National Fibromyalgia Awareness Date

February 17, 2008

There are two National associations. I get the newsletter from The

National Fibromyalgia Awareness group. They have various size

exercise balls in there store, an enameled pin --- which I have,

their purple bands are different than the ones the other organization

has --- of course the price is higher --- 5 for $15.00 -- I thought I

had thrown more in the bag of Christmas things I took for my great

nieces, but somehow didn't have enough. I also have their heartshape

pillow that is filled with flaxseed and has lavender and another herb

in it. I think they may also be the ones who publish the quarterly

magazine (it's expensive a single issue is $10 or more. But I would

suggest everyone check that group as well as the other one. One of

them also asks fibromites to write their story and it will be

included in one of the issues online -- they don't stay up long, but

mine was accepted at least 2 years ago.

Oh, and National Fibromyalgia Awareness Day is May 12th, which,

knowing the calender, must be Mother's day. As for a place to push

for more public exposure, I would say that one of the morning tv

shows might be better to start with than Ophra. Since the adds are

out there, one who think getting the exposure on a morning show,

which may reach a broader base than an after noon show that is more

aimed at women might be a better choice.

I was going to say that they had pulled the ads for Lyrica, but it's

for Chantix the smoking cessation product --- there is one small law

firm recruiting patients who had problems with the medicine

(supposedly) now the Chantix ad doesn't use Chantix in the ad and

says call something like get quit now which I think is a good way to

avoid the newest drug for what we used to call " ambulance chasers "

lawyers. And since I did take the med but stop after a reaction ---

which the research department of the pharma company had affected 1%

of the study groups --- I am planning to go back on it, just take one

a day as that was really making a big difference.

But I do suggest all of you take a look at the National Fibromyalgia

Awareness website!!! They don't seem to offer supplements, etc.

Many of which, I personally do not think worked for me and when my

husband and I were talking about the coral product that is

supposedly " new coral from Japan " he pointed out that harvesting

coral is one of those items on the listed of worldwide banned list.

Recommended Posts