Re: Can I just say that this URSO sucks...

[Guest guest]

,

You might ask your doc if you can try actigall instead. Same active ingredient but slightly different combination of other stuff. I also had ursofalk from Canada for awhile, I don't know if that is the same as ursodiol, but it is worth the effort to ask your pharmacist. FYI, I found that the hospital pharmacist knew more than the one in the drug store, probably because he was more involved with the transplant team. Be sure to tell your team about this. It is important to take your meds and they want it to be able to do it without side effects.

Take care

MizKitCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

I take 2100 mg/day - 900 mg with breakfast, 300 mg with lunch, 900 mg with

supper. I've been taking it for about 6 years now. I've not experienced any

side effects from it, but I know others have.

Sorry, not much help

Arne

---- jmhette2 wrote:

=============

What do you guys do? Does it get better the longer you take it. I

take 500mg in the morning and at night...

[Guest guest]

> What do you guys do? Does it get better the longer you take it. I

> take 500mg in the morning and at night.

>

>

> PSC 8/07

> PBC 10/06

>

Hi ,

I have been on the same dose for about 7 months. For the first two

weeks I felt queasy and a bit unsettled, but eventually got used to

it. Cant say it makes me feel better. Have not been able to link the

URSo to changes in my URQ tenderness.

Mild Pan Colitis (since 1996),

Raised LFT's (AST, ALT, GGT & ALP)- PSC?

[Guest guest]

Hi ,

I had Urso giving me extreme pain in my j-pouch so the g.i. I had at

the time said I should not take it anymore and took me off of it.

It is rough if the Urso is helping but also hurting you.

I wish there was something else I could do to help.

Good luck!

Jarad

>

> I hate it. If I take it I have horrible stomach cramps and stuff but

> if I don't I itch like crazy. So do I want to feel sick, or do I

want

> to tear my skin off.

>

> What do you guys do? Does it get better the longer you take it. I

> take 500mg in the morning and at night. To be honest, I stopped

> taking it for abotu a week but the itching just kept getting worse so

> I started taking it and the itchign isn't as bad. Is this normal?

> I've heard some say that URSO makes them itch. Hmmm....

>

>

> PSC 8/07

> PBC 10/06

>

[Guest guest]

I wish you luck. I have been on high dose URSO for years without any

problems. I take 2500mg daily.

> >

> > I hate it. If I take it I have horrible stomach cramps and stuff

but

> > if I don't I itch like crazy. So do I want to feel sick, or do I

> want

> > to tear my skin off.

> >

> > What do you guys do? Does it get better the longer you take it.

I

> > take 500mg in the morning and at night. To be honest, I stopped

> > taking it for abotu a week but the itching just kept getting

worse so

> > I started taking it and the itchign isn't as bad. Is this

normal?

> > I've heard some say that URSO makes them itch. Hmmm....

> >

> >

> > PSC 8/07

> > PBC 10/06

> >

>

[Guest guest]

>

> I hate it. If I take it I have horrible stomach cramps and stuff but

> if I don't I itch like crazy. So do I want to feel sick, or do I want

> to tear my skin off.

Hi --

That's exactly what Urso did to me. Actigall had exactly the same

effect. The side effects were WAY too severe for me, which is why I'm

one of the few in the group who can't and won't take the stuff!

Though, I must say, the Urso didn't help my itching at all.

There are some in the group who take rifampin (I think that's right)

and use tanning beds (just a couple of minutes at a time) to ease the

itching.

Hang in there!

Regards,

Carolyn B. in SC

[Guest guest]

I have had stomach upset from it from time to time. My issues were

more of a burning/burping problem. Prilosec pretty much fixed my

problems. oh...and it's horribly important for me to take it with

food. I don't do well when I take it on an empty stomach.

I have a somewhat related questran issue, but I'll start another

thread I think...

[Guest guest]

> >

> > I hate it. If I take it I have horrible stomach cramps and stuff but

> > if I don't I itch like crazy. So do I want to feel sick, or do I want

> > to tear my skin off.

>

>

> Hi --

>

> That's exactly what Urso did to me. Actigall had exactly the same

> effect. The side effects were WAY too severe for me, which is why I'm

> one of the few in the group who can't and won't take the stuff!

> Though, I must say, the Urso didn't help my itching at all.

>

> There are some in the group who take rifampin (I think that's right)

> and use tanning beds (just a couple of minutes at a time) to ease the

> itching.

>

> Hang in there!

>

> Regards,

> Carolyn B. in SC

>