Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Hi all, I have an update to share with the group. I had an ERCP last week (12/07/2007) at St.Luke's in Houston, TX. The doctor found a mass of cells in the common bile duct, with some smaller stricturing in other smaller ducts. The cells are *worrisome* for colangiocarcinoma. I met with a liver disease specialist yesterday (Tuesday, 12/11/2007) and heard more not so good news. Apparently, these two doctors are meeting with a committee tomorrow (12/13/2007) to decide on the best course of action. My options are: a)resect the bile duct with the mass and hope the remainder of the biliary tree and liver do not develop colangiocarcinoma and perform a liver transplant. ...ugh... It was not the news I was hoping for yesterday. I was only diagnosed a month ago and this seems to be moving so quickly now. I guess I thought I had this all under control emotionally and am finding it hard to concentrate on work or much else at the moment. There is some good news, though!!! We are expecting baby #4 tomorrow. Jen is scheduled for delivery around 12:30 PM and we are so excited about having our first boy. So, even though we are in the midst of some very challenging news, we are also mindful and thankful for the blessings we have in life. I hope this message finds all of you well, and in good spirits. There's so much stress around the holidays, I just hope we can all see the joys around us everyday. Thanks for listening (reading). We'll keep you posted. - Seve ******************* Severin Garanzuay - PSC, UC 11/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Steve, I am very sorry you have to go through all this. It is something that happens, and all of us here know that it can happen. I hope it is not CCA as the doctors suspect right now. If it is, it might be a good thing that it is detected now and not later. In a later stage the transplant option might have fallen through as well. The Mayo clinic has a special transplant program for people with CCA. I hope everything will go great tomorrow and wish you luck with number 4. This is some emotional roller coaster you are riding. Regards, Chaim Boermeester, Israel From: [mailto: ] On Behalf Of garanzuay Sent: Wednesday, December 12, 2007 17:58 To: Subject: Update on condition Hi all, I have an update to share with the group. I had an ERCP last week (12/07/2007) at St.Luke's in Houston, TX. The doctor found a mass of cells in the common bile duct, with some smaller stricturing in other smaller ducts. The cells are *worrisome* for colangiocarcinoma. I met with a liver disease specialist yesterday (Tuesday, 12/11/2007) and heard more not so good news. Apparently, these two doctors are meeting with a committee tomorrow (12/13/2007) to decide on the best course of action. My options are: a)resect the bile duct with the mass and hope the remainder of the biliary tree and liver do not develop colangiocarcinoma and perform a liver transplant. ...ugh... It was not the news I was hoping for yesterday. I was only diagnosed a month ago and this seems to be moving so quickly now. I guess I thought I had this all under control emotionally and am finding it hard to concentrate on work or much else at the moment. There is some good news, though!!! We are expecting baby #4 tomorrow. Jen is scheduled for delivery around 12:30 PM and we are so excited about having our first boy. So, even though we are in the midst of some very challenging news, we are also mindful and thankful for the blessings we have in life. I hope this message finds all of you well, and in good spirits. There's so much stress around the holidays, I just hope we can all see the joys around us everyday. Thanks for listening (reading). We'll keep you posted. - Seve ******************* Severin Garanzuay - PSC, UC 11/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Our prayers are with you. has been in treatment for CCa for the last 7 months. His prognosis is really good, only because they caught it so early. Did they tell you how extensive they think this is? It is REALLY good for you if they are talking transplant. It means you have a good chance for a cure. Statistically, there's very little success from resection for patients with PSC, because the cancer comes back in other, affected areas. Transplant, by itself, holds about a 20% survival rate. Transplant after aggressive radiation/chemo raises the odds to 80%, making it well worth the trouble, but it is trouble. It's not been a pleasant road, but we are making it. There have been immense blessings and it has changed us. Feel free to contact us directly. We are happy to help any way we can. God bless you and yours, , wife of (psc 94, CCa 07, waiting for tx) bbfranson.blogspot.com bbfranson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 I was so sorry to hear your news. You must feel absolutely overwhelmed. Hopefully better news will follow. And please let everyone know when the new baby is born! Joanne H (, Ca., mom of , 17) -----Original Message-----From: [mailto: ]On Behalf Of garanzuaySent: Wednesday, December 12, 2007 7:58 AMTo: Subject: Update on condition Hi all,I have an update to share with the group. I had an ERCP last week (12/07/2007) at St.Luke's in Houston, TX. The doctor found a mass of cells in the common bile duct, with some smaller stricturing in other smaller ducts. The cells are *worrisome* for colangiocarcinoma. I met with a liver disease specialist yesterday (Tuesday, 12/11/2007) and heard more not so good news. Apparently, these two doctors are meeting with a committee tomorrow (12/13/2007) to decide on the best course of action. My options are: a)resect the bile duct with the mass and hope the remainder of the biliary tree and liver do not develop colangiocarcinoma and perform a liver transplant. ...ugh... It was not the news I was hoping for yesterday. I was only diagnosed a month ago and this seems to be moving so quickly now. I guess I thought I had this all under control emotionally and am finding it hard to concentrate on work or much else at the moment. There is some good news, though!!!We are expecting baby #4 tomorrow. Jen is scheduled for delivery around 12:30 PM and we are so excited about having our first boy. So, even though we are in the midst of some very challenging news, we are also mindful and thankful for the blessings we have in life.I hope this message finds all of you well, and in good spirits. There's so much stress around the holidays, I just hope we can all see the joys around us everyday. Thanks for listening (reading). We'll keep you posted. - Seve*******************Severin Garanzuay- PSC, UC 11/2007 Quote Link to comment Share on other sites More sharing options...
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