Re: To Melody... Hope-- surgery- remission?

[Guest guest]

Melody- I am just getting through the overload of e-mails, as I had 2 good days

so did alot of catch up cleaning, have wood floors here, and don't mix for long

with all this snow/rain we have been getting. Anywat felt good and my mind was

in a good spot to so did what I could, and boom, back down again with bad pain

and barley walking. My husband has chewed me out again LOL he always catches me

doing things I really need to wait for his help with. I will learn, have

learned alot. But what I wanted to say to you on your ? about your sister had

surgery felt good then later went into probable fibro flare. I was told and

seems to hold true since I have had to many needed surgeries, is that most of

the time fibro will lay domant after surgery for sometime and can differ in each

person, as everything, for long periods of time, it depends on your nerve/brain

receptors, the fibro starts telling the body we have an injury when in all

reality, the injury is no longer present,

the surgery has been done maybe weeks, months or who knows how long ago, it

just starts sending signals that we are in pain from whatever the problem was

yet no longer exists. Weird but true. I had shoulder surgery on each side, and

did not get any fibro pain until 6 mo or so after. Yet I fell down and have yet

recovered and there is no injury anymore my body is hurting all over and that

was last month. Take

Care Sharon

Melody wrote: Hi Sharon,

I loved what you wrote! I'm always looking for new ways to manage this,

even if I found many things that my body seems to respond positively

to. I know I could always benefit from more or something else.

Do surgeries result in progression? I've never had surgery, sister has

had many all her life, one after another it seems. She wasn't so open

to fibro before and just this last year was kind of coming to terms with

it. Then she had a cancer scare with her thyroid and had surgery to

remove it. Her body seemed to go into a remission and she felt

'cured!' She said " it must have just been my fibro. " Then she emailed

me one day saying she was back in horrible awful pain and was now

realizing " I guess this is fibro afterall. "

I wonder why the temporary remission? I'm sure she'd love to know

anything anyone would like to share in that area.

sharon studley wrote:

> Just thought I would send my best to both of You after reading what u did for

each other. Also hope this add to the Hope we always have with this disease. I

because we all come from all different parts of the World, and different Dr's,

different pains, fatigues, or whatever else fibro dishes out. Though I have been

in a big big Flare-up day after day for 2 mo's now and have gone from just

starting with low back pain, and have now added almost every inch of me, I at my

most maddining, discouraging, frustrating times, know that there is a always the

reality that somewhere, someday, something I may have not tried yet that will

put my fibro back laying domnant most likely, but who cares, I will have days

again that I can get some independance back again, a day without pain again. Is

this not how we should be thinking? We need to me lucky it is not a terminal

thing we have been dealt that robs us from seeing our children, g.children or

whatever family we have. Keep

> seeking a new exercise, a new book, a new meditation that will lesson our

symptoms. I know alot of people swear by pool therapy, I myself wish I had

access that is the only thing I have not been able to try. I know both my

primary and Rhumie are in agreement we HAVE to totally illiminate STRESS,

WORRY,OVERDOING which took me for the longest time to figure out what that was,

well have found DON't try and hang 8 window curtains all in one day. lol

> Anyway don't try and predict what your in for because none of us know! melody

I am glad Deb was there with the right words for u. WHAT ELSE I HAVE BEEN TOLD

IS AVOID SURGERIES UNLESS ABSOLUTE MUST ANOTHER FOOD FOR FIBRO. TAKE CARE

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