PSC and Chronic Kidney Disease (Stage 3)

[Guest guest]

Deb,

In the last couple of years I've been made aware that I have bilateral cysts in my kidneys. One is now about 6 cm. I go through spells where they ache, but they especially hurt when I'm having a cholangitis flare up. So far, no "disease" per se diagnosed, but still worrisome.

Jeff

Hello to all.Has anyone in the group been diagnosed with any kidney disease since your PSC was discovered? I was recently found to have kidney problems and now am being treated with iron infusion and Procrit injections due to my severe anemia--oral iron does not correct the problem. Any response will be gratly appreciated.Deb

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[Guest guest]

Hello to all.

Has anyone in the group been diagnosed with any kidney disease since

your PSC was discovered? I was recently found to have kidney problems

and now am being treated with iron infusion and Procrit injections due

to my severe anemia--oral iron does not correct the problem. Any

response will be gratly appreciated.

Deb

[Guest guest]

As a nurse I know that kidney function is affected by how your liver is working or not working. Since you said kidney disease, you may have a different disease process going on within your kidnys. If the kidney issue is bacause of the liver not working correctly, often when the liver is replaced and fuctioning correctly than the kidneys recover their functions too.

PSC and Chronic Kidney Disease (Stage 3)

Hello to all.Has anyone in the group been diagnosed with any kidney disease since your PSC was discovered? I was recently found to have kidney problems and now am being treated with iron infusion and Procrit injections due to my severe anemia--oral iron does not correct the problem. Any response will be gratly appreciated.Deb

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[Guest guest]

5 months ago my adrenal glands stopped working. Does that count?

>

> As a nurse I know that kidney function is affected by how your liver

is working or not working. Since you said kidney disease, you may have

a different disease process going on within your kidnys. If the

kidney issue is bacause of the liver not working correctly, often when

the liver is replaced and fuctioning correctly than the kidneys

recover their functions too.

>

>

>

> PSC and Chronic Kidney Disease (Stage 3)

>

> Hello to all.

>

> Has anyone in the group been diagnosed with any kidney disease since

> your PSC was discovered? I was recently found to have kidney problems

> and now am being treated with iron infusion and Procrit injections due

> to my severe anemia--oral iron does not correct the problem. Any

> response will be gratly appreciated.

>

> Deb

>

>

>

>

> __________________________________________________

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