Re: No more hope-- ENERGY TRANSFER

[Guest guest]

It saddens me to read that someone or many feel there is no hope! If

there were no hope, my friend who lost a 10 year battle with cancer,

would not have continued to do the travelling and other things she

enjoyed so much during those years. I know that at times since she

called and told me that she was at end stage, I really wasn't ready

(and probably never would have been ready) to say goodbye. I do hope

she got a letter I wrote telling her how much I loved her, how much I

enjoyed her friendship, etc. But at the same time, for the past

week, I would really rather be where she is -- and we could be

spending time with her sister, my brother and others who have gone

before us. But the way she lived those years are a major testimony

to me of how someone who pretty much knows that when they are

diagnosed with cancer, it could be fatal. My aunt is a 21 year

survivor, Kasey's other sister is a 15 to 20 year survivor, my mother

grieved for the rest of her life after my brother was killed, but as

she angrily told me one day, she had two babies to take care of.

But I will say that last week was very strange for me. Wednesday

night I had a dream about Kasey's sister Nina, she was in heaven and

having a wonderful time, it seemed to be such a wonderful place to

be. Thursday night/Friday morning, I had a dream about Kasey and I

felt good mentally. But when I had awoken on Thursday morning after

dreaming of Nina, I had the worst flare I had had in months, if not

more than a year! I can't say if that was from the grief I would be

faced with on Friday morning when Kasey's sister left me a message or

if it was caused by something else. But I do have plans that I still

want to do. Between mine and Kasey's birthdays, I want to make what

might be called a pilgramage to the Grand Canyon in memory of Kasey

as that was the last trip she told me last spring she wanted to make

because she could no longer travel out of the US. Her husband said

he would go close but he would not go with her to the Canyon. So, I

want very much to go and toss some rosemary in remembrance of one of

the dearest friends I have known since we were babies in the nursey

in the church we grew up in.

And, I want to spend time getting to know my nieces better. There

are many things I would like to do --- my husband might tell you that

my behavior for the past few months don't indicated that, but I

trully do!

So, I hope that each of you can dig deep and find a reason for hope.

[Guest guest]

Hi , it's stories like this that give me hope. My friend's 11 year

old daughter had to have a heart transplant over Christmas. It was

sudden and she got sick so fast, was given a grim diagnosis, but then

Christmas day they got word that they found her a heart. She had her

surgery on the 26th and then was ready to go home by December 30. I

look at this child and feel like my life is a blessing and so easy

compared. I have friends and family who are cancer survivors and

fighters.

Winter time is rough for the fibro, and it seemed to hit me really hard

that week. Most days I smile, but that day I cried. I don't have many

like that, just one every now and then when it just overwhelms me. I am

lucky to have my family, friends, my faith, and my fibro support group.

Melody

wrote:

> It saddens me to read that someone or many feel there is no hope! If

> there were no hope, my friend who lost a 10 year battle with cancer,

> would not have continued to do the travelling and other things she

> enjoyed so much during those years. I know that at times since she

> called and told me that she was at end stage, I really wasn't ready

> (and probably never would have been ready) to say goodbye. I do hope

> she got a letter I wrote telling her how much I loved her, how much I

> enjoyed her friendship, etc. But at the same time, for the past

> week, I would really rather be where she is -- and we could be

> spending time with her sister, my brother and others who have gone

> before us. But the way she lived those years are a major testimony

> to me of how someone who pretty much knows that when they are

> diagnosed with cancer, it could be fatal. My aunt is a 21 year

> survivor, Kasey's other sister is a 15 to 20 year survivor, my mother

> grieved for the rest of her life after my brother was killed, but as

> she angrily told me one day, she had two babies to take care of.

> But I will say that last week was very strange for me. Wednesday

> night I had a dream about Kasey's sister Nina, she was in heaven and

> having a wonderful time, it seemed to be such a wonderful place to

> be. Thursday night/Friday morning, I had a dream about Kasey and I

> felt good mentally. But when I had awoken on Thursday morning after

> dreaming of Nina, I had the worst flare I had had in months, if not

> more than a year! I can't say if that was from the grief I would be

> faced with on Friday morning when Kasey's sister left me a message or

> if it was caused by something else. But I do have plans that I still

> want to do. Between mine and Kasey's birthdays, I want to make what

> might be called a pilgramage to the Grand Canyon in memory of Kasey

> as that was the last trip she told me last spring she wanted to make

> because she could no longer travel out of the US. Her husband said

> he would go close but he would not go with her to the Canyon. So, I

> want very much to go and toss some rosemary in remembrance of one of

> the dearest friends I have known since we were babies in the nursey

> in the church we grew up in.

> And, I want to spend time getting to know my nieces better. There

> are many things I would like to do --- my husband might tell you that

> my behavior for the past few months don't indicated that, but I

> trully do!

> So, I hope that each of you can dig deep and find a reason for hope.

>

>

>

>

> 1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

>

> 3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

>