Re: what pain meds help? DIFFERENT FOR ALL

[Guest guest]

AS YOU'LL READ ALOT OF PEOPLE ARE ON NARCOTICS, SOME FIND PAIN RELIEF WITH

OTHERS LIKE MX, WHICH USUALLY RHUEMO PRESCRIBES, OTHERS HAVE USED PREDISONE

WHICH THEY CLAIM TO WORK REMARKABLE, I MYSELF HAD BAD SIDE EFFECTS FROM MOST OF

THE NON NARCOTICS AND HAVE HAD TO USE VICODIN, THERE HAS BEEN NO OTHER CHOICE,

ALOT OF DR.'S DON'T BELIEVE IN GIVING US PAIN MEDS, AS THEY SAY FIBRO PATIENTS

SHOULD NOT BE ON THEM, ???? THAT IS THE ONLY THING THEY SAY. I HAVE A GREAT

TEAM OF DR;S WHO HAVE WORKED WITH ME CLOSELY AND IN MY BEST INTEREST AND

BELIEVES I SHOULD NOT BE IN THIS AMT. OF PAIN ALL THESE YRS. 4 YRS THIS TIME

AROUND. THERE IS ALSO LIBODERM PATCHES, AND ULTRAM WHICH ARE NON NARCOTIC,AND

SUPPOSE TO BE NON ADDICTIVE, BUT MY MOM WHO IS 78 STILL WORKS THRU ALL HER PAIN,

AND SHE HAS MORE THINGS GOING ON THEN THINKS SHE IS ADDICTED TO HER TRAMADOL!

LOL SO WHAT IF SHE IS, SHE HAS BEEN THROUGH H--LL BUT KEEPS TRUDGING ALONG ALOT

OF POSITIVE ATTITUDE. I WORRY TO MUCH.

GOOD LUCK FINDING YOUR RELIEF. SHARON

idisnotok wrote: i read fibro pain is not

inflammatory pain, and i know different meds

work different for everyone, but the pain meds that help some of us,

are they just those one's like vicodin,valium,controlled substances

which docs do not like writing rxs for?

or what meds have seemed to help some here?

i will need to ask my doc next time i go in for something.

magnesium and calcium just aren't helping with sleep as much as i need

and i can tell pain is getting worse.

thanks,

marg

[Guest guest]

So far i can tell you that for me, I take Ultracet(tramadol) for my

non Fibro back pain. Along with Lyrica 225mg 2x's a day and Provigil

split in 1/3 3x's a day. I still have alot of the pain, numbness and

burning but i tried to stop the Lyrica thinking it wasn't working but

boy was i wrong..

With in 24 hours of not taking the Lyrica, My body became a pinball

machine of Pain with a Multi Ball action going on..... Here there and

everywhere was being hit... most times it's last's for a few seconds

and moves on to some place else and this is simultaneously with other

areas being hit... So I took the Lyrica and that really slowed it

down.... I also have pain my neck and Shoulders and my Dr gave me

something NEW she sad.. She told me It's a Patch that does not go

through the liver and mild over all to the body. It's called

<Flector>, it's a patch that is worn for 12hrs at a time.. and it

really help me with the neck and shoulder pains... allowing me to be

rest just a little easier..

(Lansdale Pa.)

> AS YOU'LL READ ALOT OF PEOPLE ARE ON NARCOTICS, SOME FIND PAIN

> RELIEF WITH OTHERS LIKE MX, WHICH USUALLY RHUEMO PRESCRIBES, OTHERS

> HAVE USED PREDISONE WHICH THEY CLAIM TO WORK REMARKABLE, I MYSELF

> HAD BAD SIDE EFFECTS FROM MOST OF THE NON NARCOTICS AND HAVE HAD TO

> USE VICODIN, THERE HAS BEEN NO OTHER CHOICE, ALOT OF DR.'S DON'T

> BELIEVE IN GIVING US PAIN MEDS, AS THEY SAY FIBRO PATIENTS SHOULD

> NOT BE ON THEM, ???? THAT IS THE ONLY THING THEY SAY. I HAVE A

> GREAT TEAM OF DR;S WHO HAVE WORKED WITH ME CLOSELY AND IN MY BEST

> INTEREST AND BELIEVES I SHOULD NOT BE IN THIS AMT. OF PAIN ALL

> THESE YRS. 4 YRS THIS TIME AROUND. THERE IS ALSO LIBODERM PATCHES,

> AND ULTRAM WHICH ARE NON NARCOTIC,AND SUPPOSE TO BE NON ADDICTIVE,

> BUT MY MOM WHO IS 78 STILL WORKS THRU ALL HER PAIN, AND SHE HAS

> MORE THINGS GOING ON THEN THINKS SHE IS ADDICTED TO HER TRAMADOL!

