Re: Re:Spouse of PSC'er

[Guest guest]

,

Thank you SO MUCH. Your email literally brought tears

to my eyes - and now, of course, I'm crying..

Finally, I feel like I'm not alone.

God, I am so sorry about your husband. When did you

lose him? How old was he? How long was he diagnosed

with this? How are you doing now?

In some ways, I feel like I need this support group

more than Rob.

Lezlee

--- Hettinger wrote:

> Welcome Lezlee,

>

> Just because it is your spouse that has the

> disease doesn't mean you shouldn't be on this list.

> I joined this list to help me try to help my husband

> deal with all the things he and by association I was

> going through.

>

> There is a wealth of information in this group

> from those who constantly scour the research

> information, those who have the ups and downs of the

> disease, those who received a liver transplant

> because of the disease and a few like myself whose

> loved one finally succumbed to the disease.

>

> Even though I have lost my husband I still feel it

> is important to stay connected. I was in your

> position. I know your frustration at wanting to be

> intimate with your husband but by the end of the day

> he is too wiped out. And they say women are the

> ones who always have an excuse to not have sex.

> Whoever said that wasn't married to someone that had

> PSC. So the best you can do is be loving and

> supportive, let them know you love them regardless

> and enjoy cuddling as much as you can. That can be

> as calming and relaxing especially if their stomach

> is tied in knots. Though I did not have a toddler

> as you do I have older teenagers and balancing my

> time with them while caring for my husband stretched

> me to the limit.

>

> So don't be afraid to ask your questions either to

> the group or to some of us personally as we are all

> here to help.

>

> Hettinger

>

>

>

> __________________________________________________

>