New doc no luck

[Guest guest]

I finally got in to see Dr Zolnoun in Chapel hill. I waited 3 hrs to get in a

room.. I really liked her and thought well maybe there is hope. She prescribed

Lamactil starting at 25 mgs and working up. Also something to make me sleep.

Well its been over a month and I'm on fire still. The meds make me go crap as

soon as I take it so now I have a roid lol..

I'm totally miserable in both places. She said she thinks my system is out of

wack. Staying up late sleeping till 12 and so on. Anyway I have worked 3rd shift

all my life so how can I be out of wack. My body has done this all these years

and now I'm out of wack in the past year.

I'm sooooooooooo discusted right now I could scream! Anyone else ever tried

this. Ive been on everything but lyrica. Pain clinic doc want to do gang

something injection to see if that helps but Im skeptical of that since nothing

else has helped. I think someones missing something here and I'm the one

suffering for it. I called the new docs nurse today and she only takes calls on

mon and tues so I'm screwed there to, and shes 3 hours away from where I live

anyway. I also tried to get in with a uro/gyn but he's 3 months booked.

Lee Ann

[Guest guest]

Hi, I live in Chapel Hill (well, nearby) and I have seen Dr. Zolnoun also.

I noticed that she was really charming the first time I saw her, but

each time after that she was more brusque and after a few visits she

didn't seem to want me to come back.

She is very brilliant and very up-to-date on the research. I would

like to see her again just to pick her brain.

However, not very nurturing and caring.

I am not sure about Lamictal. I have never tried it. However you might

want to try Amitriptyline. It does not cure the pain but it definitely

takes the edge off. The side effects are thirst and sleepiness. Once

you get used to it, it doesn't put you to sleep any more. Also you

might want to try Neurontin, which was a life saver for me. Neurontin

has hardly any side effects for most people.

I have a great doctor in Raleigh. She is not as up-to-date on the

research as Dr. Zolnoun but she is really caring.

>

> I finally got in to see Dr Zolnoun in Chapel hill. I waited 3 hrs to

get in a room.. I really liked her and thought well maybe there is

hope. She prescribed Lamactil starting at 25 mgs and working up. Also

something to make me sleep. Well its been over a month and I'm on fire

still. The meds make me go crap as soon as I take it so now I have a

roid lol..

>

> I'm totally miserable in both places. She said she thinks my system

is out of wack. Staying up late sleeping till 12 and so on. Anyway I

have worked 3rd shift all my life so how can I be out of wack. My body

has done this all these years and now I'm out of wack in the past year.

>

> I'm sooooooooooo discusted right now I could scream! Anyone else

ever tried this. Ive been on everything but lyrica. Pain clinic doc

want to do gang something injection to see if that helps but Im

skeptical of that since nothing else has helped. I think someones

missing something here and I'm the one suffering for it. I called the

new docs nurse today and she only takes calls on mon and tues so I'm

screwed there to, and shes 3 hours away from where I live anyway. I

also tried to get in with a uro/gyn but he's 3 months booked.

>

> Lee Ann

>

[Guest guest]

> >

> > I finally got in to see Dr Zolnoun in Chapel hill. I waited 3

hrs to

> get in a room.. I really liked her and thought well maybe there is

> hope. She prescribed Lamactil starting at 25 mgs and working up.

Also

> something to make me sleep. Well its been over a month and I'm on

fire

> still. The meds make me go crap as soon as I take it so now I have

a

> roid lol..

> >

> > I'm totally miserable in both places. She said she thinks my

system

> is out of wack. Staying up late sleeping till 12 and so on. Anyway

I

> have worked 3rd shift all my life so how can I be out of wack. My

body

> has done this all these years and now I'm out of wack in the past

year.

> >

> > I'm sooooooooooo discusted right now I could scream! Anyone else

> ever tried this. Ive been on everything but lyrica. Pain clinic doc

> want to do gang something injection to see if that helps but Im

> skeptical of that since nothing else has helped. I think someones

> missing something here and I'm the one suffering for it. I called

the

> new docs nurse today and she only takes calls on mon and tues so

I'm

> screwed there to, and shes 3 hours away from where I live

anyway. I

> also tried to get in with a uro/gyn but he's 3 months booked.

> >

> > Lee Ann

> >

>to everyone on this chat group i feel everything you feel!

especially " lee ann " i to feel like the doctor's are missing

something more serious than the good old diagnosis of vulvodynia. i

have tried the injections around the vulvar area and it offered me

only minimal relief, and i do mean minimal. i have had 4 vaginal

surgies in the past and have developed so many problems from it.

constant vaginal pain,burning,itching, and inflammation. for 3

months now it has been the worst ever in years! my medication

stopped working that i had been on for years. my next step is a

vulvar biopsy. nicole

[Guest guest]

Ive tried both those meds and couldnt tollerate eather.

Subject: Re: New doc no luckTo: VulvarDisorders Date: Tuesday, August 12, 2008, 6:56 PM

Hi, I live in Chapel Hill (well, nearby) and I have seen Dr. Zolnoun also.I noticed that she was really charming the first time I saw her, buteach time after that she was more brusque and after a few visits shedidn't seem to want me to come back.She is very brilliant and very up-to-date on the research. I wouldlike to see her again just to pick her brain.However, not very nurturing and caring. I am not sure about Lamictal. I have never tried it. However you mightwant to try Amitriptyline. It does not cure the pain but it definitelytakes the edge off. The side effects are thirst and sleepiness. Onceyou get used to it, it doesn't put you to sleep any more. Also youmight want to try Neurontin, which was a life saver for me. Neurontinhas hardly any side effects for most people.I have a great doctor in Raleigh. She is not as up-to-date on theresearch as Dr. Zolnoun but she is

really caring.>> I finally got in to see Dr Zolnoun in Chapel hill. I waited 3 hrs toget in a room.. I really liked her and thought well maybe there ishope. She prescribed Lamactil starting at 25 mgs and working up. Alsosomething to make me sleep. Well its been over a month and I'm on firestill. The meds make me go crap as soon as I take it so now I have aroid lol.. > > I'm totally miserable in both places. She said she thinks my systemis out of wack. Staying up late sleeping till 12 and so on. Anyway Ihave worked 3rd shift all my life so how can I be out of wack. My bodyhas done this all these years and now I'm out of wack in the past year.> > I'm sooooooooooo discusted right now I could scream!

Anyone elseever tried this. Ive been on everything but lyrica. Pain clinic docwant to do gang something injection to see if that helps but Imskeptical of that since nothing else has helped. I think someonesmissing something here and I'm the one suffering for it. I called thenew docs nurse today and she only takes calls on mon and tues so I'mscrewed there to, and shes 3 hours away from where I live anyway. Ialso tried to get in with a uro/gyn but he's 3 months booked.> > Lee Ann>