RE: Same Old Story... Just Need Some Cheering Up

[Guest guest]

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[Guest guest]

I know I'll never take for granted again if I am able to just jump

into a great night of sex. I was just able to have sex for the first

time in almost 5 months. There was a little burning at first but we

used lube which I really am not happy with the feel of, I never did

like to have to use it. I just feel sad I guess, it's not the same.

He and I both worried and it took too much out of it. I'm older than

you by far (38) and have been married to this man for 20 years and

this is a part of my life I really enjoyed. I want it back.

I so hear you about the clothing. I'm a jeans kinda girl and I can't

even wear them. I'm so sick of skirts and sweats!!

Today my period is coming and I am cramping so bad and the bad

burning is back with it. Periods are the worst. I hurt so bad from

the pads but I can't use anything else because it's way too heavy.

I'm trying to keep as positive as I can, most days it's ok but some

I just can't. I never ever even entertained the thought that I would

be sitting with vulvar pain that wouldn't go away,I still can't

believe this is possible and I sure am not happy the medical

profession really doesn't know a thing about it.

I'm sorry you are going through this!! You aren't alone, not that

it's much help. ((HUGS))

>

> Hi all. I'm having a particularly rough day today, and could use a

> word or two of support or solidarity. I'm 23 years old, and have

> vulvar vestibulitits. And like many of you, I suffer the life-

altering

> effects of having my wardrobe (goodbye pants and panties!), diet

(low

> oxalates, all the way), and general well-being (sitting, and

> oftentimes lying and walking, are quite painful) affected by this

> frustrating, depressing condition.

>

> After three months of strict (and I mean strict) coherence to a low

> (not medium, mind you) oxalate diet, the boyfriend (of many years)

and

> I tried to ease into some of the " boyfriend-girlfriend " activities

we

> once enjoyed. An unsuccessful attempt later, I'm in an even worse

> amount of pain than usual, and have developed a bacterial

infection,

> to boot. This is a pretty regular cycle for me: try a new approach

to

> treatment, give it a few months, slowly work up to trying things

out

> with the boyfriend, and falling back into despair, left with pain

and

> the resulting frustration and depression.

>

> It'd just be nice to hear some comforting (or even commiserating)

words.

>

> Love to you all,

>

>

>

[Guest guest]

: ya know that oxalate diet just never did work for me either.

One of the best things I ever did was eat sensibly, eat some goodies

occasionally, drink LESS way LESS coffee, and quit trying to figure it

out...

I from my own shoes understand your frustration...I finally had to give up

on depression cause it did me no good whatsoever and just say " it is what it

is and I can only do what I can do. Some day it is going to be just a

memory. I went ahead and took the meds until my body said " STOP " !!

I just had to learn to accept the fact that I had to go THRU it to get past

it. YES it stole years of my life one day at a time. NOW I can appreciate

each moment for what it is be it misery or joy....

Your day will come...Your day will come...Your day will come....Hold on just

a little bit longer now baby!

hugs, ML

When times are good, be happy; but when times are bad, consider:

God has made the one as well as the other. Therefore, a man

cannot discover anything about his future.

http://www.theanimalrescuesite.com/

Same Old Story... Just Need Some Cheering Up

Hi all. I'm having a particularly rough day today, and could use a

word or two of support or solidarity. I'm 23 years old, and have

vulvar vestibulitits. And like many of you, I suffer the life-altering

effects of having my wardrobe (goodbye pants and panties!), diet (low

oxalates, all the way), and general well-being (sitting, and

oftentimes lying and walking, are quite painful) affected by this

frustrating, depressing condition.

After three months of strict (and I mean strict) coherence to a low

(not medium, mind you) oxalate diet, the boyfriend (of many years) and

I tried to ease into some of the " boyfriend-girlfriend " activities we

once enjoyed. An unsuccessful attempt later, I'm in an even worse

amount of pain than usual, and have developed a bacterial infection,

to boot. This is a pretty regular cycle for me: try a new approach to

treatment, give it a few months, slowly work up to trying things out

with the boyfriend, and falling back into despair, left with pain and

the resulting frustration and depression.

It'd just be nice to hear some comforting (or even commiserating) words.

