Re: Re: New Question*** Just sticking up for Rhumie who does treat

February 20, 2008

I JUST WANTED TO SAY IF IT WASN'T FOR ME GOING TO THE RHUMIE DR. I DID AND

DO, I DON'T KNOW WHERE I WOULD BE, SHE DOES TREAT, AND TREATS WELL, PEOPLE COME

FROM 2 SURROUNDING STATES TO SEE HER, AND EVERY TIME I HAVE BEEN IN WAIT RM

THERE HAVE BEEN AT LEAST 2 OTHER FIBRO SUFFERS BESIDES ME, WHO PRAISE HER FOR

HER KNOWLEDGE. SO ANYONE WHO WANTS TO COME TO THE EAST COAST I WILL PASS HER

ON, SHE IS VERY PASSIONATE WITH HER PT'S ALSO. WE DO ALL BRING A BOOK ON APPT

DAY AS WE WAIT BUT SO WORTH IT. I ALSO HAVE BEEN LUCKY WITH MY PRIMARY THEY

HAVE THE SAME COMPASSION SHE DOES AND HAVE NEVER DOUBTED MY SYMPTOMS, AND

CONTINUED TO DIG FOR 2YRS BEFORE SENDING ME TO RHUMIE, BUT DID HAVE ANOTHER ONE

IN MIND WHO ALSO WAS RECOMMENDED WITH DEALING AND BEING GOOD AT DIAGNOISING

FIBRO, BUT MY MOM HAD BEEN SEEING THE ONE I SEE, AND HAD FOUND THE WEIRD TYPE OF

AUTO IMMUNE ARTHRITIS SHE HAS THAT NO ONE ELSE WAS ABLE TO FIND AFTER BEING

TAKEN BY AMBULANCE FOR SEVERE PAIN AND HOSPITALIZED 4

DAYS. SO FOR THOSE OUT THERE DON'T GIVE UP AND IT IS WHAT I HAVE BEEN TOLD

THE RHUMIE WHO IS ABLE TO DO THE PROPER TESTING TO MAKE THE DIAGNOIS. BETTER

DAYS TO ALL AHEAD I HOPE.

SHARON

CJ wrote: ,

I would be the first to say you probably do have fibromyalgia

syndrome!

The C6 and C7 you speak of causes the tingling down the arm and

fingers - I have this too. It can get really bad! Sometimes I lose

functioning of my entire arm. DDD can cause this as well - and there

is most likely not a surgery to fix it as you have probably found

out.

The pain you speak of is VERY common among fibromyalgia patients.

The strangests things keep happening to us - so the knuckles with

the skin problem is not at all something I would rule out as a

fibromyalgia symptom. Sometimes we have in my case many syndrome

problems as well - dry skin, dry eyes, dry mouth, dry nose etc...

With fibromyalgia every day is a new challenge as it moves from here

to there. Sometimes lingering in one place for a long time and

never going away and sometimes new places.

Nothing suprises me with this monster!

Rheumy docs don't seem to be dealing much with fibromyalgia

anymore. They may be able to quickly diagnose it - but probably

won't treat it. You will be extremely fortunate to find one that

does, so I wish you the best.

Just don't let docs tell you it is stress or all in your head! It

is not! It is physical, and not always all so invisible!

Good luck and thanks for joining. Welcome!!!

mncjl

> > > Been here.done that. and DO NOT WANT TO GO THERE AGAIN!

> > >

> > > Since I went into the hospital for back surgery on Feb I have

slowly

> > > been sliding into depression. My church has been wonderful in

> > helping

> > > with food, but NO and I mean NO ONE has come to visit me since

I got

> > > home. I feel like I have been cut off from civilization and

am

> > slowing

> > > going down hill. I have not gotten out of bed today and was

crying

> > > earlier due to being lonely and depressed. I go back to the

doctor

> > > tomorrow for a check up and I am so hoping that he will

release

> > me to

> > > go back to work as I do not know how much more of being

trapped

> > inside

> > > all the time and alone. I am losing my mind. All I do is lay

in bed

> > > and watch tv. I really have no idea what or why I am writing

here,

> > > guess I am just trying to connect and figure out why I am so

> > alone. I

> > > need to go back to work so that I at least have people

connection.

> > > Thanks for listening/reading my ramblings.

> > >

> > > Christi in Waxahachie TX

> > >

> >

February 20, 2008