back is so damaged I can't walk, or sit. or lay comfortably. Nothing works- allergic to duragesic patch, darvocet, ocycontin, tylenol 3-nothing can touch the pain. The pain doctor wants me to go to the Mayo Clinic and stay in a hotel for 3 weeks and attend their pain clinic. I can't even get to the damn store. Just wanted you to know there are others like you out here. So sad...the illegal drugs are easy to get (not that I have-I am 62 years old and don' want to spend my golden years (lol) in jail) but it doesn't seem fair. Wishing you gentle hugs and some pain free days, Marla In a message dated 2/15/2008 2:03:12 A.M. Central Standard Time, tubelover2u@... writes: Hi everyone....Hi everyone....<WBR>before I begin let me say this...if you're (and I know a lot of us are) and you just don't want to hear someone scream, holler, and cry...feel free to delete this and not respond...trust me...I understand).un Here I am again...it's after 2:00 AM and yet again my body won't allow me to sleep...and I don't know what to do... Most of you know my story...there are some updates...and I'll give my " story again.... I'm 45 and have been in pain for over 8 years (probably more like 10..I can't remember back that far...what am I talking about...I can't remember details about yesterday let alone 10 years ago...lol...remember not funny...but I don't want to cry)... Any who, I had a wonderful doctor who listened to me and helped in any way she could. She has sent me to specialist after specialist trying to get a diagnosis...diagnosis...<WBR>since I began seeing her (I was one of her firstd have been diagnosed with the following...have been diagnosed with the follo various fields.... 1. I was a diabetic but after loosing 160 pounds that is now under control and I no longer have to take insulin. 2. I had a heart attack at the age of 35. 3. I have high blood pressure. 4. I have high cholesterol. 5. I have herniated disks down my neck and back (he wants to wait as long as I can for the surgery because he said once he fuses the two disks together that are the worse in my neck...that I will need to continue having surgery). 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, mentally, emotionally, and sexual abused by my so called " father " ...I call him the destroyer. 7. I have MS (Multiple Sclerosis). 8. And finally I have Fibromyalgia My doctor had everything under control...by my taking the following medicines... 1. Amitriptyline (Elavil) 2. Baclofen 3. Omerprazole (Prilosec) 4. Quinapril (Accupril) 5. Toprol XI 6. Gabapentin (Neurontin) 7. Vicodin (for break through pain) 8. Duragesic Patch (75 mg...change every two days) Now I realize that it's an awful lot of medicine...but it worked...I could function...I could cook and clean...Now if I did too much the next day I paid the price, but I was able to do what I am needed to do.... But it all changed last December...in November I found out that my doctor had become ill (I later found out she had to have open heart surgery). So of course when it came time to get my prescriptions she wasn't there. I was sent to a different doctor in her " group " . That doctor was HORRIBLE! Within 5 minutes she had me in tears; told me I was nothing but a drug addict looking for my next high...my husband was there and actually taped part of the conversation on his phone. By the end of the appointment, she informed me that this would be the only time she would be giving me Vicodin and the pain patch. In January I went off the patch cold turkey...I still had vicodin at that point because I was stretching it as far as I could. I went through a living hell for almost a week (and I have to be honest and say I don't remember a couple of those days)....I am in so much pain...I swear I would do ANYTHING at this point. I went to another doctor within my doctors " group " ...she won't help either. she put me on Tramadol...which does NOTHING for the pain. She also told me she was setting me up for a doctor's appointment in Columbus...that was almost three weeks ago...I had heard nothing...So I called the office and left a message (they wouldn't let me talk to anyone) any who, I left a message telling her I hadn't heard anything....message telling her I hadn't he you believe she FORGOT to write up the orders????? And since they have to wait for my results of the tests done in Cleveland and since they forgot to send that paper as well...I was informed it will take up to a month to get my chart sent here...so it will probably be closer to two months before I can be seen. What in God's name am I suppose to do??? Ever feel like.. dying? My whole body aches, I am exhausted yet I can't sleep...my insides