> LOL SO WHAT IF SHE IS, SHE HAS BEEN THROUGH H--LL BUT KEEPS

> TRUDGING ALONG ALOT OF POSITIVE ATTITUDE. I WORRY TO MUCH.

> GOOD LUCK FINDING YOUR RELIEF. SHARON

>

> idisnotok wrote: i read fibro pain is not

> inflammatory pain, and i know different meds

> work different for everyone, but the pain meds that help some of us,

> are they just those one's like vicodin,valium,controlled substances

> which docs do not like writing rxs for?

> or what meds have seemed to help some here?

> i will need to ask my doc next time i go in for something.

> magnesium and calcium just aren't helping with sleep as much as i need

> and i can tell pain is getting worse.

> thanks,

> marg

>

>

[Guest guest]

I am not a drug addict. But I would rather be a drug addict than to go through

life in horrendous pain. I don't see the harm in taking narcotics for pain

provided you take them as prescribed and don't overdo it. I get almost sick of

other people worrying that someone else is a " drug addict " because they are on

prescription medication for REAL pain. It all boils down to the fact they just

don't believe us. If they did believe us, they would not hesitate to prescribe

medication to relieve this pain and help us function.

love and hugs,

Debra V.

sharon studley wrote:

AS YOU'LL READ ALOT OF PEOPLE ARE ON NARCOTICS, SOME FIND PAIN RELIEF

WITH OTHERS LIKE MX, WHICH USUALLY RHUEMO PRESCRIBES, OTHERS HAVE USED PREDISONE

WHICH THEY CLAIM TO WORK REMARKABLE, I MYSELF HAD BAD SIDE EFFECTS FROM MOST OF

THE NON NARCOTICS AND HAVE HAD TO USE VICODIN, THERE HAS BEEN NO OTHER CHOICE,

ALOT OF DR.'S DON'T BELIEVE IN GIVING US PAIN MEDS, AS THEY SAY FIBRO PATIENTS

SHOULD NOT BE ON THEM, ???? THAT IS THE ONLY THING THEY SAY. I HAVE A GREAT TEAM

OF DR;S WHO HAVE WORKED WITH ME CLOSELY AND IN MY BEST INTEREST AND BELIEVES I

SHOULD NOT BE IN THIS AMT. OF PAIN ALL THESE YRS. 4 YRS THIS TIME AROUND. THERE

IS ALSO LIBODERM PATCHES, AND ULTRAM WHICH ARE NON NARCOTIC,AND SUPPOSE TO BE

NON ADDICTIVE, BUT MY MOM WHO IS 78 STILL WORKS THRU ALL HER PAIN, AND SHE HAS

MORE THINGS GOING ON THEN THINKS SHE IS ADDICTED TO HER TRAMADOL! LOL SO WHAT IF

SHE IS, SHE HAS BEEN THROUGH H--LL BUT KEEPS TRUDGING ALONG ALOT OF POSITIVE

ATTITUDE. I WORRY TO MUCH.

GOOD LUCK FINDING YOUR RELIEF. SHARON

idisnotok wrote: i read fibro pain is not inflammatory

pain, and i know different meds

work different for everyone, but the pain meds that help some of us,

are they just those one's like vicodin,valium,controlled substances

which docs do not like writing rxs for?

or what meds have seemed to help some here?

i will need to ask my doc next time i go in for something.

magnesium and calcium just aren't helping with sleep as much as i need

and i can tell pain is getting worse.

thanks,

marg

[Guest guest]

thanks sharon, i figured, but what is MX?

