Same Old Story... Just Need Some Cheering Up

[Guest guest]

Hi all. I'm having a particularly rough day today, and could use a

word or two of support or solidarity. I'm 23 years old, and have

vulvar vestibulitits. And like many of you, I suffer the life-altering

effects of having my wardrobe (goodbye pants and panties!), diet (low

oxalates, all the way), and general well-being (sitting, and

oftentimes lying and walking, are quite painful) affected by this

frustrating, depressing condition.

After three months of strict (and I mean strict) coherence to a low

(not medium, mind you) oxalate diet, the boyfriend (of many years) and

I tried to ease into some of the " boyfriend-girlfriend " activities we

once enjoyed. An unsuccessful attempt later, I'm in an even worse

amount of pain than usual, and have developed a bacterial infection,

to boot. This is a pretty regular cycle for me: try a new approach to

treatment, give it a few months, slowly work up to trying things out

with the boyfriend, and falling back into despair, left with pain and

the resulting frustration and depression.

It'd just be nice to hear some comforting (or even commiserating) words.

Love to you all,

[Guest guest]

Hi ,I am so sorry -- so many of us know and have experienced the frustration! It Stinks!Cry when you need to, but keep reminding yourself that you will get better! Also, re-evaluate what you have tried and list things you haven't tried yet. It's always good to keep a game plan going. Have you tried any pelvic floor physical therapy? If not, that could really be a good thing to add to your list. For some women, tight pelvic floor muscles have referred pain to the vestibule and that is the underlying cause. For some of us, there is a combination of factors and we have to try a few different things. hang in there...and don't give up HOPE! Hugs,Chelle