feel like they are shaking...yet no one can see it....I have just a few vicodin left and then they will be gone as well...I don't know what to do.. I just don't... I'm so sorry..I know this is so long...and most won't read it I'm sure...but if you did, and you understand how I feel...please please let me know...am I alone in this struggle?? What am I suppose to do for the next two months??? I can't type any more...I'm crying too hard...please forgive me. Anita [Non-text portions of this message have been removed] **************The year's hottest artists on the red carpet at the Grammy Awards. Go to AOL Music. (http://music.aol.com/grammys?NCID=aolcmp00300000002565) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 HI Anita, just wanted you to know I read it. I may not suffer to the extent you do, or the exact same things, but I do know pain and sleepless nights all too well. You are in my thoughts and prayers, and sending you gentle hugs, Melody tubelover2u@... wrote: > Hi everyone....before I begin let me say this...if you're having a bad day > (and I know a lot of us are) and you just don't want to hear someone scream, > holler, and cry...feel free to delete this and not respond...trust me...I > understand)... > > Here I am again...it's after 2:00 AM and yet again my body won't allow me to > sleep...and I don't know what to do... > > Most of you know my story...there are some updates...and I'll give my " story > again.... I'm 45 and have been in pain for over 8 years (probably more like > 10..I can't remember back that far...what am I talking about...I can't > remember details about yesterday let alone 10 years ago...lol...okay it's > not funny...but I don't want to cry)... > > Any who, I had a wonderful doctor who listened to me and helped in any way > she could. She has sent me to specialist after specialist trying to get a > diagnosis...since I began seeing her (I was one of her first patients)...I > have been diagnosed with the following...these came from specialists in > various fields.... > > 1. I was a diabetic but after loosing 160 pounds that is now under control > and I no longer have to take insulin. > 2. I had a heart attack at the age of 35. > 3. I have high blood pressure. > 4. I have high cholesterol. > 5. I have herniated disks down my neck and back (he wants to wait as long > as I can for the surgery because he said once he fuses the two disks > together that are the worse in my neck...that I will need to continue having > surgery). > 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, > mentally, emotionally, and sexual abused by my so called " father " ...I call > him the destroyer. > 7. I have MS (Multiple Sclerosis). > 8. And finally I have Fibromyalgia > > My doctor had everything under control...by my taking the following > medicines... > 1. Amitriptyline (Elavil) > 2. Baclofen > 3. Omerprazole (Prilosec) > 4. Quinapril (Accupril) > 5. Toprol XI > 6. Gabapentin (Neurontin) > 7. Vicodin (for break through pain) > 8. Duragesic Patch (75 mg...change every two days) > > Now I realize that it's an awful lot of medicine...but it worked...I could > function...I could cook and clean...Now if I did too much the next day I > paid the price, but I was able to do what I am needed to do.... But it all > changed last December...in November I found out that my doctor had become > ill (I later found out she had to have open heart surgery). So of course > when it came time to get my prescriptions she wasn't there. I was sent to a > different doctor in her " group " . That doctor was HORRIBLE! Within 5 > minutes she had me in tears; told me I was nothing but a drug addict looking > for my next high...my husband was there and actually taped part of the > conversation on his phone. By the end of the appointment, she informed me > that this would be the only time she would be giving me Vicodin and the pain > patch. In January I went off the patch cold turkey...I still had vicodin at > that point because I was stretching it as far as I could. I went through a > living hell for almost a week (and I have to be honest and say I don't > remember a couple of those days)....I am in so much pain...I swear I would > do ANYTHING at this point. > > I went to another doctor within my doctors " group " ...she won't help either. > she put me on Tramadol...which does NOTHING for the pain. She also told me > she was setting me up for a doctor's appointment in Columbus...that was > almost three weeks ago...I had heard nothing...So I called the office and > left a message (they wouldn't let me talk to anyone) any who, I left a > message telling her I hadn't heard anything....well I know why now...would > you believe