marg

>

> AS YOU'LL READ ALOT OF PEOPLE ARE ON NARCOTICS, SOME FIND PAIN

RELIEF WITH OTHERS LIKE MX, WHICH USUALLY RHUEMO PRESCRIBES, OTHERS

HAVE USED PREDISONE WHICH THEY CLAIM TO WORK REMARKABLE, I MYSELF HAD

BAD SIDE EFFECTS FROM MOST OF THE NON NARCOTICS AND HAVE HAD TO USE

VICODIN, THERE HAS BEEN NO OTHER CHOICE, ALOT OF DR.'S DON'T BELIEVE

IN GIVING US PAIN MEDS, AS THEY SAY FIBRO PATIENTS SHOULD NOT BE ON

THEM, ???? THAT IS THE ONLY THING THEY SAY. I HAVE A GREAT TEAM OF

DR;S WHO HAVE WORKED WITH ME CLOSELY AND IN MY BEST INTEREST

[Guest guest]

thanks debra v,

the pain management issue is in the news alot, for the same reasons,

and i do think since docs get audited on all the rxs they write, they

have to watch doses and everything. but the issue in the news is also

for lack of pain management in like cancer patients, als, other

diseases and illnesses. i couldn't imagine having the kind of pain

from cancer and not getting relief!

i agree if we have constant pain then we should get constant med for

the pain.

take care,

marg

>

> I am not a drug addict. But I would rather be a drug addict than

to go through life in horrendous pain. I don't see the harm in

taking narcotics for pain provided you take them as prescribed and

don't overdo it. I get almost sick of other people worrying that

someone else is a " drug addict " because they are on prescription

medication for REAL pain. It all boils down to the fact they just

don't believe us. If they did believe us, they would not hesitate to

prescribe medication to relieve this pain and help us function.

> love and hugs,

> Debra V.

[Guest guest]

I agree 100% debra. If being in no pain means being addicted to

something then WHO CARES!! At least the pain is gone!!

N.

[Guest guest]

>

> I am not a drug addict. But I would rather be a drug addict than

to go through life in horrendous pain. I don't see the harm in

taking narcotics for pain provided you take them as prescribed and

don't overdo it. I get almost sick of other people worrying that

someone else is a " drug addict " because they are on prescription

medication for REAL pain. It all boils down to the fact they just

don't believe us. If they did believe us, they would not hesitate to

prescribe medication to relieve this pain and help us function.

> love and hugs,

> Debra V.

>

>

> I have to agree with Debra about taking pain meds. If I am having a

really bad flare and am out of percocet, I call my doctor and my

husband goes to her office on his lunch hour. I even had one doctor

who was very aware of the severity of my pain, how carefully I take

it and BELIEVE IT OR NOT! since their office would be closed before

my husband or I could reach the office, the doctor wrote the

prescription, put it in an envelop with my name on it and my husband

picked it up as soon as he could get there!!!! Talk about a doctor

who believes their patients. But usually either my present doctor or

the one I saw prior to switching back (that was because of a conflict

w/another doctor in office not present doc.) to the one I see now,

they know when I call or ask for pain meds that they can check to see

when they last wrote a script and that 60 pills can last me a year at

times or, as is the case now, I am taking only 1/2 of what ever

strenght I have and since one day last week, when I was in the worst

flare I had had in years, she wrote a script for 30 pills, I don't

remember if I took a whole one or if I started on 1/2 and then

increased the dosage. But I have not needed any since last

Saturday. I think I was having a flare because I seemed to

instinctively know that my very dearest friend was dying and a big

part of my was going with her --- it is strange her middle sister and

by brother, who was killed when they were in the first grade, must

have been very close; so while I have this image of the three of them

together sharing good times and laughs, I want to send Kasey an

email, call her or write a letter and then it hits me that I cannot

do that!

So, if your doc will write you a script and monitors you so that

he/she knows you are not abusing the medicine, I would think they

should write it. But I am also someone who, when this first start

back in 1977 or 78, and had the second flare a year later, after

spending the day going from department to department in a major

hospital, I was told I could take up to 24 asprin a day! (I think I

have a cast iron stomach as I started on asprin as a child --- loved

the flavor of 's orange flavored aspirin.

Good luck! And no one but you, your doctor and the pharmacist needs

to know what you take. WE ARE NOT DRUG ADDICTS --- I CERTAINLY NEVER

EVEN THOUGHT OF THAT UNTIL I STARTED READING THE POSTS ON THIS GROUP

MORE THAN A YEAR AGO. IT'S JUST PART OF WHO I AM!

