Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. We grieve what we once were, what we once dreamed of being and dreamed of doing in life. I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. I love you, Agape, Debra V. --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 I read this post and thought about it, I think that alot of the anger that I am feeling is what in the hell happened to my life, I honestly cannot remember being happy as a child, my father was a very successful businessman, everyone in town thought he was a wonderful man...they all knew he was an alcoholic, and that he had many affairs on my mother, he would hit my mother and me while he was drinking. He had his own private plane, his own business, a different car for each day for he and my mom. All of the kids I went to school with thought that I had the greatest life ever, they knew where their Dad was on the holidays...not me. Then my mom divorced him when I was 12 and she was pregnant with my little brother. Gosh I could finally invite friends to sleep over as I wasn't scared that my Dad would do something crazy. My brother was born and I was thrilled..He took his first steps the day Pres. Kennedy was killed. I will never forget. I forgot my own childrens first words or steps but not his. When I was 13 I started dating a guy that was a senior in high school, we dated thru his senior year and then he went into the Army and to Vietnam. He was so much different than my Dad, he was a true gentleman, we were children of the 60's!! I cared for him greatly and I stayed true for almost a year, then I wrote a Dear letter, now I wonder what in the hell I was thinking. I married a guy when I was 16, was about a month pregnant when I married, my daughter was born, then hell really happenened. He beat me and didn't have to be drinking. He held me hostage with a shotgun, and then it happenened. I went totally crazy, I left my daughter with his mother and said I would be back.It was 4 yrs before I did look back. Two more failed marriages, more partying and drinking than anyone should have lived thru. Finally I did some settling down to some extent and remarried and had a son and a daughter. I knew this man was an alcoholic and he had been abusive to me but I just knew that he would change, he reminded me of my father, he even looked like him. My brother got killed when he was 17, my grandfather had been killed in an accident 2 yrs prior, my best friend had been murdered about 6 months before my brother. There I went again, off the deep end of the world, went back to the life where I knew I could find relief, drugs and alcohol. Thank God for good friends that helped care for my kids. My Mom could not help as she had started drinking and could not help me. And it wasn't like I didn't have an education, I did, I had managed in all the turmoil to get a college degree, but I just couldn't stay grounded long enough to use it. But by the Grace of God I pulled thru one more time, I got a very respected job, it had taken along time to do it but I did. I became a police officer, then made Chief in the town where I lived. I did that for 3 yrs and then decided I wanted a career change, I started driving a truck, had my own, ran coast to coast then this lady decided she wanted to commit suicide and she hit me in my truck headon. She did what she intended to do and she almost took me with her, this was in 91, I quit driving!! My mom died in 92 and I started as a 911 Dispatcher until 2003. And my life is still going down hill, I lost my house last year, I had kept my small trucking company and the fuel cost helped to put me out of business. I am now living with my daughter and her family..Trying to work in a Deli part-time and no one understands how I feel, I HURT, I am tired, I don't sleep. AND by the way the guy I dated in High school is retired from an airline, and we are talking again, of course he is on one coast and I am on the other...SO....and we shall see???? Thanks for letting me put into words what I cannot to my children or friends. n -- In Fibromyalgia_Support_Group , debra van ness wrote: > > I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. > > Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. > We grieve what we once were, what we once dreamed of being and dreamed of doing in life. > > I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. > > Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. > > Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . > > Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. > > Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . > > Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " > > We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. > > I love you, > Agape, > Debra V. > > > --------------------------------- > Never miss a thing. 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Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Debra, That was very well thought out and written. I haven't really wrapped my brain around the diagnosis because as I have mentioned before, three days after my diagnosis, I was in the hospital for 9 days for an asthma exacerbation. So I was too busy to try to come to grips with something that is beyond my control. But at least it has a name and I can stop beating myself up about being so darned fatigued that I am likely to fall asleep late in the afternoon *if* I don't get a nap earlier in the day. And I now know I'm not being lazy on days when I do NOT feel like doing anything except hit the recliner. Darlene And yes, the meds do help, and thank GOD for them! We'd all be a mass of writhing, mad, insane idiots otherwise!!!!! > > I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. > > Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. > We grieve what we once were, what we once dreamed of being and dreamed of doing in life. > > I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. > > Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. > > Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . > > Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. > > Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . > > Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " > > We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. > > I love you, > Agape, > Debra V. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Debra. You sure do have a way with words. It isn't easy explaining this disease but you just did a great job of doing just hat. I want to thank you for your wisdom and all the kind words and advice you have given me. Love and hugs dear friend. Little LINDA --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 evilcateyes911 wrote: I read this post and thought about it, I think that alot of the anger that I am feeling is what in the hell happened to my life, I honestly cannot remember being happy as a child, my father was a very successful businessman, everyone in town thought he was a wonderful man...they all knew he was an alcoholic, and that he had many affairs on my mother, he would hit my mother and me while he was drinking. He had his own private plane, his own business, a different car for each day for he and my mom. All of the kids I went to school with thought that I had the greatest life ever, they knew where their Dad was on the holidays...not me. Then my mom divorced him when I was 12 and she was pregnant with my little brother. Gosh I could finally invite friends to sleep over as I wasn't scared that my Dad would do something crazy. My brother was born and I was thrilled..He took his first steps the day Pres. Kennedy was killed. I will never forget. I forgot my own childrens first words or steps but not his. When I was 13 I started dating a guy that was a senior in high school, we dated thru his senior year and then he went into the Army and to Vietnam. He was so much different than my Dad, he was a true gentleman, we were children of the 60's!! I cared for him greatly and I stayed true for almost a year, then I wrote a Dear letter, now I wonder what in the hell I was thinking. I married a guy when I was 16, was about a month pregnant when I married, my daughter was born, then hell really happenened. He beat me and didn't have to be drinking. He held me hostage with a shotgun, and then it happenened. I went totally crazy, I left my daughter with his mother and said I would be back.It was 4 yrs before I did look back. Two more failed marriages, more partying and drinking than anyone should have lived thru. Finally I did some settling down to some extent and remarried and had a son and a daughter. I knew this man was an alcoholic and he had been abusive to me but I just knew that he would change, he reminded me of my father, he even looked like him. My brother got killed when he was 17, my grandfather had been killed in an accident 2 yrs prior, my best friend had been murdered about 6 months before my brother. There I went again, off the deep end of the world, went back to the life where I knew I could find relief, drugs and alcohol. Thank God for good friends that helped care for my kids. My Mom could not help as she had started drinking and could not help me. And it wasn't like I didn't have an education, I did, I had managed in all the turmoil to get a college degree, but I just couldn't stay grounded long enough to use it. But by the Grace of God I pulled thru one more time, I got a very respected job, it had taken along time to do it but I did. I became a police officer, then made Chief in the town where I lived. I did that for 3 yrs and then decided I wanted a career change, I started driving a truck, had my own, ran coast to coast then this lady decided she wanted to commit suicide and she hit me in my truck headon. She did what she intended to do and she almost took me with her, this was in 91, I quit driving!! My mom died in 92 and I started as a 911 Dispatcher until 2003. And my life is still going down hill, I lost my house last year, I had kept my small trucking company and the fuel cost helped to put me out of business. I am now living with my daughter and her family..Trying to work in a Deli part-time and no one understands how I feel, I HURT, I am tired, I don't sleep. AND by the way the guy I dated in High school is retired from an airline, and we are talking again, of course he is on one coast and I am on the other...SO....and we shall see???? Thanks for letting me put into words what I cannot to my children or friends. n -- In Fibromyalgia_Support_Group , debra van ness wrote: > > I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. > > Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. > We grieve what we once were, what we once dreamed of being and dreamed of doing in life. > > I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. > > Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. > > Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . > > Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. > > Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . > > Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " > > We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. > > I love you, > Agape, > Debra V. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 My goodness, you have had a hard life girl. No wonder the fibromyalgia has kicked in. I am sorry to hear of all this. You are a truly wonderful person inside and I can tell. It seems that we follow a pattern with the men we choose. I don't know why. But somehow we do. hugs to you, love, Debra V. Green wrote: evilcateyes911 wrote: I read this post and thought about it, I think that alot of the anger that I am feeling is what in the hell happened to my life, I honestly cannot remember being happy as a child, my father was a very successful businessman, everyone in town thought he was a wonderful man...they all knew he was an alcoholic, and that he had many affairs on my mother, he would hit my mother and me while he was drinking. He had his own private plane, his own business, a different car for each day for he and my mom. All of the kids I went to