Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hi Elly, Sounds like your treatment is ok. To answer some of your questions....It sounds like the balloon should be left in for longer. It is usually 9-14 days. As for the progesterone, I started mine after 5 days off of the estrogen. Some even begin it while they are on the estrogen. 8mg is quite aggreesive. My RE worked me up to 8 per day. I think this is the highest number that I have heard, but it is fine. I must be honest, of you are still at 4mm after 8 mg of estrogen, it is a little low. If you do not see an increase next month, mid cycle, I would get another opinion. Good luck. And make sure when you are out of the woods, and ttc, you see a perinatologist. You will need a cerclage. I have one now, I think I have incompetent cervix from my AS treatments. ELLEN M HANSEN wrote: Hi everyeone! A bit about myself. I had unexplained infertility, on my second round of fertility drugs (pergonyl) I became pregnant (only pregnancy) August 2001. I had an ultrasound at week 7, a singleton was diagnosed. At 20 weeks I spotted and went to the hospital and after an ultrasound was told I was pregnant with triplets and my cervix was thinning out. I was admitted for observation and by 2 am was in labor. I was given tributeline and magnesium sulfate, neither worked and by the time my Dr. showed up 24 hours later I was dilated to an 8 and consequently gave birth to my son Jake January 8th 2002. My contractions were quiet and they performed a cerclage and I was on complete bedrest. The next 10 days were awful, I was trying to make it to viability with my daughters. I got an infection and on January 18 delivered Shelby and January 19 delivered Grace. I had a D & C as the placenta's would not deliver. All my babies we alive and beautiful, just too tiny to survive. Now, after changing Doctors in September of 2002. I had my first LAP/Hysteroscopy Nov. 1, 2002 where retained placenta was removed. I had my second hysteroscopy Dec 20, 2002 to remove scar tissue. While there is much improvement seen from an HSG. I had a 3rd surgery Feb 14, 2003. I am now waiting for a follow up HSG to determine if this surgery has worked. My Dr. told me I have Asherman's. So I have been researching and found you. I have some questions, There are no "A" list or "B" list Dr.'s in my area of the country, any ideas on how to find someone who specializes in this type of surgery? Also, I read that the balloon should stay in 7-10 days, my Dr. only leaves it for 6 days, she said she is afraid I may get an infection. Does anyone think this will make a difference on how I heal? Also , I am taking 8 mg of estrogen a day and will start progesterone 15 days later. Is that how it should be done. I have faith in this new Dr. but I also had faith in my old one. Just want to know I am being taken care of . I don't expect medical advice, just want to know if this is similar to how you have been treatedI appreciate your time and if anyone can help with my questions I would be grateful. Sorry if I rambled. Thanks for reading. Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hi Elly, Sounds like your treatment is ok. To answer some of your questions....It sounds like the balloon should be left in for longer. It is usually 9-14 days. As for the progesterone, I started mine after 5 days off of the estrogen. Some even begin it while they are on the estrogen. 8mg is quite aggreesive. My RE worked me up to 8 per day. I think this is the highest number that I have heard, but it is fine. I must be honest, of you are still at 4mm after 8 mg of estrogen, it is a little low. If you do not see an increase next month, mid cycle, I would get another opinion. Good luck. And make sure when you are out of the woods, and ttc, you see a perinatologist. You will need a cerclage. I have one now, I think I have incompetent cervix from my AS treatments. ELLEN M HANSEN wrote: Hi everyeone! A bit about myself. I had unexplained infertility, on my second round of fertility drugs (pergonyl) I became pregnant (only pregnancy) August 2001. I had an ultrasound at week 7, a singleton was diagnosed. At 20 weeks I spotted and went to the hospital and after an ultrasound was told I was pregnant with triplets and my cervix was thinning out. I was admitted for observation and by 2 am was in labor. I was given tributeline and magnesium sulfate, neither worked and by the time my Dr. showed up 24 hours later I was dilated to an 8 and consequently gave birth to my son Jake January 8th 2002. My contractions were quiet and they performed a cerclage and I was on complete