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,

When had pacreatitis in 1999, he actually went 6 weeks without food. He

was on home health care where a nurse would come to the home and check him. He

had a IV bag and a pick line and would " eat " 2 times a day. He lost tons of

weight. His enzymes were so high and everytime they tried to let him eat, he had

pain. The other two times he had it, not nearly as severe, as soon as his

enzymes went down, they would try him on liquids and then worked up to regular

food as tolerated. He went sometimes 3 or 4 days with an IV fluid in. Nothing

but ice chips. They never found any reason for the episodes. Are they feeding

Fred through IV? Hope so

It was strange, that once had the first bad attack, alot about his body

chemistry changed. He no longer ran hot, you could almost feel the heat come off

him. Now he tends to run cold. That's what happened to us. Hope it helps

Pamela (wife of )

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The poor guy! Can't imagine going six weeks without food. Fred's

gastro and hospital do not treat pancreatitis as inpatient, and the

IV at home was never brought up. She believes in giving the patient

a nutritional drink supplement called Resource Breeze, which does

not stimulate the pancreas. That's what he's been subsisting on for

13 days - before that a 4 day complete fast, except for pedialyte

and water. Has done well on it, just continuing to lose weight, even

on an average of 3000 calories a day. (That would never happen to

me!)

Interesting about the body chemistry change. Fred would sure like to

run a little colder! He sweats profusely at the slightest exertion,

and living in the south makes the heat harder to bear.

Wife of Fred, PSC 03/04, UC 03/06, Pancreatitis, 10/07

- In , " rpthorp@... " wrote:

>

> ,

> When had pacreatitis in 1999, he actually went 6 weeks

without food. He was on home health care where a nurse would come to

the home and check him. He had a IV bag and a pick line and

would " eat " 2 times a day. He lost tons of weight. His enzymes were

so high and everytime they tried to let him eat, he had pain. The

other two times he had it, not nearly as severe, as soon as his

enzymes went down, they would try him on liquids and then worked up

to regular food as tolerated. He went sometimes 3 or 4 days with an

IV fluid in.

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,

How are you handling all of this? I

know when Todd couldn’t eat for so long it was hard on all of us because

I wouldn’t let anyone eat or drink around him…but Todd was in the

hospital and we could disappear for food. It must be so hard on you

having him at home going through this. My thoughts are prayers are with

you.

Joanne (Mom of Todd, 21, PSC 01, Crohns

02, TX Twice 03, rPSC 05, Diabetes 06, Living life to the fullest 07)

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You're very sweet Joanne - but not to worry. Fred said it doesn't

bother him in the LEAST if I eat in front of him, which is good, cause

I'm doing my share of stress eating! However, I'd covet your prayers

for Fred - he said he'd covet anyone's prayers.

He prefers my company while eating in the same room with him rather

than him being alone and me eating in another room. (The shouting gets

old - plus his voice is so weak, even when in the same room I keep

saying " What/Pardon/You say something/Huh????? " )

I've read through the archives on " pancreatitis " and found where your

son had it for several months before being diagnosed??? Now THAT whole

process was much tougher than anything I've gone through with Fred.

I still haven't found anyone who drank a nutritional supplement to

treat their pancreatitis. Fred's case was definitely mild though. It

was the horrible UC flare up combined with the pancreatitis that got

to him.

Feeling Rather Fat Wife of Very Tall and Very Skinny Fred, PSC 03/04,

UC 03/06, Pancreatitis 10/07

>

> ,

>

>

>

> How are you handling all of this? I know when Todd couldn't eat for

so long

> it was hard on all of us because I wouldn't let anyone eat or drink

around

> him but Todd was in the hospital and we could disappear for food.

It must

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