2008 conference information is ready!

[Guest guest]

Hi Everyone,

I’m excited to send out the weekend agenda and

registration form for our 2008 conference for PSCers and caregivers to be held

May 2-4, 2008 at the Mayo Clinic in ville. We have a fantastic

weekend planned, and we hope that many of you will be able to attend! Please

note that, for the first time, we have planned some pre-conference activities,

so that you’ll have time to get to know each other before the conference

starts. Tim Wholey and Joanne Grieme are working hard to make the golf tournament

a success, so please join us either on the golf tournament or the boat trip.

The reputation of the Mayo Clinic is well known, but here

are some other highlights:

-Dr.

Greg Gores of Mayo/Rochester is our keynote speaker.

-We

have a research segment with an update about present and future PSC research.

Our speakers are:

-Our

own brilliant Dave giving his thoughts on Vitamin A, IBD and PSC

-Dr.

Dennis Black discussing the progress of the STOPSC project, which we support

-Dr.

Tom Karlsen, our AASLD award winner, who is coming from Norway to speak to us

about his

research project, and also about the new Norwegian PSC research center being

established,

thanks

to the recent generous donation by Mr. Stein Hagen. There is hope for a

cure!

-Saturday

lunchtime breakout groups with a physician

For those of you who haven’t attended past

conferences, please know that these weekends are very energizing. The

combination of listening to presentations on all aspects of PSC plus time to socialize

with other PSCers and caregivers is an uplifting experience. Please think

about attending the conference! If you have any questions, please contact

me at pscpartners@... or at thesafers@... .

Happy Holidays to everyone and a very healthy and happy new

year!

Ricky

PSC 2003

[Guest guest]

Thanks so much for such a great job Ricky, I can't wait. I'll be sending in my registration.For all the newbies, try to come if at all possible. The conferences have saved me from feeling helpless and have given me thehope and confidence I needed to help my son as he copes with PSC.You will be welcomed into what has become another family for a lot of us.Lee Hi Everyone, I’m excited to send out the weekend agenda and registration form for our 2008 conference for PSCers and caregivers to be held May 2-4, 2008 at the Mayo Clinic in ville.  We have a fantastic weekend planned, and we hope that many of you will be able to attend! Please note that, for the first time, we have planned some pre-conference activities, so that you’ll have time to get to know each other before the conference starts.  Tim Wholey and Joanne Grieme are working hard to make the golf tournament a success, so please join us either on the golf tournament or the boat trip. The reputation of the Mayo Clinic is well known, but here are some other highlights:                -Dr. Greg Gores of Mayo/Rochester is our keynote speaker.                -We have a research segment with an update about present and future PSC research. Our speakers are:                                -Our own brilliant Dave giving his thoughts on Vitamin A, IBD and PSC                                -Dr. Dennis Black discussing the progress of the STOPSC project, which we support                                -Dr. Tom Karlsen, our AASLD award winner, who is coming from Norway to speak to us about his                                       research project, and also about the new Norwegian PSC research center being established,                                       thanks to the recent generous donation by Mr. Stein Hagen. There is hope for a cure!                -Saturday lunchtime breakout groups with a physician For those of you who haven’t attended past conferences, please know that these weekends are very energizing.  The combination of listening to presentations on all aspects of PSC plus time to socialize with other PSCers and caregivers is an uplifting experience.  Please think about attending the conference!  If you have any questions, please contact me at pscpartners (AT) yahoo (DOT) com or at thesafers (AT) msn (DOT) com . Happy Holidays to everyone and a very healthy and happy new year! RickyPSC 2003  

[Guest guest]

Ricky,

I must say the 2008 agenda looks very impressive! I was planning on attending this year, even if they had to wheel me in on a gurney, but now I'm completely psyched about it (not to be confused with psycho). :0)

Kudos to all who worked to put this together!

Sincerely,

PSC, UC dx 1984, chronic pancreatitis dx 1997, etc.; listed for tx 06/05 in STL, and 06/07 in Clevelandhttp://www.caringbridge.org/visit/melaniejsSee AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

Hi Ricky. The agenda looks great. Did you mention that the Post Transplant PSCers are going to have a break out session as well?

