update

[Guest guest]

Good luck, . I hope this is it for you.

God Bless

Carol Maday

[Guest guest]

Hi

I didn't check the e-mail since Sunday, so I had 443

e-mails, all from this group. I just couldn't read

everything. I read some and took the stress test that

someone posted a while ago. I got 128.

I have stopped writing a medical journal. What's the

point? My days are just the same endless pain, muscle

twitches, restless leg and exhaustion and more

symptoms that come and go. Not so much pain though,

the lack of energy is worst. On January 1st I was NOT

tired, for some odd reason. Since then I've been tired

every single day.

Usually I get very tired after lunch and those three

or four hours (depending on when I eat) that follow

are difficult for me. Especially if I'm translating

something boring. If I have an easy or a nice text in

front of me I can focus on that and the afternoon will

go a tiny bit faster.

At work we have every day around 10 am some exercise,

may be 15 or 20 minutes. It's just simple movements to

stretch the arms, legs, neck etc. I can do them and I

don't even get sweaty, just get a little colour in my

face. And I continue in the folkdance group. But it's

not fun to not having a partner. Last time I only

danced 30 minutes. One hour I sat watching the others,

because I didn't have anyone to dance with. My self

confidence is, as some of you might know, on the

bottom of a deep lake and I suppose I have social

angst, so I don't enjoy it at all.

The weather has been cold, stormy, wet... Which of

course means more pain and low body temperature. I am

constantly freezing, usually shivering. I have thick

pullovers and warm socks, but it doesn't help. I also

have arm warmers. (Knitted " tubes " to put on the arms

with a little hole for the thumb to stick out. On me

they barely cover the elbows.) They are warm and nice

and they end where the fingers start, so I can have

them while I am typing on the computer. (Don't have

them right now, because I am a little lazy and don't

want to go to my room and try to find them.)

Today I went to the shower at 4,50 pm just because I

was feeling so cold. Then I had to hurry and eat a

sandwich because at 6 pm the scrapbooking class

started. As some of you know I don't really like the

classes, because I don't enjoy being around so many

people and they don't say anything to me so I feel

very lonely. It was the last lesson today, so I don't

have to go back. I will continue with the scrap

booking, because I have quite a lot of ideas.

My eyes are not really good. I am looking at the

computer screen 5 to 5,5 hours a day, usually more

because I am on the internet in the evening. It's not

good for the eyes and they get irritated. They hurt.

Well, you know how it is sometimes when the eyes are

really tired. I read on the internet that blueberries

help. There is something in the blueberries that helps

the eyes. So the last days I have been drinking

blueberry soup for lunch, among other things. I hope

it helps a little. There are of course pills with

blueberry extract or something but they cost a lot.

It's cheaper to drink a little bottle (250 ml) of

blueberry soup which cost 80 euro cents. And I am not

going to drink it every day. And after the sauna on

Friday I always get hurting eyes. Mum says my eyes

look weird, because it kind of swells up under and

over my eyes. They hurt the rest of the evening and

then they are back to normal on Saturday morning.

Tomorrow I am not going to the sauna because my friend

and I are going to the cinema and I don't want to sit

and watch a movie with the eyes swelled up and

hurting. So I'll just take a hot shower before I go.

Mum went to Sweden today, to her darling. She will

come home on March 2nd. Next week the school kids and

many adults too have vacation, so mum took a couple of

extra days off so she could go already. I don't mind

that she visits him in Sweden, but I don't want him to

come here. But unfortunately he will come for Easter.

Well, it's 10 pm here. I'll eat a yoghurt and go to

bed. I wanted to cross stitch a little too, but I

think I'll skip that. I am so tired. And I hate

unpicking cross stitches when I stitch wrong, so I

only stitch when I am not tired.

--

________________________________________________________________________________\

____

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[Guest guest]

, I am glad you wrote. I have not been able to keep up at all here. I love

this site, but I just can't keep up.

I am glad the scrapbooking class is over for you. I know you were miserable

there. You know, I will just bet that no one there sees who you are inside like

we do here. I see a very kind person who is suffering inside and who is a

little bit shy. I so wish that others could open up their hearts and see who is

really there.

The folk dancing must be fun. But you are right, not having a partner would

not be the best thing. I admire you for going on anyway. Just think of it like

this, they cannot take away your love of dancing.

