Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 It saddens me to read that someone or many feel there is no hope! If there were no hope, my friend who lost a 10 year battle with cancer, would not have continued to do the travelling and other things she enjoyed so much during those years. I know that at times since she called and told me that she was at end stage, I really wasn't ready (and probably never would have been ready) to say goodbye. I do hope she got a letter I wrote telling her how much I loved her, how much I enjoyed her friendship, etc. But at the same time, for the past week, I would really rather be where she is -- and we could be spending time with her sister, my brother and others who have gone before us. But the way she lived those years are a major testimony to me of how someone who pretty much knows that when they are diagnosed with cancer, it could be fatal. My aunt is a 21 year survivor, Kasey's other sister is a 15 to 20 year survivor, my mother grieved for the rest of her life after my brother was killed, but as she angrily told me one day, she had two babies to take care of. But I will say that last week was very strange for me. Wednesday night I had a dream about Kasey's sister Nina, she was in heaven and having a wonderful time, it seemed to be such a wonderful place to be. Thursday night/Friday morning, I had a dream about Kasey and I felt good mentally. But when I had awoken on Thursday morning after dreaming of Nina, I had the worst flare I had had in months, if not more than a year! I can't say if that was from the grief I would be faced with on Friday morning when Kasey's sister left me a message or if it was caused by something else. But I do have plans that I still want to do. Between mine and Kasey's birthdays, I want to make what might be called a pilgramage to the Grand Canyon in memory of Kasey as that was the last trip she told me last spring she wanted to make because she could no longer travel out of the US. Her husband said he would go close but he would not go with her to the Canyon. So, I want very much to go and toss some rosemary in remembrance of one of the dearest friends I have known since we were babies in the nursey in the church we grew up in. And, I want to spend time getting to know my nieces better. There are many things I would like to do --- my husband might tell you that my behavior for the past few months don't indicated that, but I trully do! So, I hope that each of you can dig deep and find a reason for hope. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Hi , it's stories like this that give me hope. My friend's 11 year old daughter had to have a heart transplant over Christmas. It was sudden and she got sick so fast, was given a grim diagnosis, but then Christmas day they got word that they found her a heart. She had her surgery on the 26th and then was ready to go home by December 30. I look at this child and feel like my life is a blessing and so easy compared. I have friends and family who are cancer survivors and fighters. Winter time is rough for the fibro, and it seemed to hit me really hard that week. Most days I smile, but that day I cried. I don't have many like that, just one every now and then when it just overwhelms me. I am lucky to have my family, friends, my faith, and my fibro support group. Melody wrote: > It saddens me to read that someone or many feel there is no hope! If > there were no hope, my friend who lost a 10 year battle with cancer, > would not have continued to do the travelling and other things she > enjoyed so much during those years. I know that at times since she > called and told me that she was at end stage, I really wasn't ready > (and probably never would have been ready) to say goodbye. I do hope > she got a letter I wrote telling her how much I loved her, how much I > enjoyed her friendship, etc. But at the same time, for the past > week, I would really rather be where she is -- and we could be > spending time with her sister, my brother and others who have gone > before us. But the way she lived those years are a major testimony > to me of how someone who pretty much knows that when they are > diagnosed with cancer, it could be fatal. My aunt is a 21 year > survivor, Kasey's other sister is a 15 to 20 year survivor, my mother > grieved for the rest of her life after my brother was killed, but as > she angrily told me one day, she had two babies to take care of. > But I will say that last week was very strange for me. Wednesday > night I had a dream about Kasey's sister Nina, she was in heaven and > having a wonderful time, it seemed to be such a wonderful place to > be. Thursday night/Friday morning, I had a dream about Kasey and I > felt good mentally. But when I had awoken on Thursday morning after > dreaming of Nina, I had the worst flare I had had in months, if not > more than a year! I can't say if that was from the grief I would be > faced with on Friday morning when Kasey's sister left me a message or > if it was caused by something else. But I do have plans that I still > want to do. Between mine and Kasey's birthdays, I want to make what > might be called a pilgramage to the Grand Canyon in memory of Kasey > as that was the last trip she told me last spring she wanted to make > because she could no longer travel out of the US. Her husband said > he would go close but he would not go with her to the Canyon. So, I > want very much to go and toss some rosemary in remembrance of one of > the dearest friends I have known since we were babies in the nursey > in the church we grew up in. > And, I want to spend time getting to know my nieces better. There > are many things I would like to do --- my husband might tell you that > my behavior for the past few months don't indicated that, but I > trully do! > So, I hope that each of you can dig deep and find a reason for hope. > > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. > > 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. > > 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
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