she FORGOT to write up the orders????? And since they have to > wait for my results of the tests done in Cleveland and since they forgot to > send that paper as well...I was informed it will take up to a month to get > my chart sent here...so it will probably be closer to two months before I > can be seen. What in God's name am I suppose to do??? Ever feel like.. > dying? My whole body aches, I am exhausted yet I can't sleep...my insides > feel like they are shaking...yet no one can see it....I have just a few > vicodin left and then they will be gone as well...I don't know what to do.. > I just don't... > > I'm so sorry..I know this is so long...and most won't read it I'm sure...but > if you did, and you understand how I feel...please please let me know...am I > alone in this struggle?? What am I suppose to do for the next two months??? > I can't type any more...I'm crying too hard...please forgive me. > > Anita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 > > > > Anita > > > Anita, where do you live? Are you close to Columbus or even Cleveland? Since you mention both cities in your post, I would think you could see about getting in to see a doctor --- says it's an emergency, sometimes if it is an actual crisis that you could get into see a doctor. Seems there must be someone in one of those cities that could help you a bit more than what is happening now --- shuffle around because your doctor became ill, records lost (hard to do, because after making a comment to one of the doctors at a clinic I went to for years, he said to me this past week that there is a national data basis! who knew?) But I do tend to get a bit pushy and I also search for answers. So sorry that you are going through so much and do hope that the situation will get better soon!!! Another possiblity is that you could check and see if one of the hospitals is doing any studies on any of your problems. Then, there was the time, I kept saying the cough I had was nothing until one night when I could not stop coughing and my husband had to rush me to the hospital. I was home for 2 weeks taking predinzone for the first and only time. But because I was very sick they spent 4 hours working on me. If you have insurance, either of your own or from your husband, call them and see if they can help you!!! I hope you get the relief and help you need very soon! Godbless you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Oh ((((Anita)))) Honey, if I were you I would do a search for a DIFFERENT rheum (if that is who you use), even if you have to drive a little (or have DH drive) to get there - I live about 45 mins from mine because there was nothing available in my small town. And I'm sorry, that whole group of folks needs to be reported to the medical board. If your chart is clearly marked MS and fibro, two painful conditions separately, let alone together, plus all the degenerative disk disease, well, they were waaaay off the mark! You are not looking for your next high, if you (or any of us) were doing that, we would be doctor shopping and going to various doctors and having them write a lot of the same stuff. That doesn't sound like that is happening here. I am glad your DH taped part of the conversation. The AMA needs to be investigating them; how many other chronic pain sufferers are they needlessly hurting like this??? I wish I had more to say; your story made my heart hurt. ((((Hugs again)))) Darlene > > Anita, > YOU ARE NOT ALONE!! I am right there with you. I won't go into it-too long > a story but am sitting here waiting for my " pain doctor " to call me after I > begged his nurse for an epidural. My back is so damaged I can't walk, or > sit. or lay comfortably. Nothing works- allergic to duragesic patch, darvocet, > ocycontin, tylenol 3-nothing can touch the pain. The pain doctor wants me to > go to the Mayo Clinic and stay in a hotel for 3 weeks and attend their pain > clinic. I can't even get to the damn store. > > Just wanted you to know there are others like you out here. So sad...the > illegal drugs are easy to get (not that I have-I am 62 years old and don' want > to spend my golden years (lol) in jail) but it doesn't seem fair. > > Wishing you gentle hugs and some pain free days, > Marla > > > In a message dated 2/15/2008 2:03:12 A.M. Central Standard Time, > tubelover2u@... writes: > > > > > Hi everyone....Hi everyone....