Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Yup, hubby Fred has the same issue, seems to happen since his recent pancreatitis/huge UC flare up. He thinks it's from drinking 2,250 calories a day of this sugar-laden nutritional supplement. I said " I think it's PSC-related. " Just not sure how. Wife of Fred, PSC 03/04, UC 03/06, Gastritis 10/07, Pancreatitis 10/07 > > Hi, > I read all the posts but haven't posted until now. My husband was diagnosed with PSC in 2001 and has been on the Tx list since March 2007. He has a J-pouch since 2002 due to UC. > > Anyway, I was wondering if anyone has any experience with sweats everytime you go to sleep. If he is taking a nap or trying to sleep at night, he drenches everything....clothes, bedding, etc. We have asked the doctor but didn't really get an answer except it's his liver. We know that but wondered why the sweats just when sleeping. > > Curious if anyone has this same issue. > Thanks for an answer and thanks for this group because you have answered numerous questions of ours just by me reading the posts. > Kathy McFadden > Neil McFadden > > > --------------------------------- > Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hello Kathy, Is there a chance your hubby is on Steriods? My son has the same issue, but it is only when he is on the steriods. He too has PSC and Chrons, the steriods are for the Chrons. Just wondering. e Mother of Mikey age 3 PSC and Chrons > > > > Hi, > > I read all the posts but haven't posted until now. My husband > was diagnosed with PSC in 2001 and has been on the Tx list since > March 2007. He has a J-pouch since 2002 due to UC. > > > > Anyway, I was wondering if anyone has any experience with sweats > everytime you go to sleep. If he is taking a nap or trying to sleep > at night, he drenches everything....clothes, bedding, etc. We have > asked the doctor but didn't really get an answer except it's his > liver. We know that but wondered why the sweats just when sleeping. > > > > Curious if anyone has this same issue. > > Thanks for an answer and thanks for this group because you have > answered numerous questions of ours just by me reading the posts. > > Kathy McFadden > > Neil McFadden > > > > > > --------------------------------- > > Catch up on fall's hot new shows on Yahoo! TV. Watch previews, > get listings, and more! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 e- Fred is on steroids - that's probably the cause, although I have read of others with PSC having night sweats. > > > > > > Hi, > > > I read all the posts but haven't posted until now. My husband > > was diagnosed with PSC in 2001 and has been on the Tx list since > > March 2007. He has a J-pouch since 2002 due to UC. > > > > > > Anyway, I was wondering if anyone has any experience with sweats > > everytime you go to sleep. If he is taking a nap or trying to sleep > > at night, he drenches everything....clothes, bedding, etc. We have > > asked the doctor but didn't really get an answer except it's his > > liver. We know that but wondered why the sweats just when sleeping. > > > > > > Curious if anyone has this same issue. > > > Thanks for an answer and thanks for this group because you have > > answered numerous questions of ours just by me reading the posts. > > > Kathy McFadden > > > Neil McFadden > > > > > > > > > --------------------------------- > > > Catch up on fall's hot new shows on Yahoo! TV. Watch previews, > > get listings, and more! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Tyler is 15 with PSC. He had severe sweats off and on 24/7 when he was acutely ill Oct. 2006. He would drench his clothing and bedding several times a night. I was getting almost no sleep because of changing sheets so much through the night. This went on for several months. He would have severe chills, shaking, sweats, pain and fever during this acute phase of illness. He was officially diagnosed after his liver biopsy results came back. He'd had the biopsy in Oct. we got the results in Nov. He still has sweats off and on. It's worse anytime he gets extra fatigued, he then has more severe pain, and when trying to rest will have the sweat episodes. He is not on any steriods. He's on Ursodiol 600 mg 3 times a day, and Rifampin 600 mg 2 times a day. He just started the Rifampin a 2 months ago. He also experiences extreme itching most of the time. These are his symptoms. He hasn't been diagnosed with any other disease other than PSC. He was diagnosed with stage 3 fibrosis with the liver biopsy done in Oct. 06 as a result of the PSC. So, I would say yes, sweats are another symptom Tyler has as a result of PSC from our experience. Cindy mom to Tyler 15 PSC Oct. 2006.See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Cindy,When Bill was having night sweats on the prednisone, I got some soft towels for him to sleep on and then he couldjust swap them at night. The large bath sheet size.LeeTyler is 15 with PSC. He had severe sweats off and on 24/7 