school with thought that I had the greatest life ever, they knew where their Dad was on the holidays...not me. Then my mom divorced him when I was 12 and she was pregnant with my little brother. Gosh I could finally invite friends to sleep over as I wasn't scared that my Dad would do something crazy. My brother was born and I was thrilled..He took his first steps the day Pres. Kennedy was killed. I will never forget. I forgot my own childrens first words or steps but not his. When I was 13 I started dating a guy that was a senior in high school, we dated thru his senior year and then he went into the Army and to Vietnam. He was so much different than my Dad, he was a true gentleman, we were children of the 60's!! I cared for him greatly and I stayed true for almost a year, then I wrote a Dear letter, now I wonder what in the hell I was thinking. I married a guy when I was 16, was about a month pregnant when I married, my daughter was born, then hell really happenened. He beat me and didn't have to be drinking. He held me hostage with a shotgun, and then it happenened. I went totally crazy, I left my daughter with his mother and said I would be back.It was 4 yrs before I did look back. Two more failed marriages, more partying and drinking than anyone should have lived thru. Finally I did some settling down to some extent and remarried and had a son and a daughter. I knew this man was an alcoholic and he had been abusive to me but I just knew that he would change, he reminded me of my father, he even looked like him. My brother got killed when he was 17, my grandfather had been killed in an accident 2 yrs prior, my best friend had been murdered about 6 months before my brother. There I went again, off the deep end of the world, went back to the life where I knew I could find relief, drugs and alcohol. Thank God for good friends that helped care for my kids. My Mom could not help as she had started drinking and could not help me. And it wasn't like I didn't have an education, I did, I had managed in all the turmoil to get a college degree, but I just couldn't stay grounded long enough to use it. But by the Grace of God I pulled thru one more time, I got a very respected job, it had taken along time to do it but I did. I became a police officer, then made Chief in the town where I lived. I did that for 3 yrs and then decided I wanted a career change, I started driving a truck, had my own, ran coast to coast then this lady decided she wanted to commit suicide and she hit me in my truck headon. She did what she intended to do and she almost took me with her, this was in 91, I quit driving!! My mom died in 92 and I started as a 911 Dispatcher until 2003. And my life is still going down hill, I lost my house last year, I had kept my small trucking company and the fuel cost helped to put me out of business. I am now living with my daughter and her family..Trying to work in a Deli part-time and no one understands how I feel, I HURT, I am tired, I don't sleep. AND by the way the guy I dated in High school is retired from an airline, and we are talking again, of course he is on one coast and I am on the other...SO....and we shall see???? Thanks for letting me put into words what I cannot to my children or friends. n -- In Fibromyalgia_Support_Group , debra van ness wrote: > > I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. > > Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. > We grieve what we once were, what we once dreamed of being and dreamed of doing in life. > > I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. > > Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. > > Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . > > Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. > > Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . > > Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " > > We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. > > I love you, > Agape, > Debra V. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 debra thanks for letting me vent, and for listening. I guess I could say somethings to you that I can't tell anyone else because you don't know me and won't judge me. I hope you are doing well. debra van ness wrote: My goodness, you have had a hard life girl. No wonder the fibromyalgia has kicked in. I am sorry to hear of all this. You are a truly wonderful person inside and I can tell. It seems that we follow a pattern with the men we choose. I don't know why. But somehow we do. hugs to you, love, Debra V. Green wrote: evilcateyes911 wrote: I read this post and thought about it, I think that alot of the anger that I am feeling is what in the hell happened to my life, I honestly cannot remember being happy as a child, my father was a very successful businessman, everyone in town thought he was a wonderful man...they all knew he was an alcoholic, and that he had many affairs on my mother, he would hit my mother and me while he was drinking. He had his own private plane, his own business, a different car for each day for he and my mom. All of the kids I went to school with thought that I had the greatest life ever, they knew where their Dad was on the holidays...not me. Then my mom divorced him when I was 12 and she was pregnant with my little brother. Gosh I could finally invite friends to sleep over as I wasn't scared that my Dad would do something crazy. My brother was born and I was thrilled..He took his first steps the day Pres. Kennedy was killed. I will never forget. I forgot my own childrens first words or steps but not his. When I was 13 I started dating a guy that was a senior in high school, we dated thru his senior year and then he went into the Army and to Vietnam. He was so much different than my Dad, he was a true gentleman, we were children of the 60's!! I cared for him greatly and I stayed true for almost a year, then I wrote a Dear letter, now I wonder what in the hell I was thinking. I married a guy when I was 16, was about a month pregnant when I married, my daughter was born, then hell really