GOOD LUCK,

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

[Guest guest]

thanks mary and everyone else for the info,

i wrote the names down and will just ask my doc(s) to try really low

doses, mainly for sleep, and see what works for me.

i think most of us agree that we wouldn't swlaoow any of these pills

unless we absolutely have to in order to funtion.

take care,

marg

[Guest guest]

>

> thanks debra v,

> the pain management issue is in the news alot, for the same

reasons,

> and i do think since docs get audited on all the rxs they write,

they

> have to watch doses and everything. but the issue in the news is

also

> for lack of pain management in like cancer patients, als, other

> diseases and illnesses. i couldn't imagine having the kind of pain

> from cancer and not getting relief!

>

> i agree if we have constant pain then we should get constant med

for

> the pain.

> take care,

> marg

>

> One thing I believe about the docs and the regulators, is that it

also depends on which state is doing the drug enforcement!!! One

example is one of the Carolina's and another is PA. I also firmly

believe that some individuals will complain about a doc, the doc gets

investigage (and some psuedo patient goes in with a problem and gets

the meds.) Now, I realize this is a very personal view and one that

is somewhat based on personal experience, but I remember back in the

days before I had cable and watched 60 minutes what was happening in

one of the Carolinas. And most of the patients who were getting the

pain meds had severe back injuries.

But the same situation happened with ob/gyn's leaving certain areas

because of the increase in mal-practice suits over problem

deliveries, etc. And in both situations, before the rise of the

trial lawyers going after the drug companies and docs; there was very

little of this. For God's sake, doctors at one time could write

scrips for morphine and coccaine.

I am not saying that I would necessarily take any of the drugs I have

mentioned --- I always liked one of my sister's excuses (or so she

told me?) was that her mine was messed up enough that she didn't need

any " dope " to perhaps make it worse.

But some of the regulations may well have been generated when the

Department of Alcohol, Tobacco and Firearms was no longer needed to

catch the moonshiners!!! How else were those guys going to keep jobs

if they didn't have someone to go after????

By the way, I was checking for doctors in the area where we are

moving to in June. Was I shocked to read that one doctor whom I know

had had several lawsuits filed against him as well as complaints, was

still given a " clean bill " of health regarding his ability to

practice medicine. He retired just before one group was about to go

after him but what I found interesting was how many years he had been

practicing medicine --- 54 years!!!!! If you walked into his office

and told him you thought you had this, that's what he treated you

for!!!

He was a good doctor back in those early days, or perhaps it was just

that my father's boss insisted that his employees were sent to a

specialist if a problem continued to recur.

I will get down off my soap box now. Can't say how long I will stay

off of it, though.

[Guest guest]

hi mary,

ineresting, yeh, it all does contribute to job security for some.

how does one look up lawsuits and stuff against docs?

i do agree that whatever meds, we should be able to try or use, as

long as not abusing. heck, the morphine is used for end of life

cancer patient pain, i guess we only have that to look forward to?

sad.

marg

moving to in June. Was I shocked to read that one doctor whom I

know

> had had several lawsuits filed against him as well as complaints,

was

> still given a " clean bill " of health regarding his ability to

> practice medicine. He retired just before one group was about to

go

> after him but what I found interesting was how many years he had

been

> practicing medicine --- 54 years!!!!! If you walked into his

office

> and told him you thought you had this, that's what he treated you

> for!!!

> He was a good doctor back in those early days, or perhaps it was

just

> that my father's boss insisted that his employees were sent to a

> specialist if a problem continued to recur.

> I will get down off my soap box now. Can't say how long I will

stay

> off of it, though.

>

>

[Guest guest]

I would rather give one drug addict a " free day's " meds than deny 100 seriously

in pain patients " nothing " from fear of getting it wrong.

At the end of the day who is damaged by the pain meds, you or the person who

takes them ?

I think most of us are responsible consciouscienous people who take what they

need and LEAVE the rest. THose that take and take and take, well there are two

types of drug addict, reformed and DEAD, there are no OLD DRUG addicts in this

world.

THere is always choice.

Re: what pain meds help? DIFFERENT FOR ALL

>

> thanks debra v,

> the pain management issue is in the news alot, for the same

reasons,

> and i do think since docs get audited on all the rxs they write,

they

> have to watch doses and everything. but the issue in the news is

also

> for lack of pain management in like cancer patients, als, other

> diseases and illnesses. i couldn't imagine having the kind of pain

> from cancer and not getting relief!

>

> i agree if we have constant pain then we should get constant med

for

> the pain.

