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Re: Vulvar Vestibulitis

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Hi all -

I'm new to this group. I was recently diagnosed with vestibulitis.

I went to see a new ob-gyn and he found the problem immediately, but

when it came to addressing the issue, he simply wrote out a

prescription for a steroid cream, clobetasol. I was so taken aback, I

didn't have any questions. But after I came home, I began searching

for more information and found this group. I've appreciated reading

different women's experiences about a condition I didn't even know

existed until a few days ago.

Like all of you, I am frustrated by how little information is out

there. I'm not pleased with my doctor's response, and though I did get

the prescription filled, I haven't begun to use the cream. I want to

learn more and explore all my options before I succumb to a steroid cream.

Lindsey - I appreciate what you've suggested below. Can you tell me

more about this estrace cream?

I'm also starting to take better care of myself with yoga, rest, etc

but I am curious to know what you mean when you talk about being 100%

better. (I don't take birth control pills.)

Thanks, Anita

>

> Hello!

> It looks like that betamethasone cream is a type of steroid. I have

also used a similar cream-clobetasol. It is helpful. However, you do

have more than 3 options and I think most of us who are almost 100%

better have found that it usually takes a few different pieces to put

together to get permanently well.

> First of all, are you on birth control pills? There is a link to BC

or hormonal contraceptives to vestibular pain. If you are on the

pill, the patch, or the ring, or the shot you may want to consider

alternatives. The other option is estrace cream applied topically.

This helps toughen up and heal the skin, whereas a steroid cream is

more of a band-aid estrace does support the body's ability to heal.

Of course, oral meds can also help your body learn to turn off those

pain signals and a lot of women do well on both topical AND oral

meds. Physical therapy has helped many of us get well. The muscles

in the pelvis guard against pain, which restricts blood flow and

increases inflammation and decreases the body's ability to heal.

> www.pelvicpainrehab.com

> is a good resource. Finally, allover holistic approaches such as

yoga, meditation, counseling, acupunture-anything that promotes

overall wellness and the body's ability to heal itself is a good

support to the medical things you are doing. You CAN get

better....many women have gone from " managing " it to well again. It

just can take some time and a combination of treatments.

> Take care,

> Lindsey

>

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A doc rx'd steroids for me and they were actually helpful. However, steroid creams eventually break down the skin which is the last thing you want. I used mine only the day or so after intercourse to deal with pain. I used estrace daily for several months and now I'm on a maintenance does of 2x per week to heal the skin. We have some info in our files about estrace and you can also look it up online.

Lindsey

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