Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hello again! I have this letter in my files and I wanted to share with you all. I'm not certain who wrote it - so If you happen to be in this group, I hope that you don't mind that I shared it. My Name is Fibromyalgia, and I'm YOUR Invisible Chronic Illness. I am now velcro'ed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can " get rid " of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who even BELIEVES I EXIST. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise more I will go away, told to think positive, poked, prodded, and MOST OF ALL, laughed at when you tell the doctor I am debilitating. Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a real disease. Some of they will say things like " Oh, you are just having a bad day " or " Well, remember, you can't do the things you use to do 20 YEARS ago " , not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a " Normal " person, and can't remember what you were going to say next! Eventually, most of them will be like all the doctors who say " It's All In Your Head " . In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 This is good! It was forwarded to me by a caring friend about a month ago and really is pretty accurate! Thanks for sharing. Melody mncjl wrote: > Hello again! I have this letter in my files and I wanted to share > with you all. I'm not certain who wrote it - so If you happen to be > in this group, I hope that you don't mind that I shared it. > > My Name is Fibromyalgia, and I'm YOUR Invisible Chronic Illness. I > am now velcro'ed to you for life. Others around you can't see me or > hear me, but YOUR body feels me. I can attack you anywhere and > anyhow I please. I can cause severe pain or, if I'm in a good mood, > I can just cause you to ache all over. Remember when you and Energy > ran around together and had fun? > > I took Energy from you, and gave you Exhaustion. Try to have fun > now! I also took Good Sleep from you and, in its place, gave you > Brain Fog. I can make you tremble internally or make you feel cold > or hot when everyone else feels normal. Oh, yeah, I can make you > feel anxious or depressed, too. If you have something planned, or > are looking forward to > a great day, I can take that away, too. > > You didn't ask for me. I chose you for various reasons: That virus > you had that you never recovered from, or that car accident, or > maybe it was the years of abuse and trauma. Well, anyway, I'm here > to stay! I hear you're going to see a doctor who can " get rid " of > me. I'm rolling on the floor, laughing. Just try. You will have to > go to many, many doctors until you find one who even BELIEVES I > EXIST. You will be put on pain pills, sleeping pills, > energy pills, told you are suffering from anxiety or depression, > given a TENs unit, get massaged, told if you just sleep and exercise > more I will go away, told to think positive, poked, prodded, and > MOST OF ALL, laughed at when you tell the doctor I am debilitating. > > Your family, friends and co-workers will all listen to you until > they just get tired of hearing about how I make you feel, and that > I'm a real disease. Some of they will say things like " Oh, you are > just having a bad day " or " Well, remember, you can't do the things > you use to do 20 YEARS ago " , not hearing that you said 20 DAYS ago. > Some will just start talking behind your back, while you slowly feel > that you are losing your dignity trying to make them understand, > especially when you are in the middle of a conversation with > a " Normal " person, and can't remember what you were going to say > next! Eventually, most of them will be like all the doctors who > say " It's All In Your Head " . > > In closing, (I was hoping that I kept this part a secret), but I > guess you already found out. . . the ONLY place you will get any > support and understanding in dealing with me is > with Other People With Fibromyalgia. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Being new to the Group & New to FM, I ABSOLUTELY LOVED this. Seriously!!! Thanks so much for sending this.... (Lansdale Pa) > Hello again! I have this letter in my files and I wanted to share > with you all. I'm not certain who wrote it - so If you happen to be > in this group, I hope that you don't mind that I shared it. > > My Name is Fibromyalgia, and I'm YOUR Invisible Chronic Illness. I > am now velcro'ed to you for life. Others around you can't see me or > hear me, but YOUR body feels me. I can attack you anywhere and > anyhow I please. I can cause severe pain or, if I'm in a good mood, > I can just cause you to ache all over. Remember when you and Energy > ran around together and had fun? > > I took Energy from you, and gave you Exhaustion. Try to have fun > now! I also took Good Sleep from you and, in its place, gave you > Brain Fog. I can make you tremble internally or make you feel cold > or hot when everyone else feels normal. Oh, yeah, I can make you > feel anxious or depressed, too. If you have something planned, or > are looking forward to > a great day, I can take that away, too. > > You didn't ask for me. I chose you for various reasons: That virus > you had that you never recovered from, or that car accident, or > maybe it was the years of abuse and trauma. Well, anyway, I'm here > to stay! I hear you're going to see a doctor who can " get rid " of > me. I'm rolling on the floor, laughing. Just try. You will have to > go to many, many doctors until you find one who even BELIEVES I > EXIST. You will be put on pain pills, sleeping pills, > energy pills, told you are suffering from anxiety or depression, > given a TENs unit, get massaged, told if you just sleep and exercise > more I will go away, told to think positive, poked, prodded, and > MOST OF ALL, laughed at when you tell the doctor I am debilitating. > > Your family, friends and co-workers will all listen to you until > they just get tired of hearing about how I make you feel, and that > I'm a real disease. Some of they will say things like " Oh, you are > just having a bad day " or " Well, remember, you can't do the things > you use to do 20 YEARS ago " , not hearing that you said 20 DAYS ago. > Some will just start talking behind your back, while you slowly feel > that you are losing your dignity trying to make them understand, > especially when you are in the middle of a conversation with > a " Normal " person, and can't remember what you were going to say > next! Eventually, most of them will be like all the doctors who > say " It's All In Your Head " . > > In closing, (I was hoping that I kept this part a secret), but I > guess you already found out. . . the ONLY place you will get any > support and understanding in dealing with me is > with Other People With Fibromyalgia. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 > Just wanted to say again, Thank you for posting this letter. I've never seen this before and it was PERFECT as it hit home 100% I just Sent a mass email to everyone i know with this letter. For almost all but a few, it will be the first time i will be telling them i have Fibro. I added a little to the end so it would match my Intro, in hopes it all would sink in just a little bit deeper... Here is what i sent them all: ~~~~~~~~~~~~~~~~~~~~~ Hello, I recently received a message that was addressed to me. It reminded me I need to have patience with my Friends & Family. It was not by Email or even the US Mail. But it came from inside me like a HOT poking Nail... Reminding me that your understanding is needed so you won’t flee... Since Healing starts at home which is all my Friends & Family.. Sincerely, Here is how it Went........................ Hello, My Name is Fibromyalgia, and I'm YOUR Invisible Chronic Illness. I am now velcro'ed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can " get rid " of me. I'm rolling on the floor, laughing historically. Just you try! You will have to go to many, many doctors until you find one who even BELIEVES I EXIST. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise more I will go away, told to think positive, poked, prodded, and MOST OF ALL, laughed at when you tell the doctor I am debilitating. Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a real disease. Some of they will say things like " Oh, you are just having a bad day " or " Well, remember, you can't do the things you use to do 20 YEARS ago " , not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a " Normal " person, and can't remember what you were going to say next! Eventually, most of them will be like all the doctors who say " It's All In Your Head " . In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia, you can only hope and pray that one day it can include your Friends & Family. Invisibly Yours, Fibromyalgia~ == Quote Link to comment Share on other sites More sharing options...
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