I do however, wonder how in the world you manage to do so much. I know what

kind of pain and misery you suffer. Sometimes it sounds as if you need to be

getting more rest for yourself. But, sometimes if we just sit down and don't go

and do anything, we actually can feel worse and it does not help the depression

either.

Why do your eyes hurt honey? I am just curious. Is it the fibro? I am lucky

to not have that problem so far.

love and hugs,

Debra V.

Svensson wrote:

Hi

I didn't check the e-mail since Sunday, so I had 443

e-mails, all from this group. I just couldn't read

everything. I read some and took the stress test that

someone posted a while ago. I got 128.

I have stopped writing a medical journal. What's the

point? My days are just the same endless pain, muscle

twitches, restless leg and exhaustion and more

symptoms that come and go. Not so much pain though,

the lack of energy is worst. On January 1st I was NOT

tired, for some odd reason. Since then I've been tired

every single day.

Usually I get very tired after lunch and those three

or four hours (depending on when I eat) that follow

are difficult for me. Especially if I'm translating

something boring. If I have an easy or a nice text in

front of me I can focus on that and the afternoon will

go a tiny bit faster.

At work we have every day around 10 am some exercise,

may be 15 or 20 minutes. It's just simple movements to

stretch the arms, legs, neck etc. I can do them and I

don't even get sweaty, just get a little colour in my

face. And I continue in the folkdance group. But it's

not fun to not having a partner. Last time I only

danced 30 minutes. One hour I sat watching the others,

because I didn't have anyone to dance with. My self

confidence is, as some of you might know, on the

bottom of a deep lake and I suppose I have social

angst, so I don't enjoy it at all.

The weather has been cold, stormy, wet... Which of

course means more pain and low body temperature. I am

constantly freezing, usually shivering. I have thick

pullovers and warm socks, but it doesn't help. I also

have arm warmers. (Knitted " tubes " to put on the arms

with a little hole for the thumb to stick out. On me

they barely cover the elbows.) They are warm and nice

and they end where the fingers start, so I can have

them while I am typing on the computer. (Don't have

them right now, because I am a little lazy and don't

want to go to my room and try to find them.)

Today I went to the shower at 4,50 pm just because I

was feeling so cold. Then I had to hurry and eat a

sandwich because at 6 pm the scrapbooking class

started. As some of you know I don't really like the

classes, because I don't enjoy being around so many

people and they don't say anything to me so I feel

very lonely. It was the last lesson today, so I don't

have to go back. I will continue with the scrap

booking, because I have quite a lot of ideas.

My eyes are not really good. I am looking at the

computer screen 5 to 5,5 hours a day, usually more

because I am on the internet in the evening. It's not

good for the eyes and they get irritated. They hurt.

Well, you know how it is sometimes when the eyes are

really tired. I read on the internet that blueberries

help. There is something in the blueberries that helps

the eyes. So the last days I have been drinking

blueberry soup for lunch, among other things. I hope

it helps a little. There are of course pills with

blueberry extract or something but they cost a lot.

It's cheaper to drink a little bottle (250 ml) of

blueberry soup which cost 80 euro cents. And I am not

going to drink it every day. And after the sauna on

Friday I always get hurting eyes. Mum says my eyes

look weird, because it kind of swells up under and

over my eyes. They hurt the rest of the evening and

then they are back to normal on Saturday morning.

Tomorrow I am not going to the sauna because my friend

and I are going to the cinema and I don't want to sit

and watch a movie with the eyes swelled up and

hurting. So I'll just take a hot shower before I go.

Mum went to Sweden today, to her darling. She will

come home on March 2nd. Next week the school kids and

many adults too have vacation, so mum took a couple of

extra days off so she could go already. I don't mind

that she visits him in Sweden, but I don't want him to

come here. But unfortunately he will come for Easter.

Well, it's 10 pm here. I'll eat a yoghurt and go to

bed. I wanted to cross stitch a little too, but I

think I'll skip that. I am so tired. And I hate

unpicking cross stitches when I stitch wrong, so I

only stitch when I am not tired.

--

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Thanks for updating us, . I enjoy hearing from you. You sound very down,

very depressed. Do you take any anti-depressant medication? Can you see some

sort of counselor to help you with some of your issues? I would like to

encourage you to keep at least a brief symptom diary. All you need to do is

list a few words for the day, such as depression bad, pain level medium, very

tired, or some such thing. This will help you see your progress and will help a

doctor treat you. Take care.

Jeanne in WI