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Re: My poem-- Fibro-- The Invisible Hell-- Debra V

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Wow u are the best you hit that right on! I hope you gave a copy to your Dr's

offices. I wish my printer was not down or I could write that much as I sure

would like to pass that on to a few people. I am sorry u suffer with this

horrible disease also, but have to say you could not of explained this any

different, it is what it is! Take Care, and keep writing, you may find that as

some therapy huh?, because to come up with that so dead on, I bet there is other

stuff you can put out there for us to read, and help us feel better, as we are

turned away so much because we don't always look the part, of how we feel. I

don't remember what street clothes look like anymore though since end of Nov.

Luv your posting

Sharon

debra van ness wrote:

Here is a piece of poetry I wrote in 2007 about fibromyalgia. Some of

you have read it but some are new here. Maybe it will be of some benefit to

repost.

Love and hugs,

Debra V.

---------------------------------

Date: Sat, 17 Mar 2007 08:05:31 -0700

From: ladybug75901@...

Subject: Fwd: My poem-- Fibro-- The Invisible Hell

To: revgwyork@...

debra van ness wrote: Date: Sat, 17 Mar 2007 07:55:27

-0700 (PDT)

Subject: My poem-- Fibro-- The Invisible Hell

To: Fibromyalgia_Support_Group

Dear friends,

Last night I was up at 2 am. This piece of poetry came to me and I wrote it.

Maybe you can all relate. I have not written any poetry in years, but as I said,

it just came to me.

Fibro-- The Invisible Hell

I'll creep into your life when you are young and carefree,

so subtly you won't know or even recognize me.

I'll start with a little tingle, perhaps some numbness or a

little pain---

I'll kick you when you are down, when it's cold or starts to rain.

Ignore me and explain the little things away----

but as the days go by I'll settle in to stay.

Fibromyalgia such a medical term----

for something so sinister, cruel and so stern

Tell your doctor I am here--- he won't be able to see.

No tests, no broken bones, no lab to prove it's me.

When you awaken in the morning after years I have progressed,

you'll be hurt and feel so stiff you'll hardly get dressed.

I thrive on every crisis or pitall of emotion----

I'll drown your soul like silent waves crashing on the ocean.

You know they'll call you crazy, insufficient, even lazy.

Your mind will be a fog at times- your memory even hazy.

The pain will get intense as slowly pass the days,

then you'll have to pay attention, I won't go away.

The little hints of tingling will turn to burning hell----

You'll think you've lost your mind in my silent evil spell.

You'll feel so bone deep tired, I'll be worse than the flu----

But you look so healthy, I'll be sure they don't believe you.

I'll atack you in your sleep like you never went to bed----

Your family may believe I'm just inside your head.

They say you don't have pain; It can't be that bad.

Some aspirin and some sleep fixed the flu that they had.

Am I a virus, a chemical, or something that you lack?

Be assured that if I leave, I'll always be back.

At times you may return to what you use to be.

Enjoy it when you can because I will not set you free.

I'll take away time with your children, rob you of your joy and smile.

Send away your friends and family--- I'm back for a while.

Fibromyalgia is my name for those that believe I am for real----

Such medical terminology for the way I cheat and steal.

By Debra Van Ness,

(a fibromite)

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