<WBR>before I begin let me say this...if you're > (and I know a lot of us are) and you just don't want to hear someone scream, > holler, and cry...feel free to delete this and not respond...trust me...I > understand).un > > Here I am again...it's after 2:00 AM and yet again my body won't allow me to > sleep...and I don't know what to do... > > Most of you know my story...there are some updates...and I'll give my " story > again.... I'm 45 and have been in pain for over 8 years (probably more like > 10..I can't remember back that far...what am I talking about...I can't > remember details about yesterday let alone 10 years ago...lol...remember > not funny...but I don't want to cry)... > > Any who, I had a wonderful doctor who listened to me and helped in any way > she could. She has sent me to specialist after specialist trying to get a > diagnosis...diagnosis...<WBR>since I began seeing her (I was one of her firstd > have been diagnosed with the following...have been diagnosed with the follo > various fields.... > > 1. I was a diabetic but after loosing 160 pounds that is now under control > and I no longer have to take insulin. > 2. I had a heart attack at the age of 35. > 3. I have high blood pressure. > 4. I have high cholesterol. > 5. I have herniated disks down my neck and back (he wants to wait as long > as I can for the surgery because he said once he fuses the two disks > together that are the worse in my neck...that I will need to continue having > surgery). > 6. I have PTSD (Post Traumatic Stress Disorder) from being physically, > mentally, emotionally, and sexual abused by my so called " father " ...I call > him the destroyer. > 7. I have MS (Multiple Sclerosis). > 8. And finally I have Fibromyalgia > > My doctor had everything under control...by my taking the following > medicines... > 1. Amitriptyline (Elavil) > 2. Baclofen > 3. Omerprazole (Prilosec) > 4. Quinapril (Accupril) > 5. Toprol XI > 6. Gabapentin (Neurontin) > 7. Vicodin (for break through pain) > 8. Duragesic Patch (75 mg...change every two days) > > Now I realize that it's an awful lot of medicine...but it worked...I could > function...I could cook and clean...Now if I did too much the next day I > paid the price, but I was able to do what I am needed to do.... But it all > changed last December...in November I found out that my doctor had become > ill (I later found out she had to have open heart surgery). So of course > when it came time to get my prescriptions she wasn't there. I was sent to a > different doctor in her " group " . That doctor was HORRIBLE! Within 5 > minutes she had me in tears; told me I was nothing but a drug addict looking > for my next high...my husband was there and actually taped part of the > conversation on his phone. By the end of the appointment, she informed me > that this would be the only time she would be giving me Vicodin and the pain > patch. In January I went off the patch cold turkey...I still had vicodin at > that point because I was stretching it as far as I could. I went through a > living hell for almost a week (and I have to be honest and say I don't > remember a couple of those days)....I am in so much pain...I swear I would > do ANYTHING at this point. > > I went to another doctor within my doctors " group " ...she won't help either. > she put me on Tramadol...which does NOTHING for the pain. She also told me > she was setting me up for a doctor's appointment in Columbus...that was > almost three weeks ago...I had heard nothing...So I called the office and > left a message (they wouldn't let me talk to anyone) any who, I left a > message telling her I hadn't heard anything....message telling her I hadn't he > you believe she FORGOT to write up the orders????? And since they have to > wait for my results of the tests done in Cleveland and since they forgot to > send that paper as well...I was informed it will take up to a month to get > my chart sent here...so it will probably be closer to two months before I > can be seen. What in God's name am I suppose to do??? Ever feel like.. > dying? My whole body aches, I am exhausted yet I can't sleep...my insides > feel like they are shaking...yet no one can see it....I have just a few > vicodin left and then they will be gone as well...I don't know what to do.. > I just don't... > > I'm so sorry..I know this is so long...and most won't read it I'm sure...but > if you did, and you understand how I feel...please please let me know...am I > alone in this struggle?? What am I suppose to do for the next two months??? > I can't type any more...I'm crying too hard...please forgive me. > > Anita > > [Non-text portions of this message have been removed] > > > > > > > > **************The year's hottest artists on the red carpet at the Grammy > Awards. Go to AOL Music. > (http://music.aol.com/grammys?NCID=aolcmp00300000002565) > > > Quote Link to comment Share on other sites More sharing options...
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