bedrest. The next 10 days were awful, I was trying to make it to viability with my daughters. I got an infection and on January 18 delivered Shelby and January 19 delivered Grace. I had a D & C as the placenta's would not deliver. All my babies we alive and beautiful, just too tiny to survive. Now, after changing Doctors in September of 2002. I had my first LAP/Hysteroscopy Nov. 1, 2002 where retained placenta was removed. I had my second hysteroscopy Dec 20, 2002 to remove scar tissue. While there is much improvement seen from an HSG. I had a 3rd surgery Feb 14, 2003. I am now waiting for a follow up HSG to determine if this surgery has worked. My Dr. told me I have Asherman's. So I have been researching and found you. I have some questions, There are no "A" list or "B" list Dr.'s in my area of the country, any ideas on how to find someone who specializes in this type of surgery? Also, I read that the balloon should stay in 7-10 days, my Dr. only leaves it for 6 days, she said she is afraid I may get an infection. Does anyone think this will make a difference on how I heal? Also , I am taking 8 mg of estrogen a day and will start progesterone 15 days later. Is that how it should be done. I have faith in this new Dr. but I also had faith in my old one. Just want to know I am being taken care of . I don't expect medical advice, just want to know if this is similar to how you have been treatedI appreciate your time and if anyone can help with my questions I would be grateful. Sorry if I rambled. Thanks for reading. Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hi Elly, Sounds like your treatment is ok. To answer some of your questions....It sounds like the balloon should be left in for longer. It is usually 9-14 days. As for the progesterone, I started mine after 5 days off of the estrogen. Some even begin it while they are on the estrogen. 8mg is quite aggreesive. My RE worked me up to 8 per day. I think this is the highest number that I have heard, but it is fine. I must be honest, of you are still at 4mm after 8 mg of estrogen, it is a little low. If you do not see an increase next month, mid cycle, I would get another opinion. Good luck. And make sure when you are out of the woods, and ttc, you see a perinatologist. You will need a cerclage. I have one now, I think I have incompetent cervix from my AS treatments. ELLEN M HANSEN wrote: Hi everyeone! A bit about myself. I had unexplained infertility, on my second round of fertility drugs (pergonyl) I became pregnant (only pregnancy) August 2001. I had an ultrasound at week 7, a singleton was diagnosed. At 20 weeks I spotted and went to the hospital and after an ultrasound was told I was pregnant with triplets and my cervix was thinning out. I was admitted for observation and by 2 am was in labor. I was given tributeline and magnesium sulfate, neither worked and by the time my Dr. showed up 24 hours later I was dilated to an 8 and consequently gave birth to my son Jake January 8th 2002. My contractions were quiet and they performed a cerclage and I was on complete bedrest. The next 10 days were awful, I was trying to make it to viability with my daughters. I got an infection and on January 18 delivered Shelby and January 19 delivered Grace. I had a D & C as the placenta's would not deliver. All my babies we alive and beautiful, just too tiny to survive. Now, after changing Doctors in September of 2002. I had my first LAP/Hysteroscopy Nov. 1, 2002 where retained placenta was removed. I had my second hysteroscopy Dec 20, 2002 to remove scar tissue. While there is much improvement seen from an HSG. I had a 3rd surgery Feb 14, 2003. I am now waiting for a follow up HSG to determine if this surgery has worked. My Dr. told me I have Asherman's. So I have been researching and found you. I have some questions, There are no "A" list or "B" list Dr.'s in my area of the country, any ideas on how to find someone who specializes in this type of surgery? Also, I read that the balloon should stay in 7-10 days, my Dr. only leaves it for 6 days, she said she is afraid I may get an infection. Does anyone think this will make a difference on how I heal? Also , I am taking 8 mg of estrogen a day and will start progesterone 15 days later. Is that how it should be done. I have faith in this new Dr. but I also had faith in my old one. Just want to know I am being taken care of . I don't expect medical advice, just want to know if this is similar to how you have been treatedI appreciate your time and if anyone can help with my questions I would be grateful. Sorry if I rambled. Thanks for reading. Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Wow, it seems like forever ago that I was fighting the same battle with my son! He¹s now 7, but I swear that for the first TWO YEARS of his life, I had to keep pushing those hearing aids back into his ears. In winter, a hat helps, though that won¹t help you right now. Distraction is good: something else to keep his hands busy, like Cheerios or goldfish crackers. Or singing and clapping hands. But honestly, it¹s probably best not to make a big deal when he pulls them out, just be matter-of-fact and put them right back in (ha! easier said than done for me!). My son didn¹t really chew on them, but he WOULD take them out and throw them: across the room, onto the tile floor, one time right into the jar of baby food I was holding. We had more little switches snap off, and they went out for service numerous times. Then he got clever and would pull them out and hide them behind his back! Such a devil! At the time, very exasperating. And if you have four others (!) even more so. The good news is, like everything else, they outgrow it, and you move on to new issues. As I said, now I can¹t even remember a time when Ben wouldn¹t wear his aids virtually every minute of the day. Welcome to the group, Stefanie Mom to Ben, 7, severe to profound HOH, and Isabella, 11, mild loss on 6/9/06 11:01 PM, mandy@... at mandy@... wrote: > Hi there, new member here! I am the mother of a precious 9-month-old (in > addition to 4 other active kids). Sam has Pierre Robin Syndrome (has a > trach and g-tube), as well as suspected Stickler's. He was diagnosed > with mild/moderate hearing loss in one ear and severe loss in the other > via sedated ABR back in March. We got his hearing aids in April. I'm > sure I'm not the first mom to ask this question, and neither will I be > the last-----How on earth do you keep hearing aids in an infant who seems > to have more hands than you do? I have little strips of toupee tape that > I use to try and keep them from falling off, and I have a little clip and > cord to at least keep them on his body when he pulls them out. I can't > put them on him unless I have the time to fully devote all of my > attention to him. I have been thumping his hands when he reaches to pull > them out. I have made a rule that only Mommy takes them out. If he > takes them out, they go right back in. Because he is teething, those ear > molds are great for chewing on! On a good day, he might have them in for > half an hour, but I know that he'll never get used to them at that rate. > Any advice or encouragement would be appreciated. > > Mandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi Mandy, My son is 5 1/2 months and is doing the same exact thing. It just really started on Tuesday and I feel like all day I just pull the earmold or the aids out of his mouth. I have started to take them out when we are in the car, because all I hear is the whistling. I am looking forward to hearing responses, thanks for posting the question. Marni , 27 months hearing , 5 1/2 months mod/sev --- mandy@... wrote: > Hi there, new member here! I am the mother of a > precious 9-month-old (in > addition to 4 other active kids). Sam has Pierre > Robin Syndrome (has a > trach and g-tube), as well as suspected Stickler's. > He was diagnosed > with mild/moderate hearing loss in one ear and > severe loss in the other > via sedated ABR back in March. We got his hearing > aids in April. I'm > sure I'm not the first mom to ask this question, and > neither will I be > the last-----How on earth do you keep hearing aids > in an infant who seems > to have more hands than you do? I have little > strips of toupee tape that > I use to try and keep them from falling off, and I > have a little clip and > cord to at least keep them on his body when he pulls > them out. I can't > put them on him unless I have the time to fully > devote all of my > attention to him. I have been thumping his hands > when he reaches to pull > them out. I have made a rule that only Mommy takes > them out. If he > takes them out, they go right back in. Because he > is teething, those ear > molds are great for chewing on! On a good day, he > might have them in for > half an hour, but I know that he'll never get used > to them at that rate. > Any advice or encouragement would be appreciated. > > Mandy > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi, Mandy, We had a similar battle with my daughter who is now 19 months. The only thing that worked were the Hanna Andersson pilot caps (you can find them on their website), which were also perfect