happenened. He beat me and didn't have to be drinking. He held me hostage with a shotgun, and then it happenened. I went totally crazy, I left my daughter with his mother and said I would be back.It was 4 yrs before I did look back. Two more failed marriages, more partying and drinking than anyone should have lived thru. Finally I did some settling down to some extent and remarried and had a son and a daughter. I knew this man was an alcoholic and he had been abusive to me but I just knew that he would change, he reminded me of my father, he even looked like him. My brother got killed when he was 17, my grandfather had been killed in an accident 2 yrs prior, my best friend had been murdered about 6 months before my brother. There I went again, off the deep end of the world, went back to the life where I knew I could find relief, drugs and alcohol. Thank God for good friends that helped care for my kids. My Mom could not help as she had started drinking and could not help me. And it wasn't like I didn't have an education, I did, I had managed in all the turmoil to get a college degree, but I just couldn't stay grounded long enough to use it. But by the Grace of God I pulled thru one more time, I got a very respected job, it had taken along time to do it but I did. I became a police officer, then made Chief in the town where I lived. I did that for 3 yrs and then decided I wanted a career change, I started driving a truck, had my own, ran coast to coast then this lady decided she wanted to commit suicide and she hit me in my truck headon. She did what she intended to do and she almost took me with her, this was in 91, I quit driving!! My mom died in 92 and I started as a 911 Dispatcher until 2003. And my life is still going down hill, I lost my house last year, I had kept my small trucking company and the fuel cost helped to put me out of business. I am now living with my daughter and her family..Trying to work in a Deli part-time and no one understands how I feel, I HURT, I am tired, I don't sleep. AND by the way the guy I dated in High school is retired from an airline, and we are talking again, of course he is on one coast and I am on the other...SO....and we shall see???? Thanks for letting me put into words what I cannot to my children or friends. n -- In Fibromyalgia_Support_Group , debra van ness wrote: > > I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. > > Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. > We grieve what we once were, what we once dreamed of being and dreamed of doing in life. > > I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. > > Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. > > Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . > > Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. > > Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . > > Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " > > We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. > > I love you, > Agape, > Debra V. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 You are so right, Debra. I'm glad you are letting some of the anger go. It just wears us out so much. I appreciate the time you take to post to the group and sharing your thoughts with us. Hope today is a good day for you. Jeanne in WI I have been thinking of all the anger I have had lately about fibro and the ones that don't believe it. Well, we all probably have that because it is a part of our grief. The problem with this grief is that no one around us understands it except the ones that have it.... this group. I remember the stages of grief are Shock, Denial, Anger, Bargaining, Depression, and Acceptance. We will all wax and wane back and forth with these emotions for a long time, if not a whole lifetime. We grieve what we once were, what we once dreamed of being and dreamed of doing in life. I was in Shock when I learned this beast had a name. Fibromyalgia. I had to say it over and over for a couple of months before I internalized the fact it was really with me. Now, Denial is a stage too. Most of us have been there. " Maybe I don't have fibro, maybe it was just a misdiagnosis and I just have something else. Maybe I did imagine the all over pain and other symptoms. " I would try to convince myself, especially on days I was having a " good " day. Ok now the anger sets in. " damn it, that fibro is real and it hurts like a bitch. I can't hardly move out of bed in the mornings and I am so mad. I cannot be the mother today I wanted to be. There are people who don't believe me too.... damn it if they could feel like I do for ONE day " . Bargaining...... " maybe if I do this or that, it will go away " . (especially effective on the few days or hours the fibro lets up and I feel almost normal). " I will change my diet, I will change my sleep habits, I will take this supplement or that and it will be gone. " (then it comes in full force again and wraps around me like a boa constrictor. Depression .... . " Why can't I feel good today so I can go to work without pain just like other people? " " I just don't know how I can go on and live this way forever. It is NOT FAIR. I use to be able to go to work, clean my house, take care of my kids, and get a good nights sleep. The next day I would not be tired or hurting when I woke up. I don't look like the same person I did 5 years ago even. I have aged. The pretty woman I was is fading and I feel like I am 85 instead of 43 " . Acceptance... " ok, I have it. I have to deal with it and live the best I can. I am thankful for what I still do have. At least meds take care of some of the pain. etc.... " We all go through these stages over and over. I don't know how long it takes to reach the stage of acceptance and stay there. I don't know that we ever do completely. BUT I HAVE all of you. You are my rock and sounding board for what the rest of the world will not ever understand around me. I love you, Agape, Debra V. Quote Link to comment Share on other sites More sharing options...
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