Ali

Save Life - Be A Live Donor and An Organ and Tissue DonorAli Lingerfelt-Tait180 Blackberry Inn Rd.Weaverville, N.C. 28787also check out :http.//health.groups.yahoo.com/group/Livertx-PSC/It's a new sister site from the PSC Support Group that is for transplant issues.www.pscpartners.orgPSC Partners Support GroupBuy Notecards and Support Research for PSCSee AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

Hi ,

I’m glad that you’re completely psyched about the 2008 agenda

and that you’re planning to join us, no matter what! It should be a fabulous

weekend for all of us. I’ve been working with Dr. Harnois at Mayo to

get this all set up, and she has been a fantastic help. Happy Holidays!

Ricky

PSC 2003

From:

[mailto: ] On Behalf

Of MO425@...

Sent: Friday, December 21, 2007 7:00 AM

To:

Subject: Re: 2008 conference information is ready!

Ricky,

I must say the 2008 agenda looks very impressive! I was

planning on attending this year, even if they had to wheel me in on a gurney,

but now I'm completely psyched about it (not to be confused with psycho).

:0)

Kudos to all who worked to put this together!

Sincerely,

PSC, UC dx 1984, chronic pancreatitis dx 1997, etc.; listed for tx

06/05 in STL, and 06/07 in Cleveland

http://www.caringbridge.org/visit/melaniejs

See AOL's top

rated recipes and easy

ways to stay in shape for winter.

[Guest guest]

Hi Ali,

Yes, the Post Transplant PSCers will have a lunch break out

session (with a physician) on Saturday, and they’ll also get together for most

of Sunday morning. There will be lots of time to discuss concerns, experiences,

etc.

Ricky

From:

[mailto: ] On Behalf Of alisoikias@...

Sent: Friday, December 21, 2007 9:04 AM

To:

Subject: Re: 2008 conference information is ready!

Hi Ricky. The agenda looks great. Did you mention that the Post

Transplant PSCers are going to have a break out session as well?

Ali

Save Life - Be A Live Donor and An Organ and Tissue Donor

Ali Lingerfelt-Tait

180 Blackberry Inn Rd.

Weaverville, N.C. 28787

also check out :

http.//health.groups.yahoo.com/group/Livertx-PSC/

It's a new sister site from the PSC Support Group that is for transplant

issues.

www.pscpartners.org

PSC Partners Support Group

Buy Notecards and Support Research for PSC

See AOL's top

rated recipes and easy

ways to stay in shape for winter.

[Guest guest]

Thanks Ricky for doing this for us Transplantees.

Re: 2008 conference information is ready!

Hi Ricky. The agenda looks great. Did you mention that the Post Transplant PSCers are going to have a break out session as well?

Ali

Save Life - Be A Live Donor and An Organ and Tissue Donor

Ali Lingerfelt-Tait

180 Blackberry Inn Rd.

Weaverville, N.C. 28787

also check out :

http.//health.groups.yahoo.com/group/Livertx-PSC/

It's a new sister site from the PSC Support Group that is for transplant issues.

www.pscpartners.org

PSC Partners Support Group

Buy Notecards and Support Research for PSC

See AOL's top rated recipes and easy ways to stay in shape for winter.

More new features than ever. Check out the new AOL Mail!

[Guest guest]

No problem!

Ricky

To: From: alisoikias@...Date: Fri, 21 Dec 2007 14:00:06 -0500Subject: Re: 2008 conference information is ready!Thanks Ricky for doing this for us Transplantees.Don't get caught with egg on your face. Play Chicktionary! Check it out!

[Guest guest]

Hi Ricky,

Will there be any refund at the last minute I'm not well enough to travel? I've had a very rough several weeks where I wouldn't have been able to travel if I'd been scheduled to go. I will get travel insurance for the air fare, but what about for the conference fees?

Thanks, Marie

Marie

To: From: thesafers@...Date: Thu, 20 Dec 2007 15:47:38 -0700Subject: 2008 conference information is ready!

