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It is hard to keep a house clean especially for us with fibro. My husband is

not a housekeeper and he stacks his crap everywhere and keeps everything like a

pack rat. I love him and have to accept that part of him unfortunately. I will

never change him. I would think that since he is not working he could do

something around here. (he does laundry but stacks it in baskets or all over

the bedroom without putting it up.... he lets it wrinkle) That drives me

insane. But I am learning to live with it. He does cook sometimes and is pretty

good at that but he will NOT clean the stove top or counters for nothing.

I use to be almost a neat freak. I liked everything in place and wanted my

house to look as clean as something out of Better Homes and Gardens. LOL. That

had to pass as I got with and I also have two kids. And the fibro does not

help either. Sometimes I look at my pretty apartment that I could make

beautiful and decorate and such. No chance of that around here. LOL.

I understand your frustration . And I do accept that some people are

just not into organizing anything and don't mind clutter. (it does not make

them nasty or dirty)... it is just the way some people are. I try to keep

things as clean as I can but I have to clean around the clutter. LOL.

love and hugs,

Debra V.

---------------------------------

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,

Are you considered disabled? Do you get SSA? Then, you may qualify

for federal, government or county grants in your area for

housecleaning and cooking based on your financial status.

My sister being a social worker in another state - found me a

program in my county. I started this week. I pay $25 for one month

as a match to a grant and will get 6 hours of home services a week.

I will divide it between Monday and Wednesday.

Just a thought. I never would have considered such a thing as I

could not afford help - but sometimes it pays to research and just

ask a county social worker for some assistance.

And for your husband....well men are men. They just don't know how

to behave any differently. They don't see crumbs right under their

noses either:) Don't be too hard on him. He is a man and probably

doing his best. It is tough on our guys having to care for us. I

can't even imagine the immense stress they must carry for us.

CJ

>

> It is hard to keep a house clean especially for us with fibro. My

husband is not a housekeeper and he stacks his crap everywhere and

keeps everything like a pack rat. I love him and have to accept

that part of him unfortunately. I will never change him. I would

think that since he is not working he could do something around

here. (he does laundry but stacks it in baskets or all over the

bedroom without putting it up.... he lets it wrinkle) That drives

me insane. But I am learning to live with it. He does cook

sometimes and is pretty good at that but he will NOT clean the stove

top or counters for nothing.

>

> I use to be almost a neat freak. I liked everything in place

and wanted my house to look as clean as something out of Better

Homes and Gardens. LOL. That had to pass as I got with and I

also have two kids. And the fibro does not help either. Sometimes

I look at my pretty apartment that I could make beautiful and

decorate and such. No chance of that around here. LOL.

>

> I understand your frustration . And I do accept that some

people are just not into organizing anything and don't mind

clutter. (it does not make them nasty or dirty)... it is just the

way some people are. I try to keep things as clean as I can but I

have to clean around the clutter. LOL.

>

> love and hugs,

> Debra V.

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

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No, unfortunately I haven't been recognized as " disabled " yet.

Though, I was diagnosed with CFS in 1997, I haven't been diagnosed

with anything more than TMJ since then, and that was in 1998. I also

haven't been to anything more than a dentist since that time because,

first the money hasn't been there, second, the insurance forget it,

costs too much for my budget, and third, I can't qualify for Medicaid

unless I am " disabled " because my husband makes a pretty good

paycheck, and even with four kids, it's still " enough " to afford

medical care. I don't know for who or what, but that's what they say.

I'm going to see about going to this one clinic that I just heard

about, to see if they can help. If they can, then I'll take the long

trudge on the waiting list, because where I live, Georgia, has the

single longest SSI waiting list in the entire country.

> >

> > It is hard to keep a house clean especially for us with fibro.

My

> husband is not a housekeeper and he stacks his crap everywhere and

> keeps everything like a pack rat. I love him and have to accept

> that part of him unfortunately. I will never change him. I would

> think that since he is not working he could do something around

> here. (he does laundry but stacks it in baskets or all over the

> bedroom without putting it up.... he lets it wrinkle) That drives

> me insane. But I am learning to live with it. He does cook

> sometimes and is pretty good at that but he will NOT clean the

stove

> top or counters for nothing.

> >

> > I use to be almost a neat freak. I liked everything in place

> and wanted my house to look as clean as something out of Better

> Homes and Gardens. LOL. That had to pass as I got with and I

> also have two kids. And the fibro does not help either.