for the winter and keeping her head warm, and actually not too terribly hot for the summer too - they're pretty light and they don't block sound. Once that hat was on, she forgot about pulling the aids off. A few months ago, I started " weaning " her off the hat, thinking that might start the battle again, but we had no problem at all - she never touches them now unless there's a problem. Good luck! Deganit, mom to Jordan, 19 months, mild-moderate SNHL > > Hi there, new member here! I am the mother of a precious 9-month- old (in > addition to 4 other active kids). Sam has Pierre Robin Syndrome (has a > trach and g-tube), as well as suspected Stickler's. He was diagnosed > with mild/moderate hearing loss in one ear and severe loss in the other > via sedated ABR back in March. We got his hearing aids in April. I'm > sure I'm not the first mom to ask this question, and neither will I be > the last-----How on earth do you keep hearing aids in an infant who seems > to have more hands than you do? I have little strips of toupee tape that > I use to try and keep them from falling off, and I have a little clip and > cord to at least keep them on his body when he pulls them out. I can't > put them on him unless I have the time to fully devote all of my > attention to him. I have been thumping his hands when he reaches to pull > them out. I have made a rule that only Mommy takes them out. If he > takes them out, they go right back in. Because he is teething, those ear > molds are great for chewing on! On a good day, he might have them in for > half an hour, but I know that he'll never get used to them at that rate. > Any advice or encouragement would be appreciated. > > Mandy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 In a message dated 6/23/2006 6:30:48 P.M. Central Standard Time, Lynn2180@... writes: Hello everyone! My name is I am the proud mom to 3 1/2 year old diagnosed last year with a bilateral sensoreneural mod-severe loss. I too have a loss very similiar to my daughter, but genetic tests have not shown a link between our hearing loss (very weird). Welcome to the list, ! I'm from a family with five generations of hearing loss and the experts haven't figured out the genetic link yet either. I have three kids-- (13), , (10) and (8). , the hubby and I have profound hearing loss-- the other two mod to severe. Putz Illinois Families for Hands & Voices _www.handsandvoices.org_ (http://www.handsandvoices.org/) _www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/) Email: support@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Hi there , Welcome to the group. There is a wealth of information and support here. I am about 2 hours from you, in Livermore! Tawnya Ian, 2 1/2, mild/moderate , 4, hearing New Member Intro Hello everyone! My name is I am the proud mom to 3 1/2 year old diagnosed last year with a bilateral sensoreneural mod-severe loss. I too have a loss very similiar to my daughter, but genetic tests have not shown a link between our hearing loss (very weird). My daughter was aided last summer and just finished her first year of preschool. We had her in a DHH program M,W,F and a mainstream preschool with an aide on T&TH, she is doing great and will continue this arrangement next school year. We are using both oral and ASL communication with her and she is doing very well. I am very excited to be apart of this group and look forward to hearing and sharing stories and advice with you. I am in the Sacramento, CA area if anyone else is too, please let me know! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2008 Report Share Posted December 6, 2008 Hi everybody, I developed vulvodynia after taking Flagyll, and then developed bladder pain after my one and only UTI and taking Cipro. I have had these conditions for almost four years. I am now 22. I have found significant relief on the low-oxalate diet. I also have issues with foods that contain bacteria, such as yogurt. Anybody else notice this? Wondering if anybody's tried NAET and had it work? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 Hi there,Welcome to the group. Be sure to look in the links/files section of the homepage, as we have some good info there. Ora has her success story there (files section) and she has found the low oxalate diet to be helpful. Also, be sure to use the search box feature on the homepage. We have tons of good posts from the past. Take Care,ChelleHomepage:http://groups.yahoo.com/group/VulvarDisorders/ Quote Link to comment Share on other sites More sharing options...
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