Love to you all,

[Guest guest]

I had vulvodynia (and IC) for 17 years before I found the most relief from burning with Cymbalta (30 mg twice a day). I'm now 38 and enjoying my life more than I ever have, thank G-d! It took a combination of things (PT, rinsing with water after peeing, alternative medicine etc), but I think that the Cymbalta was instrumental. Sent from my Verizon Wireless BlackBerryFrom: "themutantdinosaur" Date: Mon, 29 Dec 2008 22:52:34 +0000To: <VulvarDisorders >Subject: Same Old Story... Just Need Some Cheering Up Hi all. I'm having a particularly rough day today, and could use a word or two of support or solidarity. I'm 23 years old, and have vulvar vestibulitits. And like many of you, I suffer the life-altering effects of having my wardrobe (goodbye pants and panties!), diet (low oxalates, all the way), and general well-being (sitting, and oftentimes lying and walking, are quite painful) affected by this frustrating, depressing condition. After three months of strict (and I mean strict) coherence to a low (not medium, mind you) oxalate diet, the boyfriend (of many years) and I tried to ease into some of the " boyfriend-girlfriend " activities we once enjoyed. An unsuccessful attempt later, I'm in an even worse amount of pain than usual, and have developed a bacterial infection, to boot. This is a pretty regular cycle for me: try a new approach to treatment, give it a few months, slowly work up to trying things out with the boyfriend, and falling back into despair, left with pain and the resulting frustration and depression. It'd just be nice to hear some comforting (or even commiserating) words. Love to you all,

[Guest guest]

To those who find coffee bothers them, what about decaf?Sent from my Verizon Wireless BlackBerryFrom: Date: Mon, 29 Dec 2008 17:38:56 -0600To: <VulvarDisorders >Subject: RE: Same Old Story... Just Need Some Cheering Up : ya know that oxalate diet just never did work for me either. One of the best things I ever did was eat sensibly, eat some goodies occasionally, drink LESS way LESS coffee, and quit trying to figure it out... I from my own shoes understand your frustration...I finally had to give up on depression cause it did me no good whatsoever and just say " it is what it is and I can only do what I can do. Some day it is going to be just a memory. I went ahead and took the meds until my body said " STOP " !! I just had to learn to accept the fact that I had to go THRU it to get past it. YES it stole years of my life one day at a time. NOW I can appreciate each moment for what it is be it misery or joy.... Your day will come...Your day will come...Your day will come....Hold on just a little bit longer now baby! hugs, ML When times are good, be happy; but when times are bad, consider: God has made the one as well as the other. Therefore, a man cannot discover anything about his future. http://www.theanimalrescuesite.com/ Same Old Story... Just Need Some Cheering Up Hi all. I'm having a particularly rough day today, and could use a word or two of support or solidarity. I'm 23 years old, and have vulvar vestibulitits. And like many of you, I suffer the life-altering effects of having my wardrobe (goodbye pants and panties!), diet (low oxalates, all the way), and general well-being (sitting, and oftentimes lying and walking, are quite painful) affected by this frustrating, depressing condition. After three months of strict (and I mean strict) coherence to a low (not medium, mind you) oxalate diet, the boyfriend (of many years) and I tried to ease into some of the " boyfriend-girlfriend " activities we once enjoyed. An unsuccessful attempt later, I'm in an even worse amount of pain than usual, and have developed a bacterial infection, to boot. This is a pretty regular cycle for me: try a new approach to treatment, give it a few months, slowly work up to trying things out with the boyfriend, and falling back into despair, left with pain and the resulting frustration and depression. It'd just be nice to hear some comforting (or even commiserating) words. Love to you all,

[Guest guest]

: I went to half calf...half regular and half decaf. hugs, ml

When times are good, be happy; but when times are bad, consider:God has made the one as well as the other. Therefore, a mancannot discover anything about his future. http://www.theanimalrescuesite.com/