Sometimes

> I look at my pretty apartment that I could make beautiful and

> decorate and such. No chance of that around here. LOL.

> >

> > I understand your frustration . And I do accept that some

> people are just not into organizing anything and don't mind

> clutter. (it does not make them nasty or dirty)... it is just the

> way some people are. I try to keep things as clean as I can but I

> have to clean around the clutter. LOL.

> >

> > love and hugs,

> > Debra V.

> >

> >

> > ---------------------------------

> > Never miss a thing. Make Yahoo your homepage.

> >

> >

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,

I'm in Georgia too and started the SSI battle around 5/07. I got

denied right out of the gate (no fibro or COPD, CHF, CAD or diabetes

then, just plain ol' asthma and swelling). Got the reconsideration

rejection that was filed by my LTD provider via attorney the DAY

after I had gone to the rheum and been dx'd with the fibro and CFS

(or whatever they call it now...lol). Then spent the next 9 days in

the hospital for an asthma exacerbation brought on by a bout with

bronchitis that started 1/18/08. The attorney is filing the appeal.

They feel I have a good shot at winning (finally) but did state it

will take me upwards of a year to get a hearing

date......sigh.....all I can say is thank goodness I took out LTD at

my employer all those years ago....it's paying off now because DH

doesn't make enough to support a family of 4 that includes 2 special

needs kids!

If you want to email me off-list, I will give you the name of the

rheum group I used; I know they have several locations (I live down

in but drive to Riverdale and/or Crawford Long to see them).

Darlene (also languishing in Georgia)....

> >

> > ,

> >

> > Are you considered disabled? Do you get SSA? Then, you may

> qualify

> > for federal, government or county grants in your area for

> > housecleaning and cooking based on your financial status.

> >

> > My sister being a social worker in another state - found me a

> > program in my county. I started this week. I pay $25 for one

> month

> > as a match to a grant and will get 6 hours of home services a

> week.

> > I will divide it between Monday and Wednesday.

> >

> > Just a thought. I never would have considered such a thing as I

> > could not afford help - but sometimes it pays to research and

just

> > ask a county social worker for some assistance.

> >

> > And for your husband....well men are men. They just don't know

how

> > to behave any differently. They don't see crumbs right under

their

> > noses either:) Don't be too hard on him. He is a man and

probably

> > doing his best. It is tough on our guys having to care for us. I

> > can't even imagine the immense stress they must carry for us.

> >

> > CJ

> >

> >

>

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To heck with the house dinner alone is a chore. I made dinner last

night and after I hurt so darn bad. I was chair bound for a while. I

try to clean from my chair but I can't get much done. Expecially when

my hands are hurting really bad. Good Luck

Krystal

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That has been me the past week, but it was an improvement from my husband

having to push me around in the computer chair now that was something, all I

could do was laugh and it hurt so bad, so I look at it this way being able to

get to the kitch. get dinner and get sit in the chair solo and sweep and dust,

brighter days gotta be coming????? Sharon

Krystal wrote: To heck with the house dinner

alone is a chore. I made dinner last

night and after I hurt so darn bad. I was chair bound for a while. I

try to clean from my chair but I can't get much done. Expecially when

my hands are hurting really bad. Good Luck

Krystal

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Hi Sharon,

I sincerely hope they come soon - the brighter days. And for you too Krystal.

I'm so sorry both of you have it so bad.

At least when I live alone, I can always have a bowl of cereal for dinner and

clean when I can. It must be so hard to have to keep households going with this

beast.

I need to remember that when I am feeling lonely.

Both of you feel better soon,

Marti

sharon studley wrote:

That has been me the past week, but it was an improvement from my

husband having to push me around in the computer chair now that was something,

all I could do was laugh and it hurt so bad, so I look at it this way being able

to get to the kitch. get dinner and get sit in the chair solo and sweep and

dust, brighter days gotta be coming????? Sharon

Krystal wrote: To heck with the house dinner alone is a

chore. I made dinner last

night and after I hurt so darn bad. I was chair bound for a while. I

try to clean from my chair but I can't get much done. Expecially when

my hands are hurting really bad. Good Luck

Krystal

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Good work Krystal!

I keep telling my family if I do the things they can then i'll never get to the

things only I can do.

JudyMer

---- Krystal wrote:

> To heck with the house dinner alone is a chore. I made dinner last

> night and after I hurt so darn bad. I was chair bound for a while. I

> try to clean from my chair but I can't get much done. Expecially when

> my hands are hurting really bad. Good Luck

>

> Krystal

>

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