Re: Just a possible hope

[Guest guest]

I went a couple yrs ago to a pain management place which was a

Rehabillitation center verses a Pain management center where is where my Dr.

thinks I need to be now, but that was a yr ago. That one is a pain Med. clinic

is what I call them, I was told they felt it time with how long I have been

suffering, and the amt of weight I had lost due to loss of appetite due to so

much pain I don't even care about food, diet coke, water and a yougart or bowl

of cereal I have to force down me most times, but don't get me wrong I am not

dangerously underweight and truthfully I like the wt. that came off, but they

did not think so. I am 591/2 and still weigh over 150 so ok there. But anyway

this scarred me as I know what kind of drugs are given, and my Dr. agreed, and

she also said some people unfortunatley who all other TX have failed which they

have so far for me, end up on these meds for along long time or rest of life.

Well I kept weighing in my mind can I accept this, can

I live with this pain any longer? I made the call as she told me to and just

go talk to them, the front office woman was so rude, I could not stand it, she

just kepts shoving ???? at me about my tests I had and then would not let me

answer. I hung up, called my Dr. told them they said try again ask for

management, waited a day did it, and got her and she was it!! Well I could not

book the appt with her as she was just as rude. I since have not ever made

another call, I continue like you say with so much pain that the pain trying to

wish it away pretend it is not there adds to the exhaustion I already have! But

anyway may end up having to go. But the other Pain Management Center was they

work with you in PT, OT, Biofeedback TX, massage and that stuff, the catch is I

was told I needed to be there 5 days a week for 8 weeks and then taper from

there to min or 3 days a week, now this is 6 hrs a day, and the Center was 45

mins from where I live and in the Boston area, I

don't do anywhere near Boston, and it put me traveling home at rush hour to top

that, I explained to them that at that time I was working fulltime and could not

quit, there was no public trans to get me there and if I had to drive there that

many times I would surely die of a panic or heart attack just trying to do the

drive. Unfortunatley, again it didn't work, now I also am out of work, but no

longer live in that state and maybe would attempt, because supposedly they have

a good rp for helping but the PT and OT I did not understand as I had already

been there several times, but the ultrasound, biofeedback and massage water that

sounded good. Have you ever thought of accupunture? I did the best with that,

but my insurance only covers a couple Tx a yr. Best to you in finding

something that works if you want to stay away from meds. I really don't blame

you, I have tried so many, that failed, and had stomach trouble with Sharon

BRENDA ASH wrote: Thanks ,

I have a final in accounting due today and the pain is unbearable ( this to

shall pass)

then I have a break in classes. for 1 week and I am taking two easier courses. I

have to do it this way. I do not know if I will get my degree. But I will go

until I can not go anymore. I have a very supportive husband now. The being in

one position is the worse. That is why I had to quit work. I see a pain

management specialst March 4 in hopes for some help there.

(some help witout a lot of drugs) The drugs kept me in bed too long!!! I could

not function. I would rather be in pain and know what is going on around me. I

want to live and have a life!!

I will not let this fibro be my life and control me!!!

thanks all for the welcome!!!

wrote:

Hi and welcome to the family. so happy to hear you are going to college.

That is awesome. I tried at one time but couldn't take the pain and all the

studying. so Dr. suggested I quit as I would never be able to work again after

my accident.

You'll love this group. Join in and get to know us.

Little

LINDA

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[Guest guest]

,

thank you for all your advise, yes I know the med route it kept me in bed to

long,

I did not care weather I lived or died. I want to live even if it means

feeling the pain.

I know you understand that. Sounds like you have been there. I jsut told my

husband I would just love to be able to share a room with him again. maybe a big

fluffy marshmellow

to sleep on. (We have only been marred 3 yrs both second marrages) But I

could see it was affecting his health too much me being up and down every hour.

and the consisit moving.I was told there is a mattress topper that has some

relielf that they use in Nursing home patients alot, ( most likely costs a

fortune)

well back to the books I have not been to bed in 36 hours, I need to do this

exam and drop,

thnaks agian

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