Re: Chemo/Blessings Marti hope Chemo is kinder to you

February 21, 2008

Hi Marti- I woke to a day of thinking it is a bed day, it is so freezing here

in Me. don't know about Ct., but am thinking of u having to go out in it. I

read your post and continue to admire your strength, and am glad u are enjoying

the company in your house,as some of us know how it can be after living alone,

and not feeling well, noise can be a disaster even though it is our loved ones.

Your outlook is great, and reminds me of how my mom was when she went through

her Chemo 6 yrs ago. She had such a uplook on it attacked it with everything

positive, and left no room for people who wanted to talk negitive to her. We

also tried to tell her she should do this or not do that, but we soon learned

she new what was best, she was luckily able to against our thinking keep working

through her chemo as she now says she needed to, she did have only 2 very bad

days from it, she also e-mailed alot, did relaxation practice,and kept her

spirit up, with lots of visits from

g.children, good friends, and good books, it's hard to believe looking back

she was on it for a yr. She even went wig shopping ahead with her best friend

laughing about it expecting to go bald, and she never lost it! I hope you also

are able to have easier times, she did have the bathroom rushes though. I look

forward to see you post as it inspires me to know we can make it through another

day and stay in touch with people, I like your courage, I like you share in your

good things you have done in a day, along with your harder days. I like you

keep going. The best to you today, and hope the Tx treat you easy. Hope you are

not getting sick with some flu also, probably just the first chemo.???? Keep up

your courage, and that I would love to have you share with me!

Sharon

Marti Boguski wrote: Hi Darlene,

I hurt all over this morning, but my head is really hurting. I'm not sure if I'm

flaring, having an episode of the fibro flu, with aches and pains everywhere and

a low grade fever, have a cold, because I am freezing in a warm house with a

sweat suit on, or it's just the effects of chemo. Last night I started burning

up and sweating so who knows. I am sure that the toilet hugging is the chemo.

Hey maybe I'll lose some weight. But then my clothes won't fit. I think the

reading materials would get pretty messed up while I'm in the bathroom, but

thank you for mentioning them.

I leave again at noon. I will again have my daughter and cousin here with me

tonight. One will leave to go home and one will stay. Can't remember which one

has to go to work tomorrow. They have the schedule worked out. I am blessed to

have them with me. It's so nice to hear them talking in the background and even

bossing me around as they tell me to go to bed and get off the computer, like

they did last night. I live alone so hearing people here is nice.

My 6 y/o grandson was here Saturday through Tuesday and we played many, many

games. I have a lot of them and he brought a few new ones he got for Christmas.

We also watched movies at rest time. We watched an oldy but goody, The Never

Ending Story and a new one The Last Mimsy (good one too) and the Chronicles of

Narnia. Enjoyed them all. I particularly like the way we watched them. We were

on the sofa covered in a guilt with LC my kitty on our laps, snuggling. That was

great. It's also great to watch his enthusiam for things. We read books, some he

read to me. We went on line to the Shining Stars website and played games and

colored (I got him a Shining Star Monkey and named a star for him so we can

enter the game area too.) It was really fun. He said he liked doing it sitting

on my lap the best. I didn't love that at all. LOL It was a good way to prepare

for the chemo and I am blessed that he wants to spend so much time with me.

As for changing the subject. I am through with that subject. I would never get

through to her anyway that there are nice ways to say things that don't hurt

others feelings. I had received 15 e-mails asking for me to post something and

so I did. When you are at a better place than someone else, or many someone

elses, there are kind ways of asking about them and telling your story, but not

disparaging how they are handling their lives. It would have been nice to say I

guess I may be dealing with less that some of you rather than saying I handle

things differently than you. There are nice ways to say almost anything.

Anyway I'm done, that's for sure.

I hope you are doing OK today and that you have fun with your new games. Thanks

for writing. I think I said I leave again at noon so I appreciate any and all

thoughts and prayers.