> take care,

> marg

>

> One thing I believe about the docs and the regulators, is that it

also depends on which state is doing the drug enforcement!!! One

example is one of the Carolina's and another is PA. I also firmly

believe that some individuals will complain about a doc, the doc gets

investigage (and some psuedo patient goes in with a problem and gets

the meds.) Now, I realize this is a very personal view and one that

is somewhat based on personal experience, but I remember back in the

days before I had cable and watched 60 minutes what was happening in

one of the Carolinas. And most of the patients who were getting the

pain meds had severe back injuries.

But the same situation happened with ob/gyn's leaving certain areas

because of the increase in mal-practice suits over problem

deliveries, etc. And in both situations, before the rise of the

trial lawyers going after the drug companies and docs; there was very

little of this. For God's sake, doctors at one time could write

scrips for morphine and coccaine.

I am not saying that I would necessarily take any of the drugs I have

mentioned --- I always liked one of my sister's excuses (or so she

told me?) was that her mine was messed up enough that she didn't need

any " dope " to perhaps make it worse.

But some of the regulations may well have been generated when the

Department of Alcohol, Tobacco and Firearms was no longer needed to

catch the moonshiners!!! How else were those guys going to keep jobs

if they didn't have someone to go after????

By the way, I was checking for doctors in the area where we are

moving to in June. Was I shocked to read that one doctor whom I know

had had several lawsuits filed against him as well as complaints, was

still given a " clean bill " of health regarding his ability to

practice medicine. He retired just before one group was about to go

after him but what I found interesting was how many years he had been

practicing medicine --- 54 years!!!!! If you walked into his office

and told him you thought you had this, that's what he treated you

for!!!

He was a good doctor back in those early days, or perhaps it was just

that my father's boss insisted that his employees were sent to a

specialist if a problem continued to recur.

I will get down off my soap box now. Can't say how long I will stay

off of it, though.

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

>

> hi mary,

> ineresting, yeh, it all does contribute to job security for some.

> how does one look up lawsuits and stuff against docs?

> i do agree that whatever meds, we should be able to try or use, as

> long as not abusing. heck, the morphine is used for end of life

> cancer patient pain, i guess we only have that to look forward to?

> sad.

> marg

>

> I am not certain how you looks up to see lawsuits, I was just was

looking for doctors in the area we are moving back to and discovered

that they listed info on whether someone had lawsuits, etc. Now I am

not certain who did the rating on that list and how up to date it

was. And I KNOW that when that particular doc announced he was

retiring, the only hospital in the county had a HUGE retirement party

for him!!! But at the same time, I think there are state data bases

that you might be able to access. (I know too much to say what I

have seen on some doctors --- information can be a dangerous thing!)

[Guest guest]

I don't respond well to narcotics. Let's just say I don't like the way

they make me feel. They may make me panic and feel weird, and even

hallucinate. Plus hydrocodone doesn't do much for my fibro, but it did

wonders when I had wisdom teeth out and had a dry socket. Nothing like

it for my dental pain.

For my fibro pain, low pain days are remedied (for me) by taking two OTC

aleve.

Bad flare days I take a prescription aleve - aka Naproxen. I don't know

why it seems to work so well for me but I don't know what I'd do without it.

sharon studley wrote:

> AS YOU'LL READ ALOT OF PEOPLE ARE ON NARCOTICS, SOME FIND PAIN RELIEF WITH

OTHERS LIKE MX, WHICH USUALLY RHUEMO PRESCRIBES, OTHERS HAVE USED PREDISONE

WHICH THEY CLAIM TO WORK REMARKABLE, I MYSELF HAD BAD SIDE EFFECTS FROM MOST OF

THE NON NARCOTICS AND HAVE HAD TO USE VICODIN, THERE HAS BEEN NO OTHER CHOICE,

ALOT OF DR.'S DON'T BELIEVE IN GIVING US PAIN MEDS, AS THEY SAY FIBRO PATIENTS

SHOULD NOT BE ON THEM, ???? THAT IS THE ONLY THING THEY SAY. I HAVE A GREAT

TEAM OF DR;S WHO HAVE WORKED WITH ME CLOSELY AND IN MY BEST INTEREST AND

BELIEVES I SHOULD NOT BE IN THIS AMT. OF PAIN ALL THESE YRS. 4 YRS THIS TIME

AROUND. THERE IS ALSO LIBODERM PATCHES, AND ULTRAM WHICH ARE NON NARCOTIC,AND

SUPPOSE TO BE NON ADDICTIVE, BUT MY MOM WHO IS 78 STILL WORKS THRU ALL HER PAIN,

AND SHE HAS MORE THINGS GOING ON THEN THINKS SHE IS ADDICTED TO HER TRAMADOL!