Hi Everyone,

I’m excited to send out the weekend agenda and registration form for our 2008 conference for PSCers and caregivers to be held May 2-4, 2008 at the Mayo Clinic in ville. We have a fantastic weekend planned, and we hope that many of you will be able to attend! Please note that, for the first time, we have planned some pre-conference activities, so that you’ll have time to get to know each other before the conference starts. Tim Wholey and Joanne Grieme are working hard to make the golf tournament a success, so please join us either on the golf tournament or the boat trip.

The reputation of the Mayo Clinic is well known, but here are some other highlights:

-Dr. Greg Gores of Mayo/Rochester is our keynote speaker.

-We have a research segment with an update about present and future PSC research. Our speakers are:

-Our own brilliant Dave giving his thoughts on Vitamin A, IBD and PSC

-Dr. Dennis Black discussing the progress of the STOPSC project, which we support

-Dr. Tom Karlsen, our AASLD award winner, who is coming from Norway to speak to us about his

research project, and also about the new Norwegian PSC research center being established,

thanks to the recent generous donation by Mr. Stein Hagen. There is hope for a cure!

-Saturday lunchtime breakout groups with a physician

For those of you who haven’t attended past conferences, please know that these weekends are very energizing. The combination of listening to presentations on all aspects of PSC plus time to socialize with other PSCers and caregivers is an uplifting experience. Please think about attending the conference! If you have any questions, please contact me at pscpartners (AT) yahoo (DOT) com or at thesafers (AT) msn (DOT) com .

Happy Holidays to everyone and a very healthy and happy new year!

Ricky

PSC 2003

Get the power of Windows + Web with the new Windows Live. Get it now!

[Guest guest]

Hi Marie,

Please write to me offline at thesafers@...

, OK?

Ricky

From:

[mailto: ] On Behalf Of Marie Nilsson

Sent: Thursday, January 03, 2008 5:58 PM

To:

Subject: RE: 2008 conference information is ready!

Hi Ricky,

Will there be any refund at the last minute I'm not well enough to travel? I've

had a very rough several weeks where I wouldn't have been able to travel if I'd

been scheduled to go. I will get travel insurance for the air fare, but what

about for the conference fees?

Thanks, Marie

Marie

To:

From: thesafers@...

Date: Thu, 20 Dec 2007 15:47:38 -0700

Subject: 2008 conference information is ready!

Hi

Everyone,

I’m

excited to send out the weekend agenda and registration form for our 2008

conference for PSCers and caregivers to be held May 2-4, 2008 at the Mayo

Clinic in ville. We have a fantastic weekend planned, and we hope

that many of you will be able to attend! Please note that, for the first time,

we have planned some pre-conference activities, so that you’ll have time to get

to know each other before the conference starts. Tim Wholey and Joanne

Grieme are working hard to make the golf tournament a success, so please join

us either on the golf tournament or the boat trip.

The

reputation of the Mayo Clinic is well known, but here are some other

highlights:

-Dr. Greg Gores of Mayo/Rochester is our keynote speaker.

-We have a research segment with an update about present and future PSC

research. Our speakers are:

-Our own brilliant Dave giving his thoughts on Vitamin A, IBD and PSC

-Dr. Dennis Black discussing the progress of the STOPSC project, which we

support

-Dr. Tom Karlsen, our AASLD award winner, who is coming from Norway to speak to

us about his

research project, and also about the new

Norwegian PSC research center being established,

thanks

to the recent generous donation by Mr. Stein Hagen. There is hope for a

cure!

-Saturday lunchtime breakout groups with a physician

For

those of you who haven’t attended past conferences, please know that these

weekends are very energizing. The combination of listening to

presentations on all aspects of PSC plus time to socialize with other PSCers

and caregivers is an uplifting experience. Please think about attending

the conference! If you have any questions, please contact me at pscpartners@... or at thesafers@... .

Happy

Holidays to everyone and a very healthy and happy new year!

Ricky

PSC

2003

Get

the power of Windows + Web with the new Windows Live. Get it now!