Question about Narcotic patch for PSC itching

[Guest guest]

I just had my 6 month check up for being on the

transplant list. My itching is unrelentless even

though I take Questran, Hydroxyzine, Benadryl, Zoloft,

Zofran and Naltrexone and Ambien CR for

sleeping.....so the doctor said he is adding allegra

and increasing my dose of Zoloft and said if that

doesn't help his last resort is a narcotic patch.

Anybody have experience with this patch? Is this

going to incapacitate me from working and

living...driving????? I think I am so opposed to this

just because it sounds horrible.

I am under severe stress right now. We just brought

in hospice for my mom. She had breast cancer 10 years

ago and then was cancer free for 6 years and for the

past 4 years it's been in her bone and now it's in her

lungs liquifying, in her brain, shoulder, and legs and

liver.

She is in the dying process now, but she is stubborn.

She can't even hold her fork, she opts to finger eat,

has no control over body functions.....my sister takes

care of her 24/5 and I take care of her 8/2 (some deal

I am getting!!!!!!) Tomorrow is my first day with her

taking full care of her and I am scared to the

begibbers. I don't think I have the physical strength

to be able to assist her in standing up, and then

repositioning her on the bed. I don't think I can

change her diapers(I never was good at it with my two

kids...did alot of puking and got them trained really

fast)

Itching is consuming my thoughts again so I am headed

for my faithful toothbrush that serves as the

extention to reach mid back.

Cindy Baudoux-Northrup

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[Guest guest]

>

> I just had my 6 month check up for being on the

> transplant list. My itching is unrelentless ...

Cindy,

I am sorry to hear how much you are suffering and of the stress you

are under. I know in the past you have successfully used light

treatments for your itching. Are they no longer effective or possible?

The other drug that has helped many, including me, rifampin, I think

you once reported you couldn't tolerate but it may be worth trying

again. The only good thing about your bad situation is you may be so

busy with your mother that you won't have time to think about itching.

That may be a silver lining, but I'm sure you would prefer to do

without the dark clouds instead.

Tim R

[Guest guest]

Thank you Tim. Actually I haven't had time to think

about the itching. I was incharge of watching mom

today, and 20 minutes into my shift, she passed. I

was watching her labored breathing and only took my

eyes off her a second to answer the phone (which was

my sister asking if she was still ok), and when I

looked back, she wasn't breathing. I had to take the

oxygen off her to see if I could feel her breath, and

did not, then checked for a pulse. Hospice declared

her dead at 10:05am....she passed at 9:15.

I still do the light treatments but they don't seem to

help any more. The rifamphin I have tried on several

different occassions to no avail.

Cindy Baudoux-Northrup

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[Guest guest]

Cindy,I am so sorry to hear about your mom.May she be at peace. May you find relief for your itching.LeeThank you Tim. Actually I haven't had time to thinkabout the itching. I was incharge of watching momtoday, and 20 minutes into my shift, she passed. 

[Guest guest]

Cindy,

You have my deepest condolences on the passing of your mother. I know this is a very difficult time for you. Try to take care of yourself while you go through the final preparations for your mom.

Marie

To: From: baudouxnorthrup@...Date: Sun, 9 Dec 2007 11:52:36 -0800Subject: Re: Re: Question about Narcotic patch for PSC itching

Thank you Tim. Actually I haven't had time to thinkabout the itching. I was incharge of watching momtoday, and 20 minutes into my shift, she passed. Iwas watching her labored breathing and only took myeyes off her a second to answer the phone (which wasmy sister asking if she was still ok), and when Ilooked back, she wasn't breathing. I had to take theoxygen off her to see if I could feel her breath, anddid not, then checked for a pulse. Hospice declaredher dead at 10:05am....she passed at 9:15.I still do the light treatments but they don't seem tohelp any more. The rifamphin I have tried on severaldifferent occassions to no avail.Cindy Baudoux-Northrup__________________________________________________________Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Your smile counts. The more smiles you share, the more we donate. Join in!