LOL SO WHAT IF SHE IS, SHE HAS BEEN THROUGH H--LL BUT KEEPS TRUDGING ALONG ALOT

OF POSITIVE ATTITUDE. I WORRY TO MUCH.

> GOOD LUCK FINDING YOUR RELIEF. SHARON

>

> idisnotok wrote: i read fibro pain is not

inflammatory pain, and i know different meds

> work different for everyone, but the pain meds that help some of us,

> are they just those one's like vicodin,valium,controlled substances

> which docs do not like writing rxs for?

> or what meds have seemed to help some here?

> i will need to ask my doc next time i go in for something.

> magnesium and calcium just aren't helping with sleep as much as i need

> and i can tell pain is getting worse.

> thanks,

> marg

>

>

>

>

>

>

>

>

[Guest guest]

i read fibro pain is not

inflammatory pain, and i know different meds

> work different for everyone, but the pain meds that help some of

us,

> are they just those one's like vicodin,valium,controlled substances

> which docs do not like writing rxs for?

> or what meds have seemed to help some here?

> i will need to ask my doc next time i go in for something.

> magnesium and calcium just aren't helping with sleep as much as i

need

> and i can tell pain is getting worse.

> thanks,

> marg

>

>

[Guest guest]

---, debra van ness wrote:

>

> I am not a drug addict. But I would rather be a drug addict than

to go through life in horrendous pain. I don't see the harm in

taking narcotics for pain provided you take them as prescribed and

don't overdo it.

> love and hugs,

> Debra V.

>

> > > idisnotok wrote: i read fibro pain is not

inflammatory pain, and i know different meds

> work different for everyone, but the pain meds that help some of

us,

> are they just those one's like vicodin,valium,controlled substances

> which docs do not like writing rxs for?

> or what meds have seemed to help some here?

> i will need to ask my doc next time i go in for something.

> magnesium and calcium just aren't helping with sleep as much as i

need

> and i can tell pain is getting worse.

> thanks,

> marg

>

>

[Guest guest]

You know, before I was dx'd with FM, I would have low back pain and

spasms that I attributed to gaining weight, doing too much, etc. etc.

Flexeril worked on those times and a few times, when the spasm was

big enough for the doctor to see, a shot of cortisone (yeah, taking

chances there, but what isn't a chance anymore?). Anyhow, when I went

to the doctor's just prior to being dx'd by rheum, I mentioned I was

having to take 2 flexeril to take the edge off the spasms; that's

when I was switched to Robaxin, given Naproxen for the inflammation

for my pleurisy (due to bronchitis) and if it was really bad,

Darvocet.

Since being dx'd, I take the Lyrica and ONLY if I am having some

breakthrough pain do I take any of the other 3 pills. Like the night

my knees were flaring (I could have cheerfully found DH's chainsaw

and cut my legs off...lol), then I grabbed a darvocet, only it didn't

really help. I try to " read " my body and determine if the

breakthrough pain is due to inflammation (I am holding fluids due to

some lower extremity blockages that are getting checked out) so I can

take a Naproxen, if they it is due to spasms so I can take a Robaxin

or if it is due to pain, in which case I will take a darvocet.

The challenge for me is I have a set of 8 yr old twins who are

special needs. They do not need to always see mommy sleeping and

unfortunately, are not as adept at watching out for themselves as my

bio sons were at that age (they could be counted on to do what they

were told, these two? well, its a crapshoot a lot of days...lol).

Anyhow, I don't feel I am abusing the meds in any way shape or form.

I am not getting the scripts filled monthly, just using them as

needed, just like the bottle says!

My 2 cents here in Georgia, where the left hip woke me up this

morning! Yippee....

Darlene

[Guest guest]

said, " Ok, we have this fairly sizeable group of people from all over the

US and in several European countries, why aren't we marching as they do for

cancer patients to raise awareness and raise money for more

studies??? "

LOL! , some of us could barely walk a block, if even that!! I understand

what you're saying, a national rally or something would be great. But there is

a National Fibromyalgia Awareness Day, I believe in April. I think the media

will probably give it more attention this year because of the Lyrica

commercials. I want to get/wear purple ribbons rather than the wrist bands.

Of course, I don't go out in public much, but my mom and sister would probably

wear one for me, and my girls and DH, too.

