Mayo Clinic visit?

[Guest guest]

Hi All!

I signed up on this site a couple of months ago and I have just been

reading all of the posts until now. I am a 25 yr old female diagnosed

with UC and PSC 12/06. I currently am only seen by a GI dr who I feel

is treating my diseases very well. He has me on 3,600 mg of Asacol &

1,250 mg of Urso forte a day. I have had 2 MRCP's in the past year and

2 ERCP's in the last 3 months with 3 stent placements. However, I am

wondering if I should be seeing someone with more experience in PSC. I

have considered going to see Dr. Lindor at the Mayo clinic in Rochester

but I'm not sure there is much more he(or any other dr for that matter)

can do for me at this point. My symptoms are under control and my LFT's

are normal...for now. My question is for those of you that have been to

the Mayo Clinic...do you think it would be beneficial for me to see

a " PSC specialist " at this stage of my disease or should I wait until

my current dr runs out of options? Also, what did they do(tests, change

meds, etc..)at your first Mayo visit? I just want to make sure that I

am doing everything possible to extend my time as a relatively healthy

person. Thank you in advance for your time and it's nice reading that

there are other people in this world who have experienced some of the

things that I have.

[Guest guest]

I have been to Mayo in MN for a different problem about 10 years ago. I was very please with the experience. I was there for 3 days as an outpatient and the docs there had my illness figured out, I had been seeing doctors at a local University hospital for 3 years without any conclusive diagnosis. Since (from what I have read) Mayo is on the "cutting edge" with PSC if I still lived close enough to go to Mayo I would go. Hope this info is helpful to you.

Mayo Clinic visit?

Hi All!I signed up on this site a couple of months ago and I have just been reading all of the posts until now. I am a 25 yr old female diagnosed with UC and PSC 12/06. I currently am only seen by a GI dr who I feel is treating my diseases very well. He has me on 3,600 mg of Asacol & 1,250 mg of Urso forte a day. I have had 2 MRCP's in the past year and 2 ERCP's in the last 3 months with 3 stent placements. However, I am wondering if I should be seeing someone with more experience in PSC. I have considered going to see Dr. Lindor at the Mayo clinic in Rochester but I'm not sure there is much more he(or any other dr for that matter) can do for me at this point. My symptoms are under control and my LFT's are normal...for now. My question is for those of you that have been to the Mayo Clinic....do you think it would be beneficial for me to see a "PSC specialist" at this stage of my disease or should

I wait until my current dr runs out of options? Also, what did they do(tests, change meds, etc..)at your first Mayo visit? I just want to make sure that I am doing everything possible to extend my time as a relatively healthy person. Thank you in advance for your time and it's nice reading that there are other people in this world who have experienced some of the things that I have. __________________________________________________

[Guest guest]

I had heard nothing but positives about Mayo Clinic and decided

to go for a second opinion back in July 07. I am a 50 year old

male and have had the disease 13 years. My dx could not open

the right side of my ducts and the middle had been closing down.

Dr. Lindnor had an ultrasound conducted & blood work and that was it.

I felt because I wasn't in the midst of a cholangitis attack, they decided to

do nothing else.It was far and away the most efficient med facility I ever visited,

distance is a consideration however for me. He answered alot of questions,

but a bit disappointing. No med change 300 mg asacol 1 3x daily; 350 mg actigall

4, 2x daily.

Best wishes.

Phil

psc/uc 94

Mayo Clinic visit?

Hi All!I signed up on this site a couple of months ago and I have just been reading all of the posts until now. I am a 25 yr old female diagnosed with UC and PSC 12/06. I currently am only seen by a GI dr who I feel is treating my diseases very well. He has me on 3,600 mg of Asacol & 1,250 mg of Urso forte a day. I have had 2 MRCP's in the past year and 2 ERCP's in the last 3 months with 3 stent placements. However, I am wondering if I should be seeing someone with more experience in PSC. I have considered going to see Dr. Lindor at the Mayo clinic in Rochester but I'm not sure there is much more he(or any other dr for that matter) can do for me at this point. My symptoms are under control and my LFT's are normal...for now. My question is for those of you that have been to the Mayo Clinic...do you think it would be beneficial for me to see a "PSC specialist" at this stage of my disease or should

I wait until my current dr runs out of options? Also, what did they do(tests, change meds, etc..)at your first Mayo visit? I just want to make sure that I am doing everything possible to extend my time as a relatively healthy person. Thank you in advance for your time and it's nice reading that there are other people in this world who have experienced some of the things that I have.

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