RE: Same Old Story... Just Need Some Cheering Up

: ya know that oxalate diet just never did work for me either.One of the best things I ever did was eat sensibly, eat some goodiesoccasionally, drink LESS way LESS coffee, and quit trying to figure itout...I from my own shoes understand your frustration...I finally had to give upon depression cause it did me no good whatsoever and just say "it is what itis and I can only do what I can do. Some day it is going to be just amemory. I went ahead and took the meds until my body said "STOP"!!I just had to learn to accept the fact that I had to go THRU it to get pastit. YES it stole years of my life one day at a time. NOW I can appreciateeach moment for what it is be it misery or joy....Your day will come...Your day will come...Your day will come....Hold on justa little bit longer now baby!hugs, MLWhen times are good, be happy; but when times are bad, consider:God has made the one as well as the other. Therefore, a mancannot discover anything about his future.http://www.theanimalrescuesite.com/-----Original Message-----From: VulvarDisorders [mailto:VulvarDisorders ]On Behalf Of themutantdinosaurSent: Monday, December 29, 2008 4:53 PMTo: VulvarDisorders Subject: Same Old Story... Just Need Some Cheering UpHi all. I'm having a particularly rough day today, and could use aword or two of support or solidarity. I'm 23 years old, and havevulvar vestibulitits. And like many of you, I suffer the life-alteringeffects of having my wardrobe (goodbye pants and panties!), diet (lowoxalates, all the way), and general well-being (sitting, andoftentimes lying and walking, are quite painful) affected by thisfrustrating, depressing condition.After three months of strict (and I mean strict) coherence to a low(not medium, mind you) oxalate diet, the boyfriend (of many years) andI tried to ease into some of the "boyfriend-girlfriend" activities weonce enjoyed. An unsuccessful attempt later, I'm in an even worseamount of pain than usual, and have developed a bacterial infection,to boot. This is a pretty regular cycle for me: try a new approach totreatment, give it a few months, slowly work up to trying things outwith the boyfriend, and falling back into despair, left with pain andthe resulting frustration and depression.It'd just be nice to hear some comforting (or even commiserating) words.Love to you all,

[Guest guest]

Im srry you are having such a rough time at the moment. I to am going

through a horrible flare for the past few weeks and of course with it

the depression, but im feelin a bit better the last few days so hoping

it it coming to an end.

i started using calendula cream through the day and lidocaine at night

and love them both, although this may sound odd and i dont understand

it myself the calendula cream seems to be best for the burning and

rawness around my vulva but the lidocaine seems to work best for the

odd clitoral sensations i get, but if i try using the canduela cream

around my clit i find it more disturbing. i wonder if its because it

gives such a cooling affect that it irritates more wereas the

lidocaine numbs.

Ive also upped my dose of amitrip from 25mg to 50mg(glad to say no

side effects) in the hope that it wipes out the flares altogether, but

that will take weeks before i know.

i have vulvodynia and am not a doc but because of the way the

calendula cream creates a barrier against our own fluids you may like

to give it a try, ive only been using it since the begining of this

flare but as long as it keeps helping the way it has i will always

keep a tube on hand, and if that fails ask ur doc for lidocaine it

numbs everything and alot of women use if for intercourse.

I hope you feel better soon and srry if the post is to long.

[Guest guest]

Hi ML,I just saw the signature at the bottom of your message and it made me smile. Just so happens I work for http://www.theanimalrescuesite.comSmall world....Keep on Clicking! :)Subject: RE: Same Old Story... Just Need Some Cheering UpTo: VulvarDisorders Date: Monday, December 29, 2008, 3:38 PM

: ya know that oxalate diet just never did work for me either.

One of the best things I ever did was eat sensibly, eat some goodies

occasionally, drink LESS way LESS coffee, and quit trying to figure it

out...

I from my own shoes understand your frustration. ..I finally had to give up

on depression cause it did me no good whatsoever and just say "it is what it

is and I can only do what I can do. Some day it is going to be just a

memory. I went ahead and took the meds until my body said "STOP"!!

I just had to learn to accept the fact that I had to go THRU it to get past

it. YES it stole years of my life one day at a time. NOW I can appreciate

each moment for what it is be it misery or joy....

Your day will come...Your day will come...Your day will come....Hold on just

a little bit longer now baby!

hugs, ML

When times are good, be happy; but when times are bad, consider:

God has made the one as well as the other. Therefore, a man

cannot discover anything about his future.

http://www.theanima lrescuesite. com/

Same Old Story... Just Need Some Cheering Up

Hi all. I'm having a particularly rough day today, and could use a

word or two of support or solidarity. I'm 23 years old, and have

vulvar vestibulitits. And like many of you, I suffer the life-altering

effects of having my wardrobe (goodbye pants and panties!), diet (low

oxalates, all the way), and general well-being (sitting, and

oftentimes lying and walking, are quite painful) affected by this

frustrating, depressing condition.

After three months of strict (and I mean strict) coherence to a low

(not medium, mind you) oxalate diet, the boyfriend (of many years) and

I tried to ease into some of the "boyfriend-girlfrie nd" activities we

once enjoyed. An unsuccessful attempt later, I'm in an even worse

amount of pain than usual, and have developed a bacterial infection,

to boot. This is a pretty regular cycle for me: try a new approach to

treatment, give it a few months, slowly work up to trying things out

with the boyfriend, and falling back into despair, left with pain and

the resulting frustration and depression.

It'd just be nice to hear some comforting (or even commiserating) words.

Love to you all,