Guess that's enough rambling for now.

Jeanne in WI

[Guest guest]

Well,

Actually Fibro Awareness day is in May. The butterfly is the symbol for fibro.

In RI, Dr Rafal a Fibro specialist in North field plans a conference. I

haven't looked where it is going to be yet. I haven't been able to attend one

but I hope I will.

---- Jeanne and Dave wrote:

> said, " Ok, we have this fairly sizeable group of people from all over

the US and in several European countries, why aren't we marching as they do for

cancer patients to raise awareness and raise money for more

> studies??? "

>

> LOL! , some of us could barely walk a block, if even that!! I understand

what you're saying, a national rally or something would be great. But there is

a National Fibromyalgia Awareness Day, I believe in April. I think the media

will probably give it more attention this year because of the Lyrica

commercials. I want to get/wear purple ribbons rather than the wrist bands.

> Of course, I don't go out in public much, but my mom and sister would probably

wear one for me, and my girls and DH, too.

> Guess that's enough rambling for now.

> Jeanne in WI

>

>

[Guest guest]

Make sure you let me know if you find out. I'd be interested in seeing what

he has to say.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of

loveit1@...

Sent: Saturday, February 16, 2008 12:23 PM

To: Fibromyalgia_Support_Group

Cc: Jeanne and Dave

Subject: Re: what pain meds help? DIFFERENT FOR ALL

Well,

Actually Fibro Awareness day is in May. The butterfly is the symbol for

fibro. In RI, Dr Rafal a Fibro specialist in North field plans a

conference. I haven't looked where it is going to be yet. I haven't been

able to attend one but I hope I will.

---- Jeanne and Dave <djgraves9497@ <mailto:djgraves9497%40sbcglobal.net>

sbcglobal.net> wrote:

> said, " Ok, we have this fairly sizeable group of people from all

over the US and in several European countries, why aren't we marching as

they do for cancer patients to raise awareness and raise money for more

> studies??? "

>

> LOL! , some of us could barely walk a block, if even that!! I

understand what you're saying, a national rally or something would be great.

But there is a National Fibromyalgia Awareness Day, I believe in April. I

think the media will probably give it more attention this year because of

the Lyrica commercials. I want to get/wear purple ribbons rather than the

wrist bands.

> Of course, I don't go out in public much, but my mom and sister would

probably wear one for me, and my girls and DH, too.

> Guess that's enough rambling for now.

> Jeanne in WI

>

>

[Guest guest]

Hey Tigger,

How are you?

This is our anniversary week.Wednesday was our 22yr anniversary of our common

law marriage. We spent it in the ER. My husband came home from work with his

blood sugar over 600. When we got there we needed a wheel chair for my husband

because he could walk and was out of it.The pain in my lower back and right hip

was so bad , I was having difficulty standing and getting out of the car. The

security guard insisted I grt in the wheel chair. They brought another one for

my husband. Because I couldn't support myself or push my foot they did an mri.

they saw some arthritis but nothing that needed surgery. they gave me roboxin

and pregocet. It helps bring the pain down to a 10 for about an hour. They have

no clue whymy husband was having crazy numbers. On Thursday, Valentines day He

was back at the er. they gave hime some insulineand sent him home. On Friday he

was at work and his numbers were over 400 even giving himselve short acting

insulin every 2 hrs.

his dr sent him back to the er. they gave him a shot of long acting insulin and

sent him to a covering dr on sat at his dr office.he now has lots of insulin and

has to talk to her tomarrow am. he sees her again on wednesday. In the mean time

I'm getting worse again because I'm not resting. Tomarrow opps today Sunday is

our second anniversary. Well the third one will be better.

JudyMer

---- Tigger wrote:

> Make sure you let me know if you find out. I'd be interested in seeing what

> he has to say.

>

>

>

> Tigger (Ruth) in Rhode Island

>

>

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of

> loveit1@...

> Sent: Saturday, February 16, 2008 12:23 PM

> To: Fibromyalgia_Support_Group

> Cc: Jeanne and Dave

> Subject: Re: what pain meds help? DIFFERENT FOR ALL

>

>

>

> Well,

> Actually Fibro Awareness day is in May. The butterfly is the symbol for

> fibro. In RI, Dr Rafal a Fibro specialist in North field plans a

> conference. I haven't looked where it is going to be yet. I haven't been

> able to attend one but I hope I will.

