Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 I agree, cept our friends and family would have to do the walking, cause most of us can't. i think we should send letters to all the talk shows and get them to bring awareness out. Montel, Dr Phil, Tyra, to name a few. What do y'all think? Jeanne and Dave wrote: said, " Ok, we have this fairly sizeable group of people from all over the US and in several European countries, why aren't we marching as they do for cancer patients to raise awareness and raise money for more studies??? " LOL! , some of us could barely walk a block, if even that!! I understand what you're saying, a national rally or something would be great. But there is a National Fibromyalgia Awareness Day, I believe in April. I think the media will probably give it more attention this year because of the Lyrica commercials. I want to get/wear purple ribbons rather than the wrist bands. Of course, I don't go out in public much, but my mom and sister would probably wear one for me, and my girls and DH, too. Guess that's enough rambling for now. Jeanne in WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Please when you find out the dates of the awareness day..post it asap. Last I saw posted..was the butterfly pins, instead of the purple ribbons and wristbands. Let us all know please which. I haven't been diagnosed with FM, however..my pain is worse some days more than others. Mostly hip, leg..shoulders, and neck. Recently had a MRI done, and my neurologist hasn't yet contacted me about the results of it, I was told would be 7 to 10 days.. My regular physician has put me on Lyrica, and it seems to help, unlike neurotin, that made me more tired and un-motivated than I was before and sure didn't take away the pain. Oh, about the FM suspiciions..both my regular doc, and my neurologist have both said it probably is, but wanna make sure is not something more. God Bless and Be With all you Fibromites.and suspected ones too.. said, " Ok, we have this fairly sizeable group of people from all over the US and in several European countries, why aren't we marching as they do for cancer patients to raise awareness and raise money for more > studies??? " > > LOL! , some of us could barely walk a block, if even that!! I understand what you're saying, a national rally or something would be great. But there is a National Fibromyalgia Awareness Day, I believe in April. I think the media will probably give it more attention this year because of the Lyrica commercials. I want to get/wear purple ribbons rather than the wrist bands. > Of course, I don't go out in public much, but my mom and sister would probably wear one for me, and my girls and DH, too. > Guess that's enough rambling for now. > Jeanne in WI > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Yes, that would be great. Let's even go for Oprah. Somehow, I think Dr. Phil would make it seem like it is all in our heads. Jeanne in WI I agree, cept our friends and family would have to do the walking, cause most of us can't. i think we should send letters to all the talk shows and get them to bring awareness out. Montel, Dr Phil, Tyra, to name a few. What do y'all think? Quote Link to comment Share on other sites More sharing options...
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