when he was acutely ill Oct. 2006. He would drench his clothing and bedding several times a night. I was getting almost no sleep because of changing sheets so much through the night. This went on for several months. He would have severe chills, shaking, sweats, pain and fever during this acute phase of illness. He was officially diagnosed after his liver biopsy results came back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Sweats and hot flashes were one of the main reason I went my PCP. I had been feeling very fatigued, nauseated and having sweats. I had a Hysterectomy about 5 years ago, but still have one ovary, and thought maybe I was going through menopause. So my doc did blood work to see how my hormone levels were. They were fine, but my liver enzymes and GGT was extremly elevated. So was sent to a liver specialitst, had a ERCP that showed a severe " pruning " of the biliary tree and a biopsy that also showed stage 3 fibrosis. I also get the chills and pain. I did not tolerate the Urso and am not on any medications. -West Texas, PSC - May of '07 > > Tyler is 15 with PSC. He had severe sweats off and on 24/7 when he was > acutely ill Oct. 2006. He would drench his clothing and bedding several times a > night. I was getting almost no sleep because of changing sheets so much > through the night. This went on for several months. He would have severe chills, > shaking, sweats, pain and fever during this acute phase of illness. He was > officially diagnosed after his liver biopsy results came back. He'd had the > biopsy in Oct. we got the results in Nov. He still has sweats off and on. > It's worse anytime he gets extra fatigued, he then has more severe pain, and > when trying to rest will have the sweat episodes. He is not on any steriods. > He's on Ursodiol 600 mg 3 times a day, and Rifampin 600 mg 2 times a day. He > just started the Rifampin a 2 months ago. He also experiences extreme > itching most of the time. These are his symptoms. He hasn't been diagnosed with > any other disease other than PSC. He was diagnosed with stage 3 fibrosis > with the liver biopsy done in Oct. 06 as a result of the PSC. So, I would say > yes, sweats are another symptom Tyler has as a result of PSC from our > experience. > > Cindy mom to Tyler 15 PSC Oct. 2006. > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Just a quick reminder to everyone posting about sweats - in other posts it seems clear that dehydration really exacerbates other PSC symptoms - esp. URQ pain - so if you are really sweating a lot at night it is probably even more important that you get yourself well hydrated during the day. tx, Nina in Philly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 > > Just a quick reminder to everyone posting about sweats - in other > posts it seems clear that dehydration really exacerbates other PSC > symptoms - esp. URQ pain - so if you are really sweating a lot at > night it is probably even more important that you get yourself well > hydrated during the day. tx, > > Nina in Philly > Hi: Just a question related to the above. I had bad itching, some pain, etc. in the past year and a half. I suspect Protonix was one of the culprits making it worse (My blood tests went up immediately once on it with the itching and slowly have gone down steadily when off it (now maybe for 8+ months). For the itching I've been tanning 3 times a week (Bought an old used commercial tanning bed) and that seems to help also but that's not my question. I'm also taking 6 questrans a day and 1-2 Rifampins a day also. I may start tapering down on these as I've been feeling pretty good. My question is that I lift weights and over the years (Probably since 1994) have been on and off Creatine Monohydrate (probably more on than off). I've also had very little problems with itching, etc. (Note that when I asked my Dr he didn't have a problem with it or supplements in general other than thinking a lot of them are a waste of $$$). Note that it occurs naturally in meat products so it's not a foreign substance, just more of what you could get naturally. One of the effects weight gain due to intra muscular fluid gain (I gained maybe 10lbs in 2 weeks). It could be purely coincidental but my itching seems like it's gone way down since I've started taking creatine again. I'm wondering if it's the extra fluid (Probably about 10lbs in my case) helps the itching? Has anyone else had a similar experience? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Wow that is a good thing to keep in mind! > > Just a quick reminder to everyone posting about sweats - in other > posts it seems clear that dehydration really exacerbates other PSC > symptoms - esp. URQ pain - so if you are really sweating a lot at > night it is probably even more important that you get yourself well > hydrated during the day. tx, > > Nina in Philly > Quote Link to comment Share on other sites More sharing options...
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