> ---- Jeanne and Dave <djgraves9497@ <mailto:djgraves9497%40sbcglobal.net>

> sbcglobal.net> wrote:

> > said, " Ok, we have this fairly sizeable group of people from all

> over the US and in several European countries, why aren't we marching as

> they do for cancer patients to raise awareness and raise money for more

> > studies??? "

> >

> > LOL! , some of us could barely walk a block, if even that!! I

> understand what you're saying, a national rally or something would be great.

> But there is a National Fibromyalgia Awareness Day, I believe in April. I

> think the media will probably give it more attention this year because of

> the Lyrica commercials. I want to get/wear purple ribbons rather than the

> wrist bands.

> > Of course, I don't go out in public much, but my mom and sister would

> probably wear one for me, and my girls and DH, too.

> > Guess that's enough rambling for now.

> > Jeanne in WI

> >

> >

[Guest guest]

Hi Judy,

I'm sorry you've had such a tough anniversary week. It sounds like both you

and your husband were in bad shape. So much so that they put you in a wheel

chair first. At least they gave you something for the pain and could actually

see what the pain did to you. I wish they had given you en ought Percocet to

last a while, if that works for you. I saw you said that it brought your pain

down to a 10. I'm sorry that's as far down as you pain went.

You husband is really roller coasting with the blood sugar. It's good that he

is seeing the doctor and that he has short term insulin with him, but those

numbers are really high. Was he taking insulin before on a regular basis?

I wish this anniversary could have been better, but like you said there's

always next year.

Take care of yourself, isn't it nice to have sun for a while, even though it's

so cold.

Marti

loveit1@... wrote:

Hey Tigger,

How are you?

This is our anniversary week.Wednesday was our 22yr anniversary of our common

law marriage. We spent it in the ER. My husband came home from work with his

blood sugar over 600. When we got there we needed a wheel chair for my husband

because he could walk and was out of it.The pain in my lower back and right hip

was so bad , I was having difficulty standing and getting out of the car. The

security guard insisted I grt in the wheel chair. They brought another one for

my husband. Because I couldn't support myself or push my foot they did an mri.

they saw some arthritis but nothing that needed surgery. they gave me roboxin

and pregocet. It helps bring the pain down to a 10 for about an hour. They have

no clue whymy husband was having crazy numbers. On Thursday, Valentines day He

was back at the er. they gave hime some insulineand sent him home. On Friday he

was at work and his numbers were over 400 even giving himselve short acting

insulin every 2 hrs.

his dr sent him back to the er. they gave him a shot of long acting insulin and

sent him to a covering dr on sat at his dr office.he now has lots of insulin and

has to talk to her tomarrow am. he sees her again on wednesday. In the mean time

I'm getting worse again because I'm not resting. Tomarrow opps today Sunday is

our second anniversary. Well the third one will be better.

JudyMer

---- Tigger wrote:

> Make sure you let me know if you find out. I'd be interested in seeing what

> he has to say.

>

>

>

> Tigger (Ruth) in Rhode Island

>

>

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of

> loveit1@...

> Sent: Saturday, February 16, 2008 12:23 PM

> To: Fibromyalgia_Support_Group

> Cc: Jeanne and Dave

> Subject: Re: what pain meds help? DIFFERENT FOR ALL

>

>

>

> Well,

> Actually Fibro Awareness day is in May. The butterfly is the symbol for

> fibro. In RI, Dr Rafal a Fibro specialist in North field plans a

> conference. I haven't looked where it is going to be yet. I haven't been

> able to attend one but I hope I will.

> ---- Jeanne and Dave <djgraves9497@ <mailto:djgraves9497%40sbcglobal.net>

> sbcglobal.net> wrote:

> > said, " Ok, we have this fairly sizeable group of people from all

> over the US and in several European countries, why aren't we marching as

> they do for cancer patients to raise awareness and raise money for more

> > studies??? "

> >

> > LOL! , some of us could barely walk a block, if even that!! I

> understand what you're saying, a national rally or something would be great.

> But there is a National Fibromyalgia Awareness Day, I believe in April. I

> think the media will probably give it more attention this year because of

> the Lyrica commercials. I want to get/wear purple ribbons rather than the

> wrist bands.

> > Of course, I don't go out in public much, but my mom and sister would

> probably wear one for me, and my girls and DH, too.

> > Guess that's enough rambling for now.

> > Jeanne in WI

> >

> >