Kind of new here, need some advice please!

[Guest guest]

Hello everyone,

I am new here, well sort of I was apart of this group within the

last year for a short while but unsubbed as I was not sure if I was

in the correct group and also was too overwhelmed with all of my

son's issues.

Anyway, I'm , mom to Danny, 11, ADHD, 4 yr old Olivia, who has

speach delays but they are mild and not officially dx'd yet, though

going threw regular therapy which is helping her.

I'm here for my youngest child, Ricky. He turned 2 on May 13th, he

has moderate hypotonia, mostly trunk based, he is globally

developmentally delayed, has scoliosis, hydronephrosis, and other

issues that are mild and just checked annually. We see a OT, PT,

AND ST monthly, on top of that he has multiple

specialists...genetics, neurology, urologist, orthopedic,

opthamologist (eyes), ENT, plus ofcourse his regular pediatrian

Gets overwhelming at times still but I'm getting use to it LOL....

Ricky is 26 months old and is at various stages in development... he

is at 18-20 months for fine motor, 12-18 months in gross motor, and

12-18 month for speach, though mostly closer to 12 months.

he says mama, dada, nana (for banana), byebye, hi, home (just

started that one), and that is basically it. He is also currently

in a lull where he has not improved his skills in months. He

started to walk finally at 23 months, and he is still at the

beginner level, unbalanced, not able to do stairs without alot of

assistance, going up, and just about has to be held to go down or

he'll fall down. He won't jump up and down, wont go over

obsticles, etc. He cannot hold a cup, or utensils to eat, etc.

I try to get him to say cookie and he just makes the sound and gets

frustrated... when I try to teach him new words or how to explain

what he wants he makes these grunting sounds and thats all.....

I don't kwow what to make of his speach issues. I dont know if its

Apraxia or not, I see the childrens speach therapist again in August

(I pay for a private therapist monthly and she is nto really

helpfull, so I am goign to change after I see the childrens next

month). I will see how she feels he is doing and why he is the way

he is.

I guess my question on advice is this...does this sound like verbal

apraxia to you at all?

I went to his OT last week and realized how much his receptive

issues are affecting his fine motor delays and it was a real eye

opener. I also asked her if she felt his problems were related to

his low muscle tone and she commented that his mouth muscles are

week..not sure how she could tell but anyway,its not the first time

I have been told that. He also wont eat anything hard, food still

needs to be soft, not mush, but soft as he seems to have a hard time

chewing...... is this all related you think??

Any thoughts and/or advice I'd greatly appreciate, thank you!

take care,

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