Blessed be,

Marti

ddean228 wrote:

Marti,

Well now I don't have to ask how the first day of chemo went! Having

had 2 aunts who went thru it for diff types of cancer, I know it

affects every one differently. Does your fibro flare up or are you

able to keep it at bay some?

What size print should we type in to make it easier for you? I

noticed that " all caps " is hard on the sarcoidisis so if I need to

make an emphasis on something I'll try another route. I don't want

anyone straining to read what I read, little as it is!

Can you tell I'm trying to change the current subject? I think on

some level we all deal with this beast where we are at. I am glad

that is blessed enough that her DH makes a sufficient

salary and that she can rely on some natural ways to deal with her

pain, energy level, etc. I know there are others who are trying that

route too (I do chiro, ion cleanse and reflexology and would do

massage if my ins allowed it!) to help us with this beast.

We all know that there are good and bad days. I'm in a bad cycle

myself, mainly because I pushed and pushed myself too much earlier

this week in an effort to be " done " for Thurs, Fri and Sat so maybe,

just maybe, I can play a game with my kids this weekend (we bought

some new board games - one is called " Nerdy Wordy " ; sounds fun huh?)

as they sometimes both struggle with spelling and reading and I

thought it would be a fun way to teach them. I have had to rely on

my breakthrough meds a little more than I like, plus the asthma is

trying to kick my butt too. The combination is making me

cranky....lol.

Anyhow, I said all that to say this. I don't believe blessings are

being held back from others or that has such a better life

than the rest of us; we all wax and wane and ebb and flow. I am glad

her water aerobics help her - I need to check into that myself, but a

big problem I have is overpowering scents and I'm afraid a commercial

pool is going to be over-chlorinated.

Marti, know that even as you hang out in your fav bathroom (that was

a joke btw....lolol....do you need any reading material???), I will

continually be lifting you in prayer. That the nausea ceases quickly,

that the pain that may be flaring in you eases. And that you will

know that you are being prayed for during this difficult time.

(((Hugs)))

Darlene

P.S. I relooked at what you said about fixed incomes; it does make

sense; I have a friend who is well-invested and she considers herself

on a fixed income because of the checks they receive (which is true

to a point) except what if you were never able to do that??? Like

me??? I don't have that to " fall back on " !

>

> I've just gotten back from my first day of chemo for bone cancer

and have spent most of my time in the bathroom. Yes I am having meds

put by IV into my body and yes it is scaring me to death, but it is

what I have to do to maybe get better. I think I handle that as well

as you would.

>

> Being on line here is one of the relaxing things I do and came

here to make me feel better.

>

> There was a beautiful, useful string going on that I read about

hobbies, crafts and books and other things people are doing to help

them distract themselves from the terrible pain they are in. Join in

on something like that and stop telling us how you control you life

so well with no meds and with your water aerobics. Say something to

make people feel better about their lives for a change.

>

> Marti

>

---------------------------------

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February 22, 2008

What a beautiful message to Marti. I agree with everything you said in your

post. I am way behind on messages, so I think things blew up somewhere yet

where I haven't gotten to, but oh well, will get to it when I do.

Jeanne in WI

Hi Marti- I woke to a day of thinking it is a bed day, it is so freezing

here in Me. don't know about Ct., but am thinking of u having to go out in it.

I read your post and continue to admire your strength, and am glad u are

enjoying the company in your house,as some of us know how it can be after living

alone, and not feeling well, noise can be a disaster even though it is our loved

ones. Your outlook is great, and reminds me of how my mom was when she went

through her Chemo 6 yrs ago. She had such a uplook on it attacked it with

everything positive, and left no room for people who wanted to talk negitive to

her. We also tried to tell her she should do this or not do that, but we soon

learned she new what was best, she was luckily able to against our thinking keep

working through her chemo as she now says she needed to, she did have only 2

very bad days from it, she also e-mailed alot, did relaxation practice